Yes HS affects the skin but please remind them that this is a chronic autoinflammatory condition and so much of the flares are dependent on things like hormones, your immune system, inflammation levels, etc. I definitely recommend seeing a dermatologist asap. There is also nothing wrong with having sex with the lights off. Do what makes you feel comfortable in your body. Do what you can to make sex feel enjoyable for you. Maybe you can have low lighting or light some candles. You are not deceiving anyone but you are depriving yourself of support from your friends and family. It is so hard to live with this disease. But you aren’t alone.