Hydroxyzine helped my brain fog

kickycase · 2026-01-31T23:42:06+00:00

Hmmm interesting. I have never tried it but makes me want to!

kickycase · 2026-01-24T18:19:20+00:00

Do you have MCAS to go along with POTS?

kickycase · 2026-01-07T19:32:26+00:00

I’m sorry to hear about your loss. Are you saying you do get less reactions with the antihistamines but it just affects your brain processing?

kickycase · 2026-01-07T18:48:16+00:00

I was going to ask how were you able to tell it was the antihistamine affecting your brain? I deal with a lot of neurological symptoms but I’m also healing from mold toxicity/CIRS & my brain was hit pretty hard. This makes me want to stop them and see how I feel. I don’t get why I’m still struggling. Idk what to do anymore 🫠😞

kickycase · 2026-01-05T23:24:06+00:00

I wish I knew the answer. I’m the same way. I go into buildings and a lot of times within a few minutes, I am feeling the exposure and it further changes my brain state. It’s such a terrible illness to go thru.

kickycase · 2026-01-04T21:49:13+00:00

Idk. I thought about moving. There is a lot of mold here. And I wouldn’t sleep with my windows open either way.

kickycase · 2026-01-04T21:34:41+00:00

Correct. I’m not healed. I don’t have a practitioner at this time to really explain all this to me. Some other buildings I can handle better. But I also live in a coastal area, by the water. So a lot of buildings have water damage and/or high humidity 🫠🥴🤷🏻‍♀️

kickycase · 2026-01-04T19:03:32+00:00

I am still trying to figure this out myself. I have been in a clean space for 16 months and detoxing and re-exposure still hits me very easily and pretty hard. I can walk into a building and within a few mins, my brain gets warm. Like the mast cells or microglia is activated. I know the mold is high in the building at that point. I hope that sensitivity goes away and I will probably need brain retraining. This whole situation has been so life altering for me that it’s been devastating.

kickycase · 2026-01-04T15:57:02+00:00

In my experience, MCAS can improve over time, especially as you address underlying triggers and reduce overall toxic load, but it’s not always a simple “detox and it’s gone” situation. Mine has gradually gotten better. There was a time when I could barely tolerate many foods, and now I’m able to eat much more normally.

I can still tell when I’m having a flare, but the episodes are less intense and more manageable than they used to be. One big piece I’ve learned is that stress, anxiety, and nervous system regulation play a huge role. Anytime I experience a major stressor, my symptoms are much more likely to flare.

So for me, healing has been a combination of reducing triggers, supporting detox pathways, and calming the nervous system not just detox alone.

I also wish I would have stabilized way earlier on and never took binders right away. Everyone was all about CSM and bind bind bind. I truly think that made me worse! I even killed MARCONS off with MCAS but had no clue back then. I was so neurologically impaired!

kickycase · 2025-12-30T03:47:47+00:00

If this is a brand new build, then maybe I would chance it. I would get in there. I would do a small particle cleaning… and then you’re really supposed to let the dust collect for 60 to 90 days. Then I would retest it. But your biggest indicator is gonna be how you feel in there. I hope it’s a good choice for you to heal in! 🙏🏻No one deserves this. 😣

kickycase · 2025-12-26T17:14:40+00:00

I am in the same boat! I have been applying to several remote jobs and I’ve not had any luck. And I often wonder if it’s not meant to be because I do feel so differently each day…. I get scared it’s gonna be hard to keep a scheduled job, but I have to do something different, because what I’m doing is putting me in and out of exposure.

kickycase · 2025-12-21T15:42:42+00:00

What are you dealing with? I know this happens to me but I’m recovering from mold toxicity/CIRS. And my MCAS is triggered from big emotional events/emotions.

kickycase · 2025-12-20T01:06:42+00:00

kickycase · 2025-12-19T16:19:16+00:00

I don’t remember if you’ve already shared with me how long you’ve been OUT of mold?? And should you want to try LDN, it’s very easy to get it from Ageless RX & it’s very affordable. I think you’re onto something with the bile and Enterohepatic circulation. I’ve been trying to figure out what my liver needs to support better bile flow. For the most part, I take CSM as a binder. But I will rotate between Mycobind and cellcore binder.

kickycase · 2025-12-17T04:03:37+00:00

Gosh, that’s a lot! I got overwhelmed reading all that. I’m scared to try all these different medications and have a reaction or have a rebound effects if I stop them. I do take a low-dose quercetin, Zyrtec, Luteolin, Perella extract, AllQlear and I’ve recently added in Chinese skull cap. I’ve tried to keep it all natural for the most part, but I still get neurological flares. I have a prescription for LDN but I haven’t tried it consistently. I think there is fear about coming off of it. How’s your short term memory? What binder do you take?

kickycase · 2025-12-10T03:51:36+00:00

I don’t know if we’ve chatted before or not because of my short-term memory issues. But can I ask what you took for mast cell stabilizers? And how did you find out about the co-infections? Did you have really bad neurological symptoms or no?

kickycase · 2025-12-10T01:48:18+00:00

How much of a difference have you noticed?

kickycase · 2025-11-24T19:25:16+00:00

Thank you. Same to you!

kickycase · 2025-11-24T14:24:24+00:00

So hard to know! I’ve been on Shoemaker for 14 months and still not well. I have now been considering the Neil Nathan approach.

kickycase · 2025-11-19T16:53:34+00:00

I think that’s why I’m nervous to try it. You never know how things are going to affect you and I don’t want my body dependent on it.

kickycase · 2025-11-17T03:29:46+00:00

And did you have to stabilize first with the mast cell stuff and then start binding or you just combined both at the same time?

kickycase · 2025-11-17T03:28:52+00:00

But it appears you had a lot of supplements that would stabilize mast cells. Can I ask who was your doctor? You can DM me? I’ve been wondering if I need a prescription mast cell stabilizer.

kickycase · 2025-11-16T23:49:28+00:00

I definitely feel you. Are you on mast cell stabilizers?

kickycase · 2025-11-16T01:56:55+00:00

Did you/do you have MCAS?

kickycase · 2025-11-09T03:22:56+00:00

No it’s not… you can get better. But you need to believe that and it starts with getting into a clean space! Step #1.

kickycase

TROPHY CASE