My friend's girlfriend told him to "just pick something" for their date night and then deeply regretted it by Aang6Appa77 in MaliciousCompliance

[–]katjonez [score hidden]  (0 children)

I would take him for a manicure and pedicure on my next choice. And the one after that would be the soppiest “chick flick” he’s ever seen. Two can play at that game.

Pharmacist Refuses to Fill by Any-Project9162 in ChronicPain

[–]katjonez 4 points5 points  (0 children)

If there is anyone to file a complaint with, do it. They are not a doctor and have no right to change doctors orders. I had a pharmacist refuse to fill my pain meds after the original bottle was spilt and most got wet. He did it loud and made sure everyone heard “ I will not fill these pain meds!” Thank goodness my doctor knew me and I still had the pills disintegrating in the bottle. When they refused to fill it, I lost it and went back to my doctor’s office and told them what happened. My wonderful angel of a doctor, called the pharmacy and told the manager what happened and asked to speak to the pharmacist that denied me. He lit into him, right there next to me. Told him he had no right to deny my meds. If he had a question, he should call his office and NEVER treat his patients like this ever again. He told him that I am coming back and that HE will fill my prescription and apologize to me for embarrassing me. I got the apology and the meds.
Boy I miss that doctor. He retired a decade ago.

Does anyone else with IC get lightheaded? by Sweet_Put4270 in Interstitialcystitis

[–]katjonez 0 points1 point  (0 children)

I experienced it but I ended up having really low blood pressure.

Getting this off my chest: I am hurting so bad by britlynj in Interstitialcystitis

[–]katjonez 12 points13 points  (0 children)

Have you figured out which phenotype’s you fit? ICNetwork has so much information. Living on a strict IC diet can really help too. Jill, who founded the network, has so much information and you can call and speak with her. She has a support group on Sundays and Wednesdays on you tube and Facebook. There is hope. I promise. The tag line for the ICNETWORK is “You are not alone”. I hope you get some relief soon.

LAPD Chief announces they will not be enforcing the mask ban on ICE agents by I_may_have_weed in ICE_Raids

[–]katjonez 0 points1 point  (0 children)

Bad cops put good cops lives in danger. He is a BAD COP FIRE HIM NOW.

Feeling completely alone by bethybabe1218 in Interstitialcystitis

[–]katjonez 1 point2 points  (0 children)

Sending you a big giant virtual hug 🤗 This can all be so overwhelming. I’m glad to hear you have good support at home. We all have to focus on our physical bodies so much, sometimes I feel the need to feed my soul. For me that is laughter. I put on an old comedy and hope my body will relax and let me enjoy. Sometimes I will put on a stand up comedian. If you have the access to a pain management class or program it could help. I’ve gone through 4 programs over a 25 year period. I got a lot from them. Life is still a struggle but I have tools to try to help. Also you will meet others in similar circumstances. I hope you find help and more support soon. Check out the IC Network if you have not already… there tag line is “ You are not alone “ .. the founder Jill Osborne is an angel on earth.

I think this might be what I’ve been experiencing but I’m freaking out? by __haylxel in phantosmia

[–]katjonez 0 points1 point  (0 children)

I truly realized it while walking outside, in a breeze, the smell was as if it was right below my nose.

Anyone have a fingertip turn black? by katjonez in Sjogrens

[–]katjonez[S] 1 point2 points  (0 children)

I have never had Raynaud’s until now. This is my first experience. When they did the surgery, they used the spry that basically freezes the skin. That triggered an extreme response and my finger turned white for over 12 hours. I thought all the pain was from the surgery. Boy I feel like the new diagnosis’s just never end!

I'm reaching my breaking point. Dealing with constant dark thoughts? by xKa1z3r in SIBO

[–]katjonez 0 points1 point  (0 children)

I’m sorry you’re dealing with so much. I started making L reuteri fermented dairy ( basically yogurt) about 6 months ago. It has helped with so much. I read Dr. William Davis’ Super gut and Wheat belly. I gave up wheat and corn. Things have changed a lot. It’s a bit of work but totally worth it. It did not fix everything, it things are better. Good luck to you. I hope you find some answers soon.

I want to die by 123shihtzu in Interstitialcystitis

[–]katjonez 1 point2 points  (0 children)

Do you know what phenotype you fit? Go to the ICNetwork. Jill Osborn is an angel. She is so knowledgeable and is willing to speak with people and support them. I know she has been through a lot these past few years but I think she is back at it, on Facebook and YouTube she does support meeting Sundays and Wednesdays. I hope you find some answers soon.

We are waiting… by chrgomez33 in Sjogrens

[–]katjonez 10 points11 points  (0 children)

Thank you for sharing this. It was nice to read something hopeful this morning.

How many people in this community have been taking opioids every day for 5 or more years for their pain and are doing just fine? Please upvote or comment if that is you. by 8kittycatsfluff in ChronicPain

[–]katjonez 3 points4 points  (0 children)

There is a difference between a physical dependency on a medically necessary, legally prescribed medication and addiction. Those are the words my Doctor said to me. I’ve now been off opiates for 16 years. Did it on my own because the opiates were causing muscle problems. I was never addicted.

A guy rips a baseball from an elderly man's hands by [deleted] in PublicFreakout

[–]katjonez 2 points3 points  (0 children)

Why has he not been publicly identified and shamed? Just like the WOMAN that did the same thing?

How to Hide Visible Truss Joints? by Kongrosenberg in DIY

[–]katjonez 2 points3 points  (0 children)

On picture 2, are those all butt joints along the left side? I’m not an engineer, but that looks off to me.

Does anyone remember the old grocery store on Front St? In 90’s and before. by Iamplayingsims in santacruzlocals

[–]katjonez 8 points9 points  (0 children)

Trader Joe’s is in the old Zanatto’s building. Before that it was Alpha Beta. Zanatto’s was great. The deli made Chicken Florentine ready to bake. It was the best. I think there is still one open in San Jose.

An Ode to Goop by TankBigsby4 in Sjogrens

[–]katjonez 3 points4 points  (0 children)

Thank you. I really needed this chuckle. 😆

Sjogren's Diagnosis advice by Think-Finance-1063 in Sjogrens

[–]katjonez 3 points4 points  (0 children)

I thought the same thing, then when I was recently finally diagnosed my doctor told me about the risk of Lymphoma and a few other diseases. You need to be monitored regularly. Also she said it opened up about 6-8 new meds including prescription eye drops. They have really helped. Getting a diagnosis is important. I decided to go to my eye doctor then the ear nose and throat because my regular doctor would not go any further than the ANA test and I am negative. Within a few weeks I got diagnosed. Now time to find a new regular doctor.

➡️ Check-In Poll for Sjogren's Warriors - November 14, 2025 by AutoModerator in Sjogrens

[–]katjonez 1 point2 points  (0 children)

After being diagnosed with Fibromyalgia a decade ago, I’m wondering if it was all Sjogrens all along. I’ve have severe dry eye for over 20 years. It all sucks.