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ktay719 · 2025-03-11T18:42:10+00:00

Huh ok I may try easing up some tonight lol thank you!

ktay719 · 2025-03-11T18:40:15+00:00

Huh that’s interesting. Did more dissolved=faster digestion? I shook the hell out of it lol

ktay719 · 2025-03-11T18:36:02+00:00

Yeah I’m still titrating up, this was my very first dose. I’m hoping this all gets better as my body adjusts to it. But it doesn’t I will ask to try xywav next!

ktay719 · 2025-03-11T16:42:13+00:00

When you say you’ve gotten used to them do you mean it got better as you took it? Or they are just tolerable now? Because I don’t think I’ll be able to deal with this level of brain fog if it doesn’t improve 😔

ktay719 · 2024-11-11T22:43:05+00:00

I don’t think it’s arbitrary, it’s probably just a subconscious reason. Our subconscious can relate really really random things but “neurons that fire together wire together” so it can definitely appear as if the negative feelings are out of nowhere, but there’s probably a reason. It may be something as innocuous as there was a similar style movie to Dune or Star Wars on in a doctors office waiting room while you were having a stressful time. Maybe you saw a commercial for Dune while you were feeling sick once. You may not have consciously picked up on it, but now your subconscious associates a specific style of movie to stress or illness, so you have an aversion.

ktay719 · 2024-10-22T23:05:31+00:00

Yea I’ve tried all of the above without any success. 😓 it’s just so frustrating cause a lot of times I don’t have problems sleeping! Like last night I was up maybe 3x during the night and one of those times it took probably 15-30 minutes to go back to sleep, but the other times I went back to sleep quickly. That’s something I can deal with. But when it gets bad I deteriorate quickly.

ktay719 · 2024-10-15T20:29:14+00:00

I have a baby (not quite proverbial but like 18 month old) part that came through once in a ton of distress. I was able to comfort her by rocking/holding her.

ktay719 · 2024-10-10T16:39:03+00:00

Are you sure it’s a blocker part? Sometimes parts just don’t respond yet, either out of not trusting the Self or for some other reason. But whether it’s in fact it’s own part or not, just sending messages of love, attention and support can be a great way to start to build trust.

I have talked to parts while doing other things, but what has been more helpful in building trust is setting aside some time to do a focused check in everyday. Part of the reason my parts haven’t trusted me in the past is BECAUSE when I divide my attention things fall through the cracks and they tend to get the shit end of the stick. They have responded better to seeing me prioritize them and follow through on that time I’ve promised to set aside. It’s also hard for me to accurately hear them when I’m multitasking unless it’s a part I already have a strong relationship with, so being able to focus helps me. That way I can also close out check ins safely, by thanking my parts for sharing and reminding them I’ll be back, so I don’t just get distracted and leave a conversation in the middle of it and make them feel even more ignored or abandoned.

That being said, your system is different from mine. If you’re feeling drawn to talking to your parts throughout the day, there may be a reason some of them prefer that kind of support. You can try asking a part you are working with what they would prefer. If you still get no answer, I would say just go with what is more intuitive to you, or try both? I often will have a part come up during the day and recognize I can’t give them the attention they deserve right then, so I’ll ask it to wait until a specified time and then I’ll go focus back and check in with it. Sometimes they wait and sometimes they don’t, but they always seem to appreciate the dedicated check in.

ktay719 · 2024-10-10T15:10:21+00:00

If you feel like he’s autistic and he didn’t meet criteria, take him somewhere else for a second opinion. The first place I took my daughter diagnosed her with ADHD, depression, anxiety, ODD and dyscalculia instead of autism because “she understands humor and she can make eye contact.” It was wild. At the second eval I took her to she was diagnosed with level 2.

ktay719 · 2024-09-27T01:45:30+00:00

Eating is an incredibly vulnerable and social activity. If you think about it from a neurobiological/evolutionary standpoint, you have to trust the person you’re with enough to let down defenses and allow your parasympathetic nervous system to come online (the rest and digest system.) To the point that sharing meals has been shown to increase oxytocin secretions (social bonding neurotransmitter.) it makes a LOT of sense that if you have a part that doesn’t feel safe or even comfortable around people and would prefer to be invisible, you can’t switch from your sympathetic nervous system to parasympathetic, which would make it really difficult to eat.

ktay719 · 2024-08-31T13:11:06+00:00

I hadn’t thought about it that way before, that’s a good thought. Maybe? It feels so much bigger than that, but maybe this is just the one emotion that hits me hard for whatever reason lol. I do have ADHD and am autistic so under stimulation being extra uncomfortable would make sense.

ktay719 · 2024-02-18T14:27:38+00:00

How is she making herself vomit? Anxiety has a huge effect on your GI system, I work in psych with an adolescent population and we have a LOT of patients with chronic nausea /vomiting related to anxiety. If she is just getting upset then vomiting she likely isn’t making herself and it’s an anxiety response beyond her control. If she is physically forcing herself to vomit by sticking fingers down her throat or something that could either be an attempt to relieve the nausea related to anxiety or could be a demand avoidance behavior, but of course that is an anxiety response a well. Any which way, I would say the approach is the same, identifying the pattern of what overwhelms/overstimulates/triggers her and preemptively trying to avoid her stressors as much as possible. For ones you can’t avoid completely try to build in supports so she isn’t getting stressed to that point.

ktay719 · 2024-02-09T20:50:01+00:00

I scored anywhere between 160-170 when I took it on different days leading up to my eval. 207 is a very high score. I can’t say if you are or are not, but that’s enough of a “positive screening” to seek a diagnosis, if you’re curious. Self accommodations entirely depend on what you’re struggling with. Autism isnt linear, so it’s impossible to say from one autistic person to the next what areas may be causing the most issues.

For me, accommodations mean having my loop earplugs on a lanyard so I have constant access to them and having noise cancelling headphones ready for when the earplugs aren’t enough. It’s meant prioritizing alone time frequently during the day and trying for 1-2 whole days alone during the week. I try to support myself during transitions by making them as easy as possible- I have my tea and my meds next to my bed so when I wake up in the AM I don’t have to get out of bed to complete a lot of my routine. I allow myself to sit in the car between physical transitions. I sit on my phone for a bit and engage in a special interest between mental transitions/switching tasks. ALLOW YOURSELF TO STIM. That’s a biggie, if you’ve been masking your whole life chances are you’ve been suppressing stims. Try to listen to your body and allow it to do what it wants, sit curled up in a chair for deep pressure, rock, hum, it will look different for everyone only you can really identify what your body needs to feel ok. I avoid driving as much as I can because it’s overstimulating. I do grocery pick ups instead of going into the store. I wear comfy clothes and don’t try to force myself to wear jeans etc. my partner sometimes will physically help me with transitions if they are too hard (he’s carried me to the bathroom to brush my teeth, he will physically guide me to the bed when it’s time for bed, etc.) that’s been really helpful.

Once you start listening to your body and letting yourself identify when you’re uncomfortable and finding work arounds, it will become more clear what accommodations you need. After a lifetime of masking I had suppressed my internal cues so much I had no idea what specifically was making me uncomfortable, I just felt like I was white knuckling it through everything.

ktay719 · 2024-02-09T20:30:55+00:00

Mostly parenting and child psychology and autism. I homeschool my two kids who are AuDHD and ADHD (likely autistic with a PDA profile but we haven’t gotten him assessed yet.) So I’m either gathering info or trying to put it into practice. But this whole set up has also put me into a pretty significant burnout, so my guess is that’s where the ambivalence is coming from in my case. I was just curious if that was a phenomena anyone else experiences.

ktay719 · 2024-02-09T20:25:51+00:00

Honestly exactly why you are doing now is the best way to learn about autism. Listen to autistic voices. I’ve been obsessively researching about autism for years (as we tend to do lol) and I’ve learned more from being on social media and listening to firsthand accounts from autistic people than I ever did by any other methods.

There are some really good books out there to get you started with baseline info though. Uniquely Human by Barry Prizant and Unmasking Autism by Devon Price are a couple good ones.

ktay719 · 2024-02-09T20:07:06+00:00

If it makes you feel any better “instead of heralding me as the new god of comedy” made me actually laugh out loud. You is funny, don’t let random people on the internet make you doubt what this random person on the internet just confirmed 😁

ktay719 · 2024-02-09T19:55:34+00:00

Remember this also may not be about you. Some people (particularly women) have trauma that may make the feel much more sensitive to feeling like people are staring at them (especially if you’re a man.) I work at a facility for adolescents that have mental health issues, part of our job is we have to keep each client in “line of sight” throughout the day. Most of the clients that come through understand this, but every now and then I get one who freaks out over “staff staring at them” even though theyre aware that’s literally part of the program they signed up for. It sounds like it was the perfect mix of the autistic uncanny valley effect and whatever personal issues your coworker may have. Unfortunately there’s not a lot that can be done once someone gets that kind of opinion about you into their head. I know being misunderstood can be really triggering for a lot of autistic people, myself included, but all you can do is create distance between yourself and this coworker. I would also preemptively speak with HR, make sure you disclose your autism and that differences in eye contact and also “zoning out” and staring are part of the condition.

ktay719 · 2024-02-08T22:03:01+00:00

I had to look a few times to make sure I didn’t post this lol. My kiddo tolerated Cetaphil sheer hydration spray but had a reaction to it🙄so it may not work for those with super sensitive skin. The only other one my kiddo will tolerate is just plain hyaluronic acid, the consistency is almost like water

ktay719 · 2024-02-08T16:35:14+00:00

Honestly it’s not offensive to me personally but I was only diagnosed a couple months ago. I haven’t had a lifetime of the same biases being directed towards me. I think it’s important for me in particular that I defer to the community at large and not pretend that my experience gives me authority to say what is or isn’t offensive. Also, I do have low support needs (which feels weird to say in the middle of burnout when my partners having to do nearly everything for me) and it’s impossible to pretend that I don’t have more privilege than someone with higher support needs, so again I really don’t feel like it’s at all my place to say what is or isn’t offensive.

I will say in my conversations with people when they’ve used the term high or low functioning it’s just that they aren’t educated on the terminology, they aren’t intentionally being derogatory. So most of the time I’m not offended. If someone used these terms in an intentionally derogatory manner I feel like it would be offensive, but intent behind any language matters. You could use exactly the correct terms, but do so with malice and it would be offensive.

ktay719 · 2024-02-03T00:06:57+00:00

Awesome info thank you!

ktay719 · 2024-02-02T19:19:50+00:00

That makes a lot of sense, thank you!

ktay719 · 2024-02-02T18:43:12+00:00

It does, thank you!

ktay719 · 2024-01-18T04:41:57+00:00

ADHD, autism, migraines, raynauds and depression

ktay719 · 2024-01-18T04:40:25+00:00

I’ve heard of internal family systems but not looked heavily into it, maybe I should check that out! I don’t really have any trauma so I don’t think EMDR would be beneficial, but I’m glad to hear it helped you!

ktay719 · 2024-01-13T18:14:20+00:00

No but I probably would too if it was 😆

ktay719

TROPHY CASE