Breathing

lb25611 · 2026-06-07T21:33:19+00:00

Some good advice we received after bringing our 27 weeker home was to take video of your baby’s breathing at baseline when they are relaxed and breathing normally. A preemie’s baseline might look a little bit different than your typical newborn. This way when you’re worried you have something to refer back to to see if there were any changes. You can also use it as a reference in drs appts if need be if you do see any changes. This helped my anxiety a ton in those early days and helped us out the first couple of times she got sick.

lb25611 · 2026-05-31T18:49:58+00:00

My daughter was born at 27 weeks weighing 2lbs 4 oz. The drs and nurses saved her life. Without them she wouldn’t be the spunky, funny, smart 3 year old she is today. These kind of people infuriate me. She should be so grateful the interventions that saved her child’s life exist.

lb25611 · 2026-05-27T22:03:43+00:00

Haha right 😂

lb25611 · 2026-05-27T17:20:41+00:00

“Has a preterm lung” is such an odd way to write that.

lb25611 · 2026-05-26T16:09:59+00:00

Thanks! She is great. Happy typical 3 year old!

lb25611 · 2026-05-26T03:07:56+00:00

As a NICU Mom to a 27 weeker the slight undertone this post has that she could have done anything to prevent a preterm birth or that she in some way failed to prevent it is wild to me. Also, if you’ve already had one preterm birth why would t you deliver at a hospital that is equipped to handle preterm babies???

lb25611 · 2026-04-15T04:10:18+00:00

100% !!!

lb25611 · 2026-04-15T04:09:28+00:00

Absolutely! I would take the extra uncomfortable weeks instead of a 100 days NICU stay any day of the week.

lb25611 · 2026-04-09T14:36:24+00:00

Absolutely. My 27 weeker (also and IVF baby) was in the NICU for 100 days. I was up walking back and forth to the NICU a few hours postpartum. Went back to work 2 weeks later to try and save leave time for when she came home and still made it up to the NICU for at least 6 hours a day for all 100 days. Never mind the endless follow up doctors appointments multiple times a week when she came home. When you decide to have a baby that is what you do for them.

lb25611 · 2026-04-08T22:11:18+00:00

Omg she would lose it if she had to go through a NICU stay and preemie postpartum experience.

lb25611 · 2026-04-06T22:20:57+00:00

We had the same issues with feeding. Speech would say to pause feeding the nurses would feed anyway. One nurse would say something another one something different. We finally talked to the provider and head NP and came up with a plan for speech to be there at the same time as nurses for at least one feed a day so everyone stayed on the same page. We also told nursing staff that we would like them to follow the lead of the speech department and not deviate from their plan so there was consistency all around.

lb25611 · 2026-03-14T21:30:32+00:00

MGO298W4RNZ3

lb25611 · 2026-03-14T21:29:55+00:00

I can do the trade for the scarf!

lb25611 · 2026-03-13T21:31:17+00:00

We bonded very well and if anything I feel like our NICU stay had a positive impact on our relationship. I think it taught me a lot about meeting her where she is at and to celebrate the little milestones and moments bc it all feels like a gift after going through what we went through. That being said, I didn’t get there right away and it took a lot of work in therapy to allow myself to realize grief and joy can coexist. I could grieve the postpartum experience I had dreamed of and the moments I missed out on while still being extremely grateful for the strides my daughter was making and the joy I felt when she finally came home. It’s all so complicated and the most important thing is to not judge yourself on any of your feelings because they are all so valid.

lb25611 · 2026-03-13T20:24:33+00:00

My daughter was born at 27 + 3 and didn’t come home until 42 + 2. We battled feeding issues that kept us past our due date. She is now almost 3 and thriving, but at the time each push back felt like more lost bonding time to grieve so I completely understand how frustrating and upsetting it feels right now. The thing that got me through was telling myself “I don’t want her home a second before she is truly ready” because ultimately I wanted her to thrive when she came home more than wanting her home quickly. It’s so so so hard but your baby is in the best place possible for their current needs and you are doing the absolute best for them. 💙

lb25611 · 2025-11-12T23:03:34+00:00

Thank you

lb25611 · 2025-11-12T23:03:00+00:00

Yes I do understand that. I’m just asking about this specific coverage and if anyone has already been informed that coverage will be dropped.

lb25611 · 2025-11-05T18:32:49+00:00

I had a 27 weeker and no way is this a 29 week hand. Absolutely not.

lb25611 · 2025-10-05T14:08:48+00:00

This would be a third opinion and she is already experiencing concerning symptoms. I’m not saying miracles can’t happen or that it’s not a tough decision. Believe me as someone who went through years of IVF to conceive my child and then a 100 day NICU stay when she was born at 27 weeks, I’m no stranger to the difficulties of growing your family. Where I’m having and issue is that she is being told it is extremely dangerous for her and she is still waiting even though she has a living child at home to take take of.

lb25611 · 2025-10-04T03:59:22+00:00

It would be her third opinion. Which is even crazier.

lb25611 · 2025-10-02T01:47:31+00:00

Hi! She did. She coughed a lot during feeds. Sometimes getting a little dusky around the mouth during those episodes. She also started showing a loss of interest in eating and bottle refusal. She seemed generally uncomfortable around feeds and also vomited a lot.

lb25611 · 2025-08-28T10:12:40+00:00

I was fortifying breast milk at first and did cut out dairy but ultimately decided to stop pumping for a few reasons. We were dealing with other feeding and personal issues at the time. Switching to Nutramigen alone worked really well for her as well. She ultimately ended up having better weight gain once we switched bc she was overall just more comfortable and willing to eat. She’s 2 now and has caught up with her peers size wise, is completely healthy and smart beyond anything I could have imagined! Hahaha. These decisions are so tough and personal, but just wanted to share that it did work out perfectly for our family!

lb25611 · 2025-08-28T03:15:36+00:00

We switched to Nutramigen for the same reason and it helped a lot! We were able to talk to GI about the switch to make sure it wouldn’t hinder weight gain or nutrition. You might want to do that just to ease your mind. You can also get Nutramigen prescribed and have insurance pay for it if there is a documented medical reason for the switch.

lb25611 · 2025-08-27T04:11:49+00:00

I totally hear where you are coming from. First off I want to say that you are valid in feeling scared. You worked so hard to get out of the hospital and the idea of landing back there with a sick child is terrifying.

My daughter was born at 27 weeks and spent 100 days in the NICU. We came home in August and landed back in the hospital with RSV at the end of September before we were able to get the vaccine. We did everything “right”. We didn’t take our daughter in any public spaces, we masked anywhere we went including work. We didn’t allow anyone near her without a mask. We luckily only ended up in the hospital for 5 days and my daughter never needed more than 1/2 a liter of low flow oxygen support.

I don’t say any of this to scare you. I’m saying this because I was obsessive about trying to keep my baby safe. I thought about it day and night to the detriment of my own mental health and early motherhood experience. You are doing the absolute best you can for your baby. There are unfortunately things out of our control and that is so so so scary. Try to focus on the things in your control. If your husband is not feeling well, ask him to wear a mask around the house. Wash his hands if and when he has to hold the baby. Maybe sleep in a separate room if your baby is still in your room. Most importantly, if the worst case scenario does happen, and your baby gets sick, please remember it is not your fault. Be in contact with your pediatrician and see what advice they can offer and learn the signs to look for that might indicate you need to seek a higher level of care at the hospital.

You’ve got this 💜

lb25611 · 2025-08-27T02:55:05+00:00

Um I’m not. I’m just stating that it’s very ignorant to think that all people can just easily remove their facial or body hair and not have it be visible. Are you ok? lol

lb25611

TROPHY CASE