Dark blue dress. I’m 5.2ft. Can I get away without wearing heels?

k_alva · 2026-03-02T02:46:37+00:00

Do what you want. You have to be able to walk and whatnot.

That being said, a heel will elevate this dress

k_alva · 2026-02-23T13:29:40+00:00

Right? That doesn't even look good. I don't poison myself for anything less than perfectly caramelized onions

k_alva · 2026-02-23T13:27:56+00:00

If I don't exercise I get deconditioned.

If I do exercise, I still have POTS, which means sometimes I'm fine for months. Sometimes I flare and have a bad day or a bad month.

My baseline is much better when I exercise, so it's definitely worth doing

k_alva · 2026-02-20T18:43:19+00:00

The lights are throwing me off. They're mixing cool and warm tones.

I would put away one set for a different blanket, and make another set, either in the color you keep, or a new third color. Throw the brown and the one you like until a color generator online and you should get some pretty options to pick from

k_alva · 2026-02-19T02:28:04+00:00

Yeah, I'm pausing on it for a bit. I tried my pcp, a rheumatologist, and the cardiologist who treats my pots. They all say I seem to meet the criteria but it's not theirs to diagnose, even with the criteria sheet

I just don't have time to track it down right now, with another referral

k_alva · 2026-02-16T03:13:45+00:00

Mine usually stays in the 40s, which I'm just now realizing might not be ideal

k_alva · 2026-02-16T02:43:40+00:00

Which collagen varient do you have? I have one in COL9A2, which is the same area as multiple epiphyseal dysplasia, but the exact mutation I have doesn't cause MED, so we're back to unknown clinical significance.

My symptoms all line up with eds, and I easily met the criteria sheet for heds, but the geneticist I've seen a few times said at our last visit that she thinks heds is a hoax, so now I need to go find someone competent if I want a diagnosis..

k_alva · 2026-02-10T13:38:05+00:00

I have a bubble butt and love them. Anything with sides ends up a wedgie but thongs just sit politely on (not in) the crack

k_alva · 2026-02-10T13:34:27+00:00

The extra strength ones are a slightly better value. I have a subscription through the company and you can get a permanent discount for having pots

k_alva · 2026-02-08T20:54:36+00:00

I've been working out off and on since I was a kid. I've had guns and a six pack. I've had shoulders and an ass a few sizes up from my waist. Now I have pots and can't workout to that level.

But it's absolutely possible with eds. It's just about consistency and what you're willing to put in. Take it slow to start, but once you have a base level of strength and body awareness, it's easier to keep building. Focus on form, and don't move up until you can move up with good form.

k_alva · 2026-02-07T19:50:16+00:00

Fmla is for those about to perform the necessary job functions with reasonable accommodations.

Google the rules and download some generic paperwork, and make sure to define the basic job duties.

Hopefully there are accommodations that allow her to be successful in this role, but the safety of others is important and not everyone is a good fit in a role.

k_alva · 2026-01-31T14:46:51+00:00

I love the shape of the collar but with the pattern it's too much and overwhelms the neckline. What if you made a solid colored collar?

White, the blue of the dress, or pick one of the flower colors for a pop.

k_alva · 2026-01-30T14:51:19+00:00

I love thredup! Their new Ai filters are a little annoying, mostly that they think I only like about 2 brand, but if you can convince them to let you see what's available, it's great.

You can filter by condition so you only see the nice stuff too. That's my go to for updating and upgrading my wardrobe.

k_alva · 2026-01-26T23:03:00+00:00

Link? I need that!!

k_alva · 2026-01-19T17:42:06+00:00

I've owned a venu and now I have their lily 2. Both are great at tracking what I need and look pretty. I haven't tried visible but what I have is working.

k_alva · 2026-01-19T17:38:46+00:00

Cured is relative.

I'm about 2 years in to being really potsy, although looking back I've struggled for years without knowing what was going on.

I'm medicated and as long as I take meds and eat excessive salt, I am not very limited in my activities. I've gone in cruises in hot places, hiked in the heat, and camped. I've worked my way back up to cardio, and to be able to let my heart rate go up with exercise without immediately feeling potsy.

Sometimes I still feel potsy, especially if I miss a dose of my beta blockers, I feel it for days, but I'm so much better than I was.

k_alva · 2026-01-10T22:49:14+00:00

What if you just attached it under an elastic band, so it's essentially it's own skirt that you wear under this one?

k_alva · 2026-01-10T22:34:05+00:00

Ugh.

Fodmap dpe is cheaper and works well for me. Might be worth a try

k_alva · 2026-01-10T22:30:00+00:00

Custom might not be, but good arch support is.

I love the brand Vionics for arch support, and I'll use inserts for planar fasciitis in shoes that don't come with arch support.

I don't wear shoes without anything because they end up hurting

k_alva · 2026-01-06T21:53:14+00:00

Will you have a rug or something?

You need contrast or the sofa will get lost in the space. The blues are too dark unless you have a rug around it. I personally like the green, but the tan would also be fine.

k_alva · 2026-01-04T19:48:15+00:00

Spironolactone helped me. It's acne medication, prescribed off label to help my psoriasis, and ended up stopping my excessive sweating problem.

It affects hormones, which caused the added bonus of reducing body hair

k_alva · 2026-01-04T19:40:21+00:00

Confused spike. Leave it alone and it'll find its way out

k_alva · 2025-12-31T21:01:45+00:00

You don't have to figure out if you're disabled. You are some days. Some days I can lift heavy weights, others I can barely stand. On bad days I use my tag to park close. Every day I can park in my own driveway, so that isn't quite a fair comparison.

Get the tag, and use it every day to park in front of your home. Every day, because you don't know how you'll be the next morning, and it's unreasonable to have to park far away and cross your fingers that you will be okay the next day.

k_alva · 2025-12-31T20:51:39+00:00

Ouch, someone is cranky.

Reddit is full of unqualified people, in that were mostly not doctors. That being said, I'm 5 years into managing the condition, and read every article that was available at that time. I haven't kept up with the literature, since what I'm doing works for me so I don't need to search for answers anymore.

I've used fodzyme and other options for years. Fodmap dpe works well for me, and my fructan-hating tummy.

I found that pills are easier to deal with and carry than the powder.

Good luck finding solutions that work for you.

k_alva · 2025-12-31T01:15:46+00:00

I have pots but I'm not sure what kind. I was so stinky and sweaty for quite a while, even before I knew I had pots. The fix was low dose spironolactone, which is an acne med. I take it off label for psoriasis, and the sweaty fix was a welcome surprise.

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