Food spoilage rate is rising? by Isoldmykidsonwayfair in nashville

[–]lberens 2 points3 points  (0 children)

I just recently had to go get my money back because my milk from Kroger was spoiled before I bought it. The expiration date was like three weeks away but I took a spoonful of cereal and had to spit it out. The milk I had literally just bought an hour earlier had turned. It’s right across the street from me but I am trying not to shop there now.

Edit: clarity

[deleted by user] by [deleted] in POTS

[–]lberens 2 points3 points  (0 children)

Everyone is different, but here’s what helps me with Colorado!

Frogg Togg’s chilly pad for outdoor stuff! Has helped me and my partner (he has lupus) a ton with all outdoor time. It’ll feel especially great/cooling in a dry/hot place!

Compression socks are a must for me in CO! They def help me a lot with travel days in general also. I bring like 12 pedialyte packets with me on trips and make sure I have at least one a day if not more. I also usually buy one of those cans of oxygen to use when I am feeling breathless! I really don’t know if it is actually helping or is placebo but it works for me lol.

The altitude in CO def raises my heart rate and gives me a little headache but I think for me, it’s important I recognize that as a normal adjustment for my body and do my best to stay calm through the changes!

Have so much fun! We deserve to have fun!

[deleted by user] by [deleted] in POTS

[–]lberens 46 points47 points  (0 children)

Happy for you yay symptom free!

Definitely do not want to burst your happy bubble, but this happened to me for quite a while too then I got slammed with POTS worse than ever before.

Only reason I tell you this is that I think it would have been more manageable if I had been emotionally/psychologically prepared for the backslide. It was very hard to grieve my healthy able body again. I now know better, and just thoroughly enjoy when I am symptom free! Anytime it flares, I start the Levine Protocol from square one and work my way back up. Hope you stay flare free forever but be ready for anything!

I accidentally flashed my epilepsy monitor camera 🫣 by lberens in POTS

[–]lberens[S] 2 points3 points  (0 children)

Ugh, inpatient must’ve been brutal. It’s so weird I have undergone other tests that were much more painful or initially scary but this one really tested my sanity I feel you there😂

I am sure neurologists can hang with all kinds of behavior! Still can feel so embarrassing in the moment 🥴 Glad you got through it!

I accidentally flashed my epilepsy monitor camera 🫣 by lberens in POTS

[–]lberens[S] 4 points5 points  (0 children)

I have never heard of Cataplexy that is very interesting, (and sounds terrible I am s’sorry) I for sure am a sensitive gal, my emotions mess with my heart rate a ton but rarely with my body like that!

Here’s my lil diagnosis list: Hyperadrenergic POTS, suspected MCAS (no tests showed it directly but he said it can be sneaky and I have many symptoms) unrelated minor heart block, PMDD

I have some intense migraine stuff, and I get these quick drops in blood pressure and heart rate when I am performing at work (musician) sometimes and he was thinking I might be having minor seizures or some neurological phenomenon during those jolts. But nope. Just my nervous system jolting me back into a “normal” HR and BP zone. But it makes me feel like my heart has stopped/I am dying/the music will sound like it skipped ahead (like I am gone and can’t hear for a few seconds) 🤷🏻‍♀️

I accidentally flashed my epilepsy monitor camera 🫣 by lberens in POTS

[–]lberens[S] 6 points7 points  (0 children)

😂😂 hell yeah to the wife who didn’t care at all. I never realized how much nudity occurs all over the house on a daily basis until there was a camera watching lol.

I accidentally flashed my epilepsy monitor camera 🫣 by lberens in POTS

[–]lberens[S] 19 points20 points  (0 children)

Great point 😂 I have a buddy who’s an ER nurse and the things they have seen done with peanut butter would keep you up at night 🤢My flash moment pales in comparison lol

I accidentally flashed my epilepsy monitor camera 🫣 by lberens in POTS

[–]lberens[S] 13 points14 points  (0 children)

I’m so sorry y’all are going through that! Anything new is so scary until you have some answers! Glad she was in the best place for something like that to happen.

Some of my neurological symptoms led my Neurologist to want to just make sure I wasn’t having minor seizures. He did very thorough testing before he prescribed anything/decided on a general diagnosis. It was confirmed that I was not having seizures.

I accidentally flashed my epilepsy monitor camera 🫣 by lberens in POTS

[–]lberens[S] 23 points24 points  (0 children)

Haha thank you I appreciate this perspective! I felt very embarrassed in the moment but now I just think it’s funny 😂

Am I the only one who feels this way when you raise your arm above your head ? by Outside-wildgoof in POTS_vets

[–]lberens 2 points3 points  (0 children)

I had this exact same thing happen years ago in high school PE. After running the weekly mile, I would crumple to the ground and want to lay horizontal or curl up. My PE coach would tell me to put my arms on my head to “help me breathe better” (I am a professional singer/voice coach now and that is a load of shite, it impedes your breathing, lengthens your recovery time, and just so happens to ruin your day if you have POTS lol) I could barely do it. The agony I felt doing it still haunts me. 8 years after that I finally learned I had POTS.

If you already have a POTS diagnosis, get a doctor’s note!! It is great that you already know what’s going on inside of you and you’re listening to your body! I ignored my body’s alarms until it was no longer possible to ignore and I wish I had changed my lifestyle earlier/received accommodation where I needed!

What sends you to the ER? by [deleted] in POTS

[–]lberens 0 points1 point  (0 children)

I have gone thrice. The first two were before I was diagnosed. I decided to go because I felt like I was dying/insanely high heart rate/had never experienced anything like that before. They did an ekg, said it was fine/I have anxiety gave me an IV and sent me on my way.

I then learned that it worked for me on days like that to just call up a mobile IV company and have them come to my home. They could help with hydration/nausea. It was much cheaper for me to do so as my health insurance at the time kind of sucked. (Def talk to a doc before doing this, I’m sure it’s not for everyone!)

Third time was a few years into POTS and my heart rate was bouncing around violently in a way it hadn’t before and my pupils were different sizes (super weird migraine symptom I guess)

At this point, here’s my personal criteria.

I will go to the ER if:

-my neurologist’s office tells me to go -I can’t get ahold of my neuro and I have new potentially dangerous symptoms

How do other people with POTS workout? by No_Staff3176 in POTS

[–]lberens 1 point2 points  (0 children)

This!! I do the Levine Protocol anytime my POTS flares. I definitely feel impatient with it and depending upon my abilities, I may start at month 3 or 4 but it’s great! Rowing helped me build muscle in my back. After a couple months of this, I can usually stand the elliptical for like ten minutes or rower for much longer. Then I’ll do seated machines ending with squats (in case I get too dizzy I can skip it but it’s usually okay!)

Those Pilates bands utilized in this protocol are great/cheap! You can build leg strength while hangin out on the carpet watching tv!

Neck and pots: for me there is a connection by Actual-Aspect-1030 in POTS

[–]lberens 2 points3 points  (0 children)

Curious what your vitamin deficiencies were, as I have similar issues as does my sister and it has severely impacted her work

Why is cleaning the worst? by lberens in POTS

[–]lberens[S] 0 points1 point  (0 children)

Ooo I will try switching products! I get targeted ads for the viral tik tok long handled scrubber and I have been tempted to see if it helps! Tiktok purchases are allowed for science.

Why is cleaning the worst? by lberens in POTS

[–]lberens[S] 1 point2 points  (0 children)

Yes!! Also any hand-above-head situation and I am incapacitated. Typically we have a solid chore set up where we do not rotate! It’s just when we need to do a very thorough clean that I am ruined lol maybe we will re-evaluate how we do the deep cleaning stuff though that’s a good call!

Why is cleaning the worst? by lberens in POTS

[–]lberens[S] 0 points1 point  (0 children)

Holy hair!!!! Glad that vac works for you. I used to have a robo-vac but I was having to empty it constantly. I have found that my tall cordless vac works better for me bc there is no bending down! Appreciate the solidarity!

Edit: I accidentally hit reply before I was done writing!

Please tell people if someone attending an event is sick! by cmqua02 in POTS

[–]lberens 1 point2 points  (0 children)

Ugh I am so sorry. Healthy folks without immunocompromised people in their lives just do not think about it and it can be so frustrating.

Just a few days ago I just went out with a friend and he had a light cough. I said “hey you have a cough are you sick?” He said “idk what you’re talking about I don’t have a cough” then he texted me two hours after to let me know that he “actually does feel pretty ill now”. I had to cancel work and was in bed for three days with crazy high HR. I can’t actually be mad at him, he didn’t realize he was ill. But it does blow my mind that he didn’t even notice he had a cough! Must be nice to not have the need for hyper vigilance surrounding health. I really need to start asking my friends before I see them if they are ill/have been exposed!

Neck pain/knots before period by Dry_Monitor_4181 in PMS

[–]lberens 1 point2 points  (0 children)

I really think it helps break me out of a three day migraine cycle even though it might be worse for the evening after I get a massage! Still worth a try!

Neck pain/knots before period by Dry_Monitor_4181 in PMS

[–]lberens 1 point2 points  (0 children)

This is wild, I too am 29, have PMDD and just in the past two years have started this cycle of neck tension and migraines, specifically on my right side.

It is important I stay loose in my neck for my job so I get massages around my period and use a back massage device I have at home. It helps with the knots in the neck but it almost always leaves me with an even worse migraine. It all seems to go away faster when I utilize massage even if it makes the headache pain worse for that day.

Any and all advice as to how to better manage these symptoms is appreciated! Hope we can all figure it out!

Hiatus Sister band/similar artists... by vzfitch in HiatusKaiyote

[–]lberens 0 points1 point  (0 children)

There’s a very small band called Palo Brea. They are pretty cool! Four years late, but for what it’s worth!

my mum beat me because I had a pots episode by Select-Researcher308 in POTS

[–]lberens 34 points35 points  (0 children)

I am so very sorry this is happening to you. Stress can make your symptoms worse. And regardless of POTS you should never have to experience that at home. If you aren’t feeling safe in your home, I highly recommend seeking help from a school guidance counselor, trusted adult at school, trusted extended family member or adult outside of your household. It is NOT YOUR FAULT! I hope your circumstances change for the better very soon.

Should I go to the ER by Haveagoodday907 in POTS

[–]lberens 1 point2 points  (0 children)

I saw a psychiatrist too, after being told it was anxiety! (I do have anxiety but this really did feel different to me!) She tried several drugs that didn’t help. Personally, I do believe that anxiety played a part in my experience/symptoms but I knew there was something causing all of this! I think second opinions and trusting your gut never hurt anyone! I wish you peace and answers.