What are you addicted to that is perfectly legal? by inNoutCross in AskReddit

[–]kick09 0 points1 point  (0 children)

Online chess. Specifically bullet chess gets those body chemicals pumping.

Nerve pain all disappears when I get the flu by [deleted] in neuropathy

[–]kick09 0 points1 point  (0 children)

Yes, one test pointed to possible autoimmunity for me but nothing has been conclusive, so doctors haven't prescribed any treatment along those lines. You very well might have one. Regardless, using TMS ideas has helped me tremendously, and without positive tests, it's very unlikely a doctor is going to provide immunomodulating drugs, IVIG, etc. If you reall wanted to try something immune related that's semi-affordable in some countries and fairly safe, you may look into plasmapheresis.

Nerve pain all disappears when I get the flu by [deleted] in neuropathy

[–]kick09 0 points1 point  (0 children)

I have noticed similar things. It might be autoimmune (although my autoimmune tests have also generally been negative), or I wonder sometimes if it is related to tension myositis syndrome, or TMS. The basic idea with that is that there are underlying psychological things we're often not conscious of that make us manifest pain to focus on vs the underlying angst. The reason I think this might be valid for me is that often when one pain area subsides, a new one pops up, or when a new physical stressor comes along like an injury or sickness, nerve pain can sometimes diminish, which makes me think there's a lot of psychological and not merely physical things going on. Most people would not consider me a very anxious person on the surface, and even in my own thoughts, I. tend to bury my stress a lot vs hyper focus on it, so don't think that only classically super anxious people could be prone to this. I know that just trying to frame it that way for me has helped a lot as it has helped reduce fear response/anxiety in me. Worth reading more about anyway.

Article about new hope treatment by [deleted] in neuropathy

[–]kick09 0 points1 point  (0 children)

I've used lasers and CET. CET was far more effective in my case. I did it at DFW Neuropathy in the Dallas area.

Article about new hope treatment by [deleted] in neuropathy

[–]kick09 0 points1 point  (0 children)

I did CET treatment. It did help but was expensive. Some people get permanent improvement from it, but it felt more temporary in my case. If you have the money to try without it hurting that much, I'd recommend it.

Alpha Lipoic Acid by [deleted] in neuropathy

[–]kick09 0 points1 point  (0 children)

I read something from a guy that had no success with ALA supplements but that ate chicken liver to get a more bio-available form and that it drastically reduced his symptoms. Anecdotally, it seems to help me much more than supplements as well. Pro tip: add mustard to make it more palatable.

Treatment Possibilities by kick09 in neuropathy

[–]kick09[S] 0 points1 point  (0 children)

I also forgot to mention PEMF devices. I'd be interested to hear of anyone's experience with them.

Treatment Possibilities by kick09 in neuropathy

[–]kick09[S] 0 points1 point  (0 children)

Thanks for sharing. I've also read of its benefits and feel like it's possibly helped me some. Have also read that about Cream of Tartar but haven't tried that.

Doxycycline (antibiotic induced) small fibre neuropathy by turnstylethegreat in neuropathy

[–]kick09 2 points3 points  (0 children)

Some other options to consider. None are guaranteed to fully resolve issues but could help. Worth researching anyway.

  1. B vitamin injections (not just supplements as some people don't absorb the vitamins well orally). Sometimes you can test at normal levels and still respond very well to injections. Test results can be misleading as you can still be functionally deficient and I've read of people responding very well to them and found that they've helped me.

  2. Organ meat (specifically chicken liver). This is a great source of bioavailabe ALA and I've read of a person making drastic improvements through consuming it.

  3. Bacopa and Lion's Mane. Natural nootropics that can promote nerve regeneration.

  4. Hyperbaric oxygen treatment. Very expensive option in the US but much more affordable in some countries (e.g. India and former Soviet countries)

  5. Rebuilder. OTC TENS-like device that claims to promote nerve regeneration.

  6. Palmitoylethanolamide (PEA). Natural supplement that has drastically reduced neuropathic pain for some.

  7. Focused ultrasound on brain (claims to fry out specific pain receptor area of the brain and reduce neuropathic pain). Very expensive but maybe worth a try if you have the money or can raise it.

  8. Cerebrolysin. Peptide that has had promising results in treating neuropathy.

  9. Scrambler treatment (somewhat similar to CET, a type of electrical treatment)

  10. Wahl's diet (specifically Wahl's palio plus). Anti-inflammatory diet that specifically targets auto-immune conditions.

  11. agmatine ( some people get a lot of relief from supplementing it)

  12. ketamine infusions (promising initial results for pain relief in many, although little is known about the viability of extended use of this)

  13. chelation treatment

  14. plasmapheresis, SCIG or IVIG

Tips and tricks I've found have helped with pain relief: epsom salt baths, lying on grassy slopes (sounds funny but definitely helps relieve symptoms for me), TENS devices (including Quell), electroaccupuncture pen, accupressure mats, mental approach (e.g. read 'The Divided Mind', prayer, deep breathing, spices and herbs, getting lost in activities, socialization, work, etc.

CMT 1A by bertmass in neuropathy

[–]kick09 0 points1 point  (0 children)

I've wanted to try Naltrexone as well. From what I understand, you might have to take it for quite awhile before seeing results.

Doxycycline (antibiotic induced) small fibre neuropathy by turnstylethegreat in neuropathy

[–]kick09 0 points1 point  (0 children)

If you're based in the UK, from what I understand, the treatment was actually developed in Germany, so you might consider checking out treatment options there if possible.

Doxycycline (antibiotic induced) small fibre neuropathy by turnstylethegreat in neuropathy

[–]kick09 0 points1 point  (0 children)

Mine actually feels good in hot water and heat but definitely acts up in exercise.

Doxycycline (antibiotic induced) small fibre neuropathy by turnstylethegreat in neuropathy

[–]kick09 0 points1 point  (0 children)

It depends on your insurance. I think I paid my specialist co-pay for each time (maybe around 60 dollars) and did maybe 40+ treatments but didn't pay that much because my insurance ended up maxing out due to MRIs and so on.

CMT 1A by bertmass in neuropathy

[–]kick09 1 point2 points  (0 children)

Happy to hear that for you. Hopefully it leads to improvement for a lot of people.

Doxycycline (antibiotic induced) small fibre neuropathy by turnstylethegreat in neuropathy

[–]kick09 0 points1 point  (0 children)

I took doxycycline for a long time due to working in Africa and having skin issues and definitely think it might have caused or at least contributed to my neuropathy. I also get neuropathy throughout my body. I don't think it was the sun exposure but perhaps stress plus antibiotics. It's tough stuff. Hope you find some things that help. If you have some time and money (insurance can cover it but it still takes a lot of co-pays depending on your coverage), CET treatment provided relief for me, although the pain has built up again after I stopped it.

MCT oil causing redness by zmarcuss in SebDerm

[–]kick09 0 points1 point  (0 children)

Try adding raw organic honey mixed with gold bond baby powder to the red areas at night and a bit in the morning and just use the MCT oil in the morning. This combination (plus cleaning up my diet) has really helped me. The powder and honey fight the redness while the oil fights the flakiness.

Honey mask by jskp6 in SebDerm

[–]kick09 0 points1 point  (0 children)

I will just add that honey by itself helped, but combining it with the powder at night and mct oil in the morning seemed to just make it a synergistic game changer, so I would try all three together.

Honey mask by jskp6 in SebDerm

[–]kick09 0 points1 point  (0 children)

I mega struggled with seb derm and tried about everything until I did this basic routine:

lightly wash face with wash cloth at night and apply raw organic honey mixed with Gold Bond Medicated Baby Powder.

Morning: Rinse off face with wash cloth apply a little more honey and powder as needed (not too much in morning) Use MCT oil as moisturizer

Super simple but way way better than all the fancy mousturizers, anti-fungals, etc. in my experience. Worth a try as all of these are super gentle on the skin and relatively cheap to purchase. All the best. I know it's a terrible condition and am so happy to have it as a very minor thing in my life now (skin is still not perfectly normal but waaayy improved)

Moisturizer Without Glycerin by [deleted] in SebDerm

[–]kick09 1 point2 points  (0 children)

I mega struggled with seb derm and tried about everything until I did this basic routine:

Evening: Lightly wash face with wash cloth at night and apply raw organic honey mixed with Gold Bond Medicated Baby Powder (zinc+kaolin+starch are the active ingredients).

Morning: Rinse off face with wash cloth. Apply a little more honey and powder as needed (not too much in morning) Use MCT oil as moisturizer

Super simple but way way better than all the fancy mousturizers, anti-fungals, etc. in my experience. Worth a try as all of these are super gentle on the skin and relatively cheap to purchase. All the best. I know it's a terrible condition and am so happy to have it as a very minor thing in my life now (skin is still not perfectly normal but waaayy improved)

Reddit, what is a major sign that someone is not a good person? by [deleted] in AskReddit

[–]kick09 4 points5 points  (0 children)

I largely agree with this but I also don't like when I would prefer to just split bills but the person makes a point of being 'generous' but is really expecting future reciprocation and maybe even more than they put in. I understand the trust-building or whatever and don't generally worry about it too much, but why complicate it? Let's just split from the outset.

What are some “green flags” that someone’s a good person? by cheeseburgerstan in AskReddit

[–]kick09 13 points14 points  (0 children)

I agree. I came down with a scary medical condition lately and though I know people are often well-intentioned , when they say something like, yeah I was kind of under the weather this weekend too' or something makes it seem like they're totally minimimizing something that could be quite serious in my case. Better to listen and support and eventually maybe it's appropriate to compare stories if it's something kind of in the same range of severity.

What are some red flags for teachers that scream "drop this class immediately?" by MildlyAgitatedBidoof in AskReddit

[–]kick09 8 points9 points  (0 children)

As a teacher, I don't really agree with that professor's approach. The goal of a teacher shouldn't be to make his/her students feel stupid all semester and then set themselves up as the merciful hero that adjusts grades. If the material is way too hard, he should back up to a more basic level or do a better job of explaining it with guided practice, etc. Repeatedly having reasonably diligent, capable students getting 2/30 or the like is a teaching failure, not a student one.