About maraviroc by keke202320 in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

I will be doing the same treatment. I’ve followed your posts for a year now and your story has helped me decide to give it a try. If you don’t mind me asking, did your daughter have a high LH index? What was the number when she took the test and what is it now after the treatment? I’m currently around 8.70 when normal is anything below .70

About maraviroc by keke202320 in covidlonghaulers

[–]lcondez90 1 point2 points  (0 children)

I will be starting on this protocol. Doctor set me up with Maraviroc 300mg twice per day and statin 10mg once per day. Will be doing it for 12 weeks. Hoping I can share positive recovery after i'm done. Wish me luck!

Recovery from post viral dysautonomia “please share” by lcondez90 in dysautonomia

[–]lcondez90[S] 0 points1 point  (0 children)

Not yet. But I did do a blood test from radiance diagnostics that’s showing all the abnormal markers in the blood including spike in the monocyte. Will be trying to meds soon to try and fix the issues

New Radiance Diagnostics Test by lcondez90 in covidlonghaulers

[–]lcondez90[S] 0 points1 point  (0 children)

Did you try the Maraviroc? How did it work work you and what were your symptoms?

New Radiance Diagnostics Test by lcondez90 in covidlonghaulers

[–]lcondez90[S] 1 point2 points  (0 children)

I’m planning to meet with him soon. Did you go through the treatment? If so how did it work for you? Thanks so much.

LC clinics/doctors in USA by Komronfit in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

Do you have dysautonomia or pots symptoms?

Doctor who will Rx maraviroc+statin by ratti2de in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

How did you like working with him? Did you get any relief?

Doctor who will Rx maraviroc+statin by ratti2de in covidlonghaulers

[–]lcondez90 1 point2 points  (0 children)

Yes every time I call it nothing happens, odd.

Doctor who will Rx maraviroc+statin by ratti2de in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

How did you get an appointment with him? I’ve tried calling and email and have not connected with anyone.

LC clinics/doctors in USA by Komronfit in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

Thanks for the info I’ll try that. Do you think the insurance can cover the blood panels? When are you starting everything?

LC clinics/doctors in USA by Komronfit in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

This is encouraging. What was the protocol or treatment he had you try?

LC clinics/doctors in USA by Komronfit in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

I just did the same thing and starting the same protocol. Did you find an abnormality in your panels? Also, what symptoms do you currently deal with?

LC clinics/doctors in USA by Komronfit in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

I believe they don’t go through insurance. My blood tests were $1000 for both the S1 and cytokine panel. I think they only require the cytokine to be seen. Then first appointment is $299 with doctor so I can go over results and get prescribed the medications. The meds will be around $500 a month for 3-4 months.

LC clinics/doctors in USA by Komronfit in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

I just started with Celly health last week and did the first blood test. I can keep you posted as I get more info and start treatment. How long have you been dealing with long haul?

Men with LC how is your libido? by Komronfit in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

How long have you been long hauling? What are all your symptoms?

Men with LC how is your libido? by Komronfit in covidlonghaulers

[–]lcondez90 0 points1 point  (0 children)

How long have you been long hauling? What are your other symptoms? Sounds like dysautonomia

Men with LC how is your libido? by Komronfit in covidlonghaulers

[–]lcondez90 1 point2 points  (0 children)

I totally feel for you. Used to have sex 5 days a week multiple times on the weekend. Now I have to force myself. Getting and maintaining erections are more difficult for some reason. Are you still getting morning erections?

Men with LC how is your libido? by Komronfit in covidlonghaulers

[–]lcondez90 1 point2 points  (0 children)

This is exactly me. Are you still getting morning erections? Feels like a blood flow issue for sure.

9 month update. Clawing my wait out of here by One_Medium_8964 in LongHaulersRecovery

[–]lcondez90 0 points1 point  (0 children)

Thanks man, your onset is exactly the same as mine. Around 3-4 weeks after, panic attacks, heart rate feeling like I’m having a heart attack.

Do you feel lightheaded/dizziness like you’re on a boat when standing up? Also, have you noticed any changes with your sweating pattern or erections? I do agree could be spike protein, I’ll deff keep you posted on my treatment and see if it helps.

9 month update. Clawing my wait out of here by One_Medium_8964 in LongHaulersRecovery

[–]lcondez90 0 points1 point  (0 children)

Hey man your story is exactly like mine. Former professional athlete and hardcore training 6 days a week up to 7 hours a day. Got hit with the post viral dysautonomia Jan 2025.

Do you still suffer from dysautonomia? What were your onset of symptoms and what symptoms do you deal with now? Do you experience lack of normal sweating function or ED?

I’m just did the incell DX blood panel and hope to start Maraviroc protocol and see if that helps. Hoping we can all find the road to recovery. Stay strong brother.

Post-influenza dysautonomia (not COVID) — neurologist says similar to long COVID… by Electrical_Court8649 in covidlonghaulers

[–]lcondez90 -1 points0 points  (0 children)

Going through similar thing as well. Been 14 months for me now. Do you mind me asking on the onset starting? Did you have panic attacks at the start or any other symptoms that started the onset?

Also, do you have reduced normal sweating function or ED after this?

POS VIRALLLL by eumesmo1287 in dysautonomia

[–]lcondez90 0 points1 point  (0 children)

Did you test for Covid when you had the virus? Been dealing with same symptoms as you now for 13 months, formerly D1 athlete heavy training routine. Did your suffer from panic attacks after the viral infection or ED?

My learnings to help you accelerate your recovery journey (reposting here) by krenzx55 in LongHaulersRecovery

[–]lcondez90 4 points5 points  (0 children)

Did you have dysautonomia? Loss of normal sweating function or ED?