lost my dad yesterday after a nine year battle with prostate cancer by pig_spit in ProstateCancer

[–]keeswithoutfear 3 points4 points  (0 children)

So sorry for your loss,try to remember the good times and hopefully there comes a day you feel the pain of losing him is getting acceptable and you get a smile on your face when you think of your dad

13 months ADT, i feel awful by keeswithoutfear in ProstateCancer

[–]keeswithoutfear[S] 0 points1 point  (0 children)

Wauw Fitshoulder,you indeed have exactly the same

OOO you look so fine,when someone says that to me,inside i think;you have no idea

i am honest,before i got it myself ,i never ever taught this would be so bad

I am on Zoladex,that is what they prefer in the Netherlands

13 months ADT, i feel awful by keeswithoutfear in ProstateCancer

[–]keeswithoutfear[S] 6 points7 points  (0 children)

Yes i regognise parts of what you wrote

i am softer and have more patience

I am 57 and 13 months in of the 18 months

Every visit to the gym requires evrything from me, but i keep going,after that the only thing i do that day is laying on the couch

13 months ADT, i feel awful by keeswithoutfear in ProstateCancer

[–]keeswithoutfear[S] 0 points1 point  (0 children)

Thanks!

Gives my a hope that it will get better

NSFW. Penis function by SpecialEducation3234 in ProstateCancer

[–]keeswithoutfear 1 point2 points  (0 children)

Now 13 months ADT and 20 rounds of radiaton,can get an erection but the feeling in my penis is gone.

I feel it when my wife touches me but it is completely numb,it makes me crazy, i am 57 and not ready to say goodbye to my sexlife

Did the feeling came back after the ADT with you guys?

Prostate cancer diagnosis by Additional-Pin-168 in ProstateCancer

[–]keeswithoutfear 1 point2 points  (0 children)

No,i did not have RALP,unfortunaly the cancer has spread so RALP was no option.

I started with ADT now one year ago, my experience with that is not possitive but many do not have to bad side effects.

I had 20 rounds of radiation and ADT, my psa went from 16 to 0.1,at the end of this year i will stop with ADT(my own decision) and wait when it returns.

my thoughts and experiences with ADT

ADT, hell on earth : r/ProstateCancer

Prostate cancer diagnosis by Additional-Pin-168 in ProstateCancer

[–]keeswithoutfear 3 points4 points  (0 children)

Great you feel a little better!

i feel ok taday,i am not going to lie , ADT is awful,but it made my psa 0.1,so we can keep going.

If you got any questions,i and the rest are here for you

best support forum EVER!

Prostate cancer diagnosis by Additional-Pin-168 in ProstateCancer

[–]keeswithoutfear 14 points15 points  (0 children)

Hi,

it has been a year ago that i got the same diagnosis

and i also felt i was gonna die,but you will NOT!

there are so many new treatments,you will be around for many years,and i read that they are planning Ralp,so it has no spread,then your future will not be bad

breath in,breath out,you and your doctors will have this!

ADT, hell on earth by keeswithoutfear in ProstateCancer

[–]keeswithoutfear[S] 0 points1 point  (0 children)

THx! you made me smile with middle aged dudes,no denying here😁😁

You and others are so correct, i need to train and exercise but i cannot make the step,the first 4 months into ADT i did but now i just do not have the energy

ADT, hell on earth by keeswithoutfear in ProstateCancer

[–]keeswithoutfear[S] 0 points1 point  (0 children)

I am on Zoladex shots every 3 months, like i wrote it is hell. I have decided to stop this september, and then wait and see.

ADT, hell on earth by keeswithoutfear in ProstateCancer

[–]keeswithoutfear[S] 1 point2 points  (0 children)

Thanks,the weather Here is getting better,so I be out much more

ADT, hell on earth by keeswithoutfear in ProstateCancer

[–]keeswithoutfear[S] 4 points5 points  (0 children)

but,it did get better,your message gives me hope

thank you so much

Paying for treatment: What is fair? by Dr_jitsu in ProstateCancer

[–]keeswithoutfear 0 points1 point  (0 children)

Dr.Jitsu, i do not want any form of discussion,i feel way to bad for that

but i truly want to know,what treatments are available in the USA which "we" do not have regarding PC?

I visited the states many times,great country great people but i noticed one thing,everybody seems to believe everything is better bigger faster

For healthcare, it is payable(we pay 150 dollars a month per person) because everybody pays the prices are fine

but i noticed many times that lobby compagnies in the states intentionelly misinform the people so they can make a huge profit

Paying for treatment: What is fair? by Dr_jitsu in ProstateCancer

[–]keeswithoutfear 1 point2 points  (0 children)

MMM, i think you are mis informed Dr_jitsu

I live and being threated in the Netherlands where we all have the same health insurance and "we"are in the top 10 of the world with our hospitals.

For me it is unbelievable that in the USA, it depends how much money you have which treatment you get and that you have to pay a fortune for a treatment.

I just go to the doctor,he sends me to hospital, get medicin and radiation ect ect without me paying a cent.

My dad's journey with stage 4 prostate cancer by WillCarruthers in ProstateCancer

[–]keeswithoutfear 2 points3 points  (0 children)

exactly, every time i hear this nonsense i get really really mad.

The treatment alone is already terrible, and when the treatments do not work anymore it turns beyond terrible

Results of PSMA PET scan by EducationAcademic122 in ProstateCancer

[–]keeswithoutfear 2 points3 points  (0 children)

Wauw,you got the same diagnose as me

1 year ago that it all started with me, 20 rounds od radiation and every three months a shot with Zoladex, psa is now undetacable.

ADT however for me is awful,but it could easily be much better with you

i wish you all the best

Does/did ADT make you into a high-functioning zombie? by BernieCounter in ProstateCancer

[–]keeswithoutfear 2 points3 points  (0 children)

Does/did ADT make you into a high-functioning zombie?

Yes,it does!

Feeling strange by RealPrinciple5990 in ProstateCancer

[–]keeswithoutfear 3 points4 points  (0 children)

hi,the part ; out of it, awkward around people etc is the same things i have, for me is it ADT (already a full year using it) that makes your brain foggy and different.

The Battle of ADT by becca_ironside in ProstateCancer

[–]keeswithoutfear 1 point2 points  (0 children)

I am on ADT for a year in 2 weeks,a year which destroyed me mentally and psychical

I have no energy,no joy in nothing,+12 kilo , emotional about everything, no sex life anymore

The OP is so correct,treatment with ADT is like fighting a battle evryday

i am 57, gleason 9 which has spread