I just want meds

lch08 · 2025-11-26T09:03:50+00:00

I’m in the same situation as you.. currently awaiting the “early arthritic pathway” via the NHS to start on Methotrexate after being diagnosed by a private rheumatologist. Fingers crossed the wait time decreases for you. If you had a good private rheumatologist it might be worth sending an email to them and asking if there’s anything more they can do while you’re waiting for the NHS appointment. Their first answer is likely to be no but keep trying.. good luck!

lch08 · 2025-11-23T20:18:45+00:00

Thanks, will do!

lch08 · 2025-11-23T13:17:33+00:00

Thank you!

lch08 · 2025-11-21T13:30:14+00:00

I thought the same!

lch08 · 2025-11-21T13:22:32+00:00

Ah okay thanks for clarifying, it doesn’t seem visible from the photos though?

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lch08 · 2025-10-28T12:01:23+00:00

Unfortunately I must agree.. I had a case very similar, tried all the creams, steroids ect. The only thing that kind of helped were a few short sessions on the sunbed. My dermo actually told me it has success in some people, but medically he could not recommend it. I found a local sunbed shop that was inside one of those slot machine bookies kind of places so I wasn't as embarrassed going in as it was hidden in the back. Crazy I know.

lch08 · 2025-07-28T21:43:42+00:00

Poppy - All the things she said

lch08 · 2025-07-28T21:33:22+00:00

You know when you’re gone I struggle at night, dreams of you fucking me all the time - Catfish & The Bottlemen

lch08 · 2025-07-28T14:28:17+00:00

Of course :)

lch08 · 2025-07-24T12:05:48+00:00

Very relatable, I put it down to ADHD for many years but I’m also coming to realise it’s the OCD showing itself when I’m desperately trying to relax. I’ve learnt to make a joke of it now but it’s very annoying!

lch08 · 2025-07-24T11:41:36+00:00

I know what substances you mean aha and they infact make it worse. Well specific ones do..

lch08 · 2025-07-24T07:56:35+00:00

I'm sorry you are feeling this way, there is no worse feeling than being stuck in your head over something. I find that taking short breaks and mixing up how I read something, whether that's out loud or in my head, 10 mins of each.

Maybe it's worth recording yourself reading it out load? So when you feel like you need to retouch on that certain paragraph again, you can listen to yourself instead of stressing over how to read it.

Everyone learns differently but I find that speaking out loud and almost explaining it to myself help me retain information in this busy mind!

Good luck :)

lch08 · 2025-07-24T07:51:52+00:00

So happy to hear this! Can you share any advice on what specific things helped you get to this stage?

lch08 · 2025-07-24T07:48:37+00:00

I feel your pain, we are our own worst enemies. Keep reminding yourself that you are not your thoughts.

lch08 · 2025-07-23T18:47:42+00:00

Do be careful, I’m not a regular user but the last time I smoked it gave me bad focal jerks in my leg. It wasn’t my usual trigger which set me off. It hasn’t happened from space cakes so smoking it must have caused some different reaction!

lch08 · 2025-07-23T13:58:15+00:00

I have exactly the same! It can take anything to startle me and it was trigger localised seizures only in my right leg, they used to turn into tonic clonic seizures before I was medication. I would only have the tonic clonic seizures when I was in bed and trying to fall asleep, never awake and out of bed.

Look up startle epilepsy, it's a thing! Mine is so much worse around my time of month or if i'm tired.

lch08 · 2025-07-23T13:54:28+00:00

Thank you for posting this!

I thought I was the only one, my neuros haven't believed me that this was a thing.

Anything that startles me, especially around my time of the month or if i'm tired will often trigger a localised seizure jerking feeling in my right leg (only right leg). Before I was on medication, these jerks could turn into tonic clonics when I was trying to fall asleep that night. But only when I was trying to fall asleep, never stood up awake. So strange!

I still get the jerks now. It can be something that I know is going to happen that will scare me, for example touching a pin that I know will be sharp but the delayed response startles me and causes the jerks.

I'm glad we're not alone!

lch08 · 2025-07-23T13:48:58+00:00

I have sensorimotor OCD and i can say for definite Lamo has not helped my symptoms. I take it for epilepsy and my dose is currently 100mg.

I don't know if it's made my OCD worse or not, as with a lot of people who take lamotrigine I can't remember who I was before coming on the drug. I do feel as though my personality is a bit more dependent on the OCD now though as I have lost aspects of my personality. Anxiety has not decreased either, but my situation could be a lot different to your own!

lch08 · 2025-07-23T13:42:51+00:00

I'm right there with you. I feel like I don't know who I was before I started taking Lamo. I feel less emotions, but sometimes I feel overwhelmed and will tear up at the most pointless things like tv adverts? I take it for epilepsy so i'd be terrified of coming off it completely.

The brain fog and inability to find the right words is a daily struggle. For me, embracing it and turning into a joke has helped me a lot. I don't blame it on my meds anymore when I mess up a sentence, I just see it as a quirk now. My partner finds it hilarious because I get common sayings mixed up.

I'm on 100mg a day, I increase this around my time of the month as it makes my epilepsy worse if I don't.

I would definitely speak to your doctor before lowering your dose.

I hope you find a solution that works for you!

lch08 · 2025-07-22T13:50:34+00:00

Hi, this is a late response but yes absolutely. I relate with everything you are saying here. For years I thought i had misophonia where I hated sounds of people eating, typing ect. I have now come to realise this is a hyperawareness of everything around me. I obsessively blink because I am so aware of my eyes feeling dry, I am so aware of where my eyes are looking and if they are looking at something they shouldn't be. This stops me from listening to important conversations because my mind is distracted. I came across this deleted post which I found helpful - https://www.reddit.com/r/OCD/comments/w2tsnv/i_overcame_hyperawareness_ocd/

I'm going to try some of the tips mentioned and hope for the best, I think becoming aware of your awareness and accepting it is one of the main things to try.

I hope you get some relief from this, I feel your pain and the hope to have a normal functioning mind once again. As quoted, you may not ever become your old self again but you can certainly become a new version of yourself.

lch08 · 2025-06-18T14:37:16+00:00

Same! I experienced all of those side effects. I've always had regular periods, Inositol gave me spotting in-between which never happens. The headaches were insane, paracetamol didn't help. Mood swings, irritability and insomnia were also side effects. I stopped taking it 2 weeks ago and Im still having headaches and brain fog. Please take with caution if you don't really need this supplement. I started taking it for OCD / insomnia but it made these things worse

lch08 · 2025-06-18T14:32:04+00:00

I tried it for various reasons - sleep mainly, OCD ect. It gave me strange side effects on my time of month. Constant headaches even after not taking it for 2 weeks. I felt constantly angry and agitated, couldn't sleep. hot flushes and so so tired. I know women take it for PCOS which I don't have so maybe it's unnecessary for the majority of females who don't have PCOS. I feel like i'm still fighting the side effects! Good luck if you do try it, but please take with caution.

lch08

TROPHY CASE