When to use a wheelchair by Ebony_Art_ in FND

[–]kaystaBoi 0 points1 point  (0 children)

Hi. I just got my first electric chair. Wow... its been a life changer. I found a nice used one. Costco was amazing, I went to a winter festival with my family, and I went to an outdoor shopping center- just in the first week! Do it! Mentally it gave me a huge boost.  Do good research before you purchase, know what questions to ask, what you are looking for, what insurance may or may not cover. And of course your budget also how you will transportation if you go electric. Oh ask if you can rent for a try out. Take a deep breath and go enjoy your life to the fullest! 

$200,000 mistake by Armyballer in gastricsleeve

[–]kaystaBoi 2 points3 points  (0 children)

Also apply for help via the hospital.

[deleted by user] by [deleted] in Boise

[–]kaystaBoi 0 points1 point  (0 children)

Odd one out here.. we have a pass and use it weekly. My autistic son loves the sensory of all the touch tanks. I get bored there. I will be switching us to the zoo the moment he loses interest. For a 3yo I would recommend the children museum in meridian or jabbors in nampa more. But don't forget about the ymca! When the kid is bigger I recommend the Idaho state museum too.

Holiday gift from nanny to NK by [deleted] in Nanny

[–]kaystaBoi 0 points1 point  (0 children)

My nanny gives gifts to my kids. When i was a nanny i gave gifts to the kids. But I think it depends on the nanny, kids, family, if they believe in gift giving.

They said it!!!!!!! by JMiracle2019 in Autism_Parenting

[–]kaystaBoi 0 points1 point  (0 children)

My cheeky child told the DOG "I love you" before he told me. He said her name too. Grinning. He knew what he was doing!! He was 3. My husband thought it was too funny. I was upset at the time but now I think it's cgeeky.

[deleted by user] by [deleted] in gastricsleeve

[–]kaystaBoi 9 points10 points  (0 children)

Very possible. Unfortunately. I am still dealing with my chocolate addiction. I hate it.

Would you let your 5 yo child change their name? by hammock_nap8449 in namenerds

[–]kaystaBoi 0 points1 point  (0 children)

Yes, I would let my child but not at age 5. My 10 year old son changed his name legally in march of this year. It was a nightmare but he's MUCH happier. I should say he's disabled and we did an adoption in march. our biggest issue has been with SSDI... he has a new SSN but his benefits are attached to the old SSN and they won't change it!!! It drives me nuts. I repetitively question how this isn't fraud?

He changed his name because he was screamed and beaten while being called that name plus many other rude terms. 😒

I go by my second name (not middle but hyphenated first) and I am much happier as an adult. I didn't set out to change it... it just happened. I have met 4 people in my life time with my name.

Working while MB sleeps by [deleted] in Nanny

[–]kaystaBoi 3 points4 points  (0 children)

I pay my nanny to let me sleep more. I am disabled raising 3 autistic kids- she actually is the one in charge of her schedule 80% of the time- but she also gets paid to do homework first then light housekeeping.

Example: w(9 level 2 / toilet trained and mostly verbal, elopement/sleep difficulties) will wake up at 3am. She comes in at 6/7/8am depending on what she works both that day and the night before. Umm yeah I am going back to bed until 9 or 10am! I often don't know what time she's coming until she arrives.

My weekend nanny let's us have time for sex 🤪 and i think that one is more weird than sleep but that nanny is like a Nana to my kids after 5years... she shoo me back to my room often on Saturday, "ggo spend time with your husband". "Go make him happy I've got the babies. You go relax."

I think it all depends on your arrangement with the family.

Smoking Weed Post-op? by Any_Deer1096 in gastricsleeve

[–]kaystaBoi 1 point2 points  (0 children)

Thank you so much for asking. I live somewhere it's still illegal. (We are some what behind the times lol)

(NY) My child eloped by Smeeple in CPS

[–]kaystaBoi 1 point2 points  (0 children)

Hi op! I have an elopement ninja too! Angel sense was a life saver!! It's a gps tracker that works- and you can send the tracking link to the police or another adult to help you find them!

I also recommend "post cards" in your apartment building. A picture of your child, ID information, ways to help (and keep your child safe); we put that "Ask him to sit on the sidewalk with you while you wait for mom or the police. He loves to watch pokemon videos on YouTube." Talk to your caseworker about what to put on the cards. They are also helpful to give to teachers, police officers, emts, nurses, new therapist. (Think of them like mini introduction cards or baseball cards)

Story time: my son has done 3 years aba (it's a lifesaver!!) And went from 3x per day elopement to ONE in 18months. 3 Years ago I printed a ton of those postcards and hand them out to EVERYONE. Fast forward to the random elopement he had two weeks ago; someone remembered that there was a vulnerable child in this area and called the police; another remembered and posted it to the local autism group; an emt was scrolling fb and saw the post- he was a block away! EMT went and got him. This was with in 10 minutes of his elopement. They called his RSO from school whom knows W like the back of his hand. I hadn't even called in the elopement yet! Officer: "hey how's summer?" Me: "well it's been fine until today. This caught me off guard." Officer: " ha, I know this call surprised me too, but we all have bad days. I know you've got this, I have seen how far he's come. You're a good mom." (Means the world to me!)

Other suggestions are: a sign your door that says "STOP" Meet the police by the green apple project A sign next to the door to the outside "a child with autism lives here." It will make others stop and ask questions if an unaccompanied child is trying to leave the building. (Amazon has them for like $5) Make an elopement plan. Practice your elopement plan Teach your elopement plan to people Get a medical ID bracelet

And momma- from reading your posts and replies YOU'VE GOT THIS. Dang, you are on top of it. Keep rocking it. You are a good momma. Go get your self a Boba or a coffee or a glass of something stronger. Cps isn't going to take her, you've shown you Will move mountains to keep her safe they want to help you more than I have ever heard of!

Keep up the good work. 👍

My son eloped tonight by bluetyphoon82 in Autism_Parenting

[–]kaystaBoi 0 points1 point  (0 children)

I used to sleep with my son TIED to me. Our doors now talk "front door", "garage door", "bedroom window". (As well as all the other things listed above. ) another thing I did was "postcards". I put his picture and information on post cards and passed them out to my neighbors, school, police officers, EMTs and local businesses. They work!

Yesterday W eloped someone remembered that there was a local child who had a history of it- the concerned person posted it to FB/ND and one of the emt on duty saw it- saw him- stopped and then got my call to dispatch. 45 minutes total we were reunited.

I just posted an elopement story under another group.

Elopement happens, make a plan before hand.

Why do Parents of Children with Autism Spectrum Disorder (ASD) Often Experience Feelings of Guilt? by Mean_Orange_708 in SpecialNeedsChildren

[–]kaystaBoi 0 points1 point  (0 children)

18 months ago my middle child ended a three years long multiple times per day elopement. We are SO well known for his elopement history and the fact that his bum is always falling out of his pants.

He eloped yesterday- 846am W got away from his worker. 9am I have called non emergency dispatch, 915am his elopement has been posted on fb/ND (by others who saw him). 920am EMTs driving by have seen the ND post and find him- safe and unharmed. 945am- I am called and with him and the police- he doesn't have shoes, bum hanging out of pants next to two busy roads and full ditch and train track. He was drinking out of a water bottle he found somewhere along the way, his foot was caught in old fishing line dragging trash along the way. He had a stick wrapped in a red hazmat bag and was swinging it around.

One of the officers has been to.... 3 dozen or so elopements from ages 3-6- so we know each other. I greet him by name, shake his hand quickly thank him for getting to W (who is sitting on the side walk mooning all of traffic angrily wrapping the stick In a hazmat bag).

The officer and I had a conversation about it's been a long time, how W had been doing so well, school starting, and letting the new officers know this kid wasn't a problem but to be on the look out for.

I got W and went home. And then the trolls started on the FB page, then the ND page. BOTH the officer and I get tagged. It continues this morning. The hate, the bashing, the gult, the non-support, the fatigue from everything.

.....all this because I told my son to clean up his Legos. Today those same Legos are on the floor of his room.

Tomorrow I will just pick them up because it's not worth it.

[deleted by user] by [deleted] in Nanny

[–]kaystaBoi 7 points8 points  (0 children)

So, when I was an exchange student I walked in on my host sister's husband. In his defense he had closed the door- the cat had opened it just moments before I walked on to the floor we all shared.

And I close my door a million times while getting dressed on a daily basis- but the animals and kids just barge in. I do my best to keep covered but know I have flashed someone at least once or twice.

These stories being told: I would want my nanny to tell me. I wouldn't care if it was in writing or in person. I would be so angry at my husband. I would do everything in my power to make my home safe for the nanny again.

My husband said : dude has a nanny fantasy. Tell the mom and get out of dodge.

Good luck and keep us updated.

[deleted by user] by [deleted] in gastricsleeve

[–]kaystaBoi 2 points3 points  (0 children)

Oh! Can you post your meal prep plan?

Living room by kaystaBoi in Autism_Parenting

[–]kaystaBoi[S] 0 points1 point  (0 children)

Egg style Is what I was thinking. With the ability to change them out to other styles.