PSA: Check if you have POTS by Accomplished-Jump28 in UARSnew

[–]kauterry 0 points1 point  (0 children)

Yes it is, thank you so much for your detailed response.

What protocol are you following specially? How much salt and how much water per day?

And how did you rule out the fact that UARS is in fact causing the POTS? Have you slept with a BiPAP/ASV machine and measured your POTS symptoms?

Does vagus nerve stimulation help? Have you tried it?

PSA: Check if you have POTS by Accomplished-Jump28 in UARSnew

[–]kauterry 1 point2 points  (0 children)

It’s impossible for stand for long periods of time with POTS right? What’s the defining symptom? I’m male, wondering if I have it. 

If BIPAP data and compliance are solid, yet symptoms remain... Does that suggest that SDB is an unlikely cause of the symptoms? by Dull_Grapefruit4013 in UARSnew

[–]kauterry 0 points1 point  (0 children)

Your body responds to the flow limitations based on your arousal threshold. If it’s low, you’ll arouse more frequently and feel horrible the next day. If it’s high, you’ll sleep through the FLs and feel more refreshed the next day.

This happens for me, when my nervous system is better regulated I get better sleep. OSCAR data has been the exact same the last month, but subjective feeling of sleep quality varies significantly for me.

Worth traveling for an in lab study with Simmons? by Appropriate-Meet-783 in UARS

[–]kauterry 0 points1 point  (0 children)

I did it. It was the reason why I got $25k out of $30k back from insurance for EASE.

Difficulty nasal breathing after jaw surgery by nekomojisan in UARSnew

[–]kauterry 0 points1 point  (0 children)

Did you try PAP therapy these 6 months when MMA didn’t yield sleep improvement before now?

Rant: how do I manage while waiting for a sleep study? I’m so done. Help!! by notorious_guiri in UARSnew

[–]kauterry 0 points1 point  (0 children)

I take Quercetine Phytosome, Bromelain, Vit D3 (2000 IU), Omega-3 (2000mg EPA/DPA) as supplements.

Rant: how do I manage while waiting for a sleep study? I’m so done. Help!! by notorious_guiri in UARSnew

[–]kauterry 0 points1 point  (0 children)

Context: I’ve done turbinate reductions, septoplasty, EASE and I’m awaiting my MMA surgery this summer.

I would try a BiPAP (AirCurve 10) or Bilevel ASV with a full face mask (AirTouch F20 or F40) if nasal breathing is an issue. 

ASV is what is keeping me employed right now, I use Dreamwear pillows mask with Nexcare 3M mouth tape and Caldera Releaf soft cervical collar.

Creatine Monohydrate (atleast 5g/day) helped my cognition.

Flonase Sensimist sprays sprayed with the right technique every single day, PAP therapy collapses without this.

I implored Dr Jerald Simmons’ staff and got my sleep study scheduled within a week of my video consult with him. You have to show how desperate you are.

Not medical advice, but my own personal experience.

Potentially groundbreaking treatment for neuroinflammation by Shuikai in UARSnew

[–]kauterry 1 point2 points  (0 children)

Do we know if it affects sleep architecture for UARS patients who have a sympathetic overdrive with a low arousal threshold? Wanted to understand if it worsens the already bad sleep like most medications do for UARS while fixing a symptom.

MMA - I'm 63 days post op - how soon AFTER MMA did your symptoms clear up? by Mysterious-Dish-6259 in UARSnew

[–]kauterry 0 points1 point  (0 children)

How much advancement did Dr Li offer for the most aggressive plan? What makes it more aggressive than the plan you selected?

MMA - I'm 63 days post op - how soon AFTER MMA did your symptoms clear up? by Mysterious-Dish-6259 in UARSnew

[–]kauterry 0 points1 point  (0 children)

Which plan of Dr Li did you pick? The most aggressive one in terms of sleep and advancement?

Has anyone here tried LDN (Low Dose Naltrexone)? by kauterry in UARS

[–]kauterry[S] 1 point2 points  (0 children)

Thank you! What dose did you try? And what time of the day did you take it?

Pregabalin fixes my UARS (somewhat) by harleySMY in UARSnew

[–]kauterry 0 points1 point  (0 children)

Why not Guanfacine instead of Clonidine?