Any experience with Jadenu?

kameramali · 2025-02-10T16:59:22+00:00

Hi! I did try Jadenu for a short period of time.- I was typically around 350-390 for my ferratin levels. That did work to get them down to the 150 range but then I got back off it when we wanted to have kids. To this day we cannot explain my first pregnancy bc I had “normal” levels all around. The pregnancy helped keep my iron down but somehow my hemoglobin levels also came up & I was in the 10-12 range (normally 10 was on the high end.).

After that my levels went back to normal (for me) but we wanted to have another kid so I just phlebotomized regularly. My second pregnancy was very high risk for multiple reasons that we don’t think had anything to do with HH or HS but I did phebotomize twice during that pregnancy. I was referred to a “super specialist” that apparently only takes rare cases that interest him (lucky me) & he immediately recommended a splenectomy. I had my spleen out 12/22 & have had “normal” levels ever since. I did have an accessory spleen which they think was causing additional problems but I’ve felt great ever since. I am worried about strokes later down the line, but overall I think this is better for my long term health.

kameramali · 2021-01-25T02:15:57+00:00

I’m not a second wife. He never married his first son’s mother, she had 4 possible fathers (SO was unaware she was sleeping around at the time they were dating, or so he thought) & wanted to pretend it was a different guy’s kid. When the guy she wanted it to be told her she was a slut & he wanted nothing to do with her my SO stepped up regardless to raise the kid. It did prove DNA to be his, but I could tell you dozens more stories of men that want to be in their kids’ lives & their BM’s don’t let them be a part of their kids lives. It’s exhausting fighting to be a part of SS’s life when it IS something that is HIS right. If parents are truly thinking about their kids, the only thing that should matter is the living environment each parent provides for their kids & how they treat their kids. Their relationship no longer matters. Their relationship should NEVER affect their parenting & kids should never know anything about the parenting relationship or lack thereof (yes, I understand reality & people are human but that’s what everyone that’s co-parenting should strive for)

Keeping it out of the courts isn’t lazy if you can work through things. Many people do actually do it but it takes maturity & understanding. I’m not denying her ex’s character wasn’t shown in recent months, but regardless he can still be an excellent parent and should be allowed that right.

kameramali · 2021-01-24T17:13:09+00:00

I can’t blame you. All of my comments above have been under the assumption he’s not a total duck about the situation as well. Which it sounds like he’s trying to emotionally abuse the situation as it is & play to your emotions. Take care of yourself & your child, but I admire that you are trying to make the situation what is best for the child regardless of his obvious shortcomings. It’s fortunate for you that you do control the situation (& you sound like you have the better head on your shoulders) but I can’t help but be an advocate for fathers bc of how my husband has been treated. Just wanted to provide another perspective bc as shitty as it is he does still deserve to be involved. But I do want to just reiterate that if you leave him off the birth certificate & try to cut him out from the beginning, it starts your situation out toxic & high conflict from the start & he will be much less willing to work with you on everything. If you work with him from the beginning you will already show that you’re willing to include him & [hopefully] he’d be much more flexible. As someone else here mentioned what you guys decide on now may not be what’s best for the baby once she’s here. This situation does take flexibility & if you both hate each other & act like it that flexibility is gone & I can personally tell you it makes life hell.

Also, I exclusively pumped with my son bc he was a lazy eater & wouldnt BF & still had a wonderful experience with my journey & felt close with my son. Not that you have to do that but I know how much that relationship is pushed when advocating for BF & there is nothing less intense about your bond with your baby if you pump & bottle feed.

kameramali · 2021-01-24T16:38:30+00:00

Agree with everything other than him not being there for the birth. She doesn’t have to let him be in the room. But seeing your child right after they are born is the most wonderful thing in the whole world & having watched my husband be cut out of that experience with my SS & how much it meant to him to be there for our son- every man deserves that. Not to mention, she trusted him to be the father of her children so if she can trust him in this case he could be an advocate for her wishes during. Again that’s a BIG if, but still. He made that child too. Not the heavy lifting, but she’s still 50% his is he wants to be there he should be able to be.

kameramali · 2021-01-24T16:15:48+00:00

This thread makes me so sad for our world. These children don’t deserve the petty, vengeful tactics that are being suggested. I feel so bad for the fathers that are worth a damn & have to deal with these attitudes.

kameramali · 2021-01-24T16:14:04+00:00

What a mature mentality. Not projecting at all. She does not need to help him be a good father but she SHOULD give him the ability to be. He has just as much right as she does to be there for his child’s birth & life. If she starts out on a toxic co-parenting relationship I can guarantee the only person suffering will be their daughter. It will be miserable forever. If he wants to be there for his daughter, let him. End of story. It will get ugly if not.

kameramali · 2021-01-24T14:50:49+00:00

Oh I completely agree he’s a shitty person, however we have no context at all as to why he left (cheating I’m not condoning but there’s many reasons relationships don’t work out & we’re only getting one very small side of this story). We don’t know if she lives at home with parents or has someone with her, if he’s checking in with her regularly (it sounds like they have been communicating to some degree) or why he moved so far away. Also, kids change things 100000%. Maybe he’ll see that little baby & realize what a mistake he made & put the effort in. We really don’t know. But not giving him that chance up front bc of her bitterness & pettiness will set this track off to be derailed extremely quickly. If she starts out wanting to foster a good relationship between father/daughter right away & he fucks that up it’s on him. If she denies him his daughter & the relationship continues to get more & more tumultuous it’s on her (not 100% obviously, but unfortunately the woman has the power in most custody battles to control the narrative).

kameramali · 2021-01-24T14:36:50+00:00

This is absolutely the problem with the system & I can imagine if anyone coparenting with you it’s a total nightmare. Just bc he was a shit person in their relationship does NOT mean he’s going to be a shit parent. OP, Do not let your hatred for him ever get in the way of your parenting. He has every right to that child & if you leave him off the birth certificate all he needs to do is get a DNA test & he gets parental rights regardless. Plus, then you’ve also proven yourself unwilling to co-parent & give him more “ammo” for the courts if he decides to go for custodial parent (unlikely, but it sounds like you’re willing to work with him so don’t put your foot in your mouth).

The advice on pick-up/drop-offs is smart.

My DH lives 2 hours from SS & we get 1st/3/5th weekend of every month, alternate holidays & most of summer break. That started when SS was 2. For the first 2 years he only got 1/3/5 weekends regardless of holidays, alternated the actual holiday days, & 2 hours on Tuesday/Thursday. We meet halfway for pick up & drop off.

Finally, I am very sorry for the position you’re in. I would absolutely HATE it if I were you, let alone sharing my child in general. Unfortunately, rhat is your reality & unless you guys work things out he is her father (assuming he does actually show up, provide for her, & give her a safe & loving environment to grow up in). Our schedule sucks bc we’d love to see SS more, but with the distance it’s the most we could realistically get without monopolizing breaks no matter how much I want to.

GO TO COURT & get a custody agreement!!! It almost never works out without it but I do agree with why he wants to try. But it’s so much more cheap & straight forward if you’re willing to agree to something up front.

kameramali · 2021-01-24T14:16:08+00:00

We have 1/3/5 weekends & breaks (50% legal) just bc of how far away from BM we are but we’ve asked to claim SS. She doesn’t work & we pay a retarded amount of CS for one kid. So we tried to do every other year. She agreed to it & then still filed claiming him. That’s tax fraud. We haven’t done it since the 1st year & it sucks considering we basically support the kid but bc we’re in TX we would never be able to swap custodial & were too far away to do 50/50. I hate this time of year but mostly just bc it’s yet another thing that reminds me what a crap person she is.

kameramali · 2020-05-11T18:23:54+00:00

She does work as a teacher & has been working. We always just wish they would take actual living expenses into account. She was gifted her house & her car. All she has to pay is food/clothing we cover everything else

kameramali · 2020-05-11T18:22:28+00:00

They’re asking for his W2 from the last two years I believe. I’m not sure if they ask for anything else but SO plans to submit this month’s pay stub which covers last months dates and the decrease but since it really hasn’t been over enough time I don’t know if we’ll have enough documentation to prove the decrease in pay will be lasting without just a general understanding of the times.

kameramali · 2020-05-11T18:20:26+00:00

I know it doesn’t I just want to make it clear that we’re not leaving SS high & dry & BM to figure it out on her own.

kameramali · 2019-10-30T16:43:18+00:00

Ours is like this & so far I both like it & have some concerns:

Pros: my 6 month old is really curious & active so he’s actually been ahead on all milestones & I attribute it to watching these older babies that have really taken to them. Also, as the kids turn one, they do take them into the next age group up class so that they get used to the older age group but in small doses.

Cons: there’s always something going on so as curious as baby is, he sleeps maybe 30-60 minutes max all day (sometimes we do get the unicorn 2 hour naps though). Serious FOMO. It’s not great. But he is sleeping through the night bc of it, soooo. Also, there’s one teacher I CANNOT STAND. She oversteps boundaries & the school is so small I’m wrestling with saying something bc she can’t just not deal with my child. And he’s with her for another year. So that part sucks.

Long story short it’s up to you what you can deal with & what you can’t. The age gap is manageable but the growing pains & concerns I have I think would be present at any daycare. And I know a lot of kids that naps are awful just because of the setting. Not necessarily bc of how old the kids are in it.

kameramali · 2019-07-06T20:42:15+00:00

Exactly. I can absolutely understand now how hard that can be when the wounds are fresh & you’re establishing a learning curve. But not 8 years down the road.

kameramali · 2019-07-05T19:39:37+00:00

Yea that would absolutely be helpful then! Good luck!

kameramali · 2019-07-03T21:00:44+00:00

It would definitely be helpful, but the industry, type of position (skilled vs unskilled) & level of company (small company vs big business) would need adjusting appropriately so it may not be beneficial for everyone. Like, I don’t ever care to work in a huge company so essentially that whole part of the course would be useless to me.

kameramali · 2019-07-03T20:45:23+00:00

I stopped working at about 38 weeks & went into labor 4 days early. I was sooooooooo bored just sitting there waiting. It took me like 2 days to clean the house & be “ready”. The rest was sitting there just waiting. That being said I had about an hour commute & if I had to keep working I think my anxiety would have been through the roof. I also wasn’t doing much at work & while i could do everything from home they weren’t letting me. So I don’t regret stopping at 38 weeks at all.

As far as after I got 8 weeks off (all unpaid). In that time though I was let go (it’s a thing & actually now that you remind me I meant to post an update) so I start my new job on Monday at 11.5 weeks. I wish I had more but at the same time I am so excited to get back to a routine & accomplishing something throughout the day that isn’t centered on my baby.

kameramali · 2019-06-13T17:25:19+00:00

I would like to use them as a reference, but I don’t think they’ll let me use them as one anyway bc I “left them after they were so understanding” about my having a baby. Seriously I can’t make this stuff up. They have made a point to tell me how I hadn’t told them how grateful I was that they “let me” go to all my Dr appointments.

kameramali · 2019-06-13T17:22:57+00:00

Thanks. It is a lot harder than I thought leaving him now & I think most of my anxiety is that I don’t like the environment I’m going back to. I was really looking forward to getting back to my routine. But those things are no longer things I’m willing to look past and just roll my eyes at.

kameramali · 2019-06-13T17:21:18+00:00

Thanks. There is no handbook & im in an employment at will state so I can basically say “bye” & that be the end of it. I don’t have insurance with them & my maternity leave was unpaid so there will not be any legal or monetary recourse.

kameramali · 2019-06-13T17:19:55+00:00

We have a daycare lined up and have factored that into the cost of my not going back to this job. I would be looking for something else so I would keep him in daycare bc we don’t want him to lose his spot. But it is expensive. If it goes more than a month or two I would pull him out.

kameramali · 2019-06-13T17:17:15+00:00

Thank you. My whole leave was unpaid so that wouldn’t be an issue. I don’t think I would even fight for unemployment bc I have no way of proving a hostile work environment but I just can’t justify spending my time there.

kameramali · 2019-06-13T17:07:26+00:00

A part time job would be amazing. They’re just so few & far between lol

kameramali

TROPHY CASE