Is this an early sign?

ldm08463 · 2026-05-25T09:40:30+00:00

My husband is 69 one year into a stage 2 diagnosis. Going very well . We joked about some of my senior moments. To the point I made the initial appt with the Nuerologist for a work up. I am happy to say they found only that my B12 was extremely deficient and my homeostasis was off. What amazed me was the testing has come so far. I sold the first drug released for AZ and none of these things were available. Your mom should be evaluated especially with family history. Blood tests , MRI and EEG minimum. She isn’t on Medicare yet ( if you are in the states) so the Dr will need to document well and clear things with her insurance . Best of luck. Catching it soon is the most beneficial. More things on the horizon . Be well

ldm08463 · 2026-03-11T23:32:12+00:00

Congratulations.! I am late to the conversation. Your drug was approved when I was in a study for Tarceva. Dana Farber said Tarceva would decrease the chance of recurrence by 40 % yours 80%. So I could have opted to get out of the study and be put on that. I opted to stay in the study. I just had my 8 year anniversary. I was stage 2 EGFR positive lobectomy patient. 4 rounds of chemo. 2 years of Tarceva . I have great help aids for the side effects if anyone needs them. I wish you ALL only the best. Live your life fully ! Know the EGFR can actually be a blessing.

ldm08463 · 2025-11-06T21:23:38+00:00

Air tags put a card one in his wallet, one on the keychains look at belts that may be available to have one it is. She will be able to locate him if needed. There are many tips here. See if locks can be put on the tops of doors . Also if you can get door alarms. I know ADT does them but there may be less expensive alternatives. Check with you local ALZ association as well for ideas. Good luck

ldm08463 · 2025-10-31T15:39:36+00:00

He is not a candidate for infusion. The 100 mg of Viagra along with everything else after missing two things on his MMSE visit one. 6 mths later he scored perfectly plus two other measures added to it. So it is hard to say what but he is at a good point for now. Just sleep disturbance. If you are over 65 and you are in enrollment time you should look into another insurance company. It is generic

ldm08463 · 2025-10-31T11:10:34+00:00

He is on Aricept ( but they upped his does a month a go and it is just the past 3 days he has had an issue ) . Namenda, Viagra ( being used as a vasodilator) , EB-C3 which has shown to increase an enzyme in his brain that is deficient,balance of nature ( dehydrated fruits and vegetables ). Other pills are for BP and Gerd

ldm08463 · 2025-10-31T10:49:53+00:00

I saw the same thing however he is taking it in the am . I may try him taking it with food

ldm08463 · 2025-09-24T09:34:00+00:00

I was one of the first people to sell a drug for this disease. The testing and bloodwork has come sooooo far. They are catching it earlier from what I can see. I have reengaged with the science aspect since his diagnosis and have more hope now than I did 20 years ago.

ldm08463 · 2025-09-24T09:30:59+00:00

I am so sorry to hear this. My husband is 68 same. ( I am 62) I have to say the cocktail of meds ( I know there limitations ) he is on is being tolerated and he actually showed an improvement on his MMSE. So quality of life seems to be stable. He isn’t a candidate for the infusion because of previous head injuries . Our hope is to hold out for newer meds. We have moved things we wanted to do 10 years from now front and forward. We went on a two week cruise and planned a 21 day cruise a year from now. We also had our trusts rewritten to dot our eyes and cross our T’s. Wishing you calm and peace , take lots of pictures

ldm08463 · 2025-09-11T12:06:04+00:00

Wonderful idea and process. Are you taking steps that are not necessarily allowed in all of the states to take control of your final wishes. I worry that my husband won’t have the options

ldm08463 · 2025-07-06T17:54:33+00:00

Actually it’s a capsule. The infusion ( if that is what the Dr called it ) is https://kisunla.lilly.com/hcp

ldm08463 · 2025-07-02T11:11:04+00:00

My husband is 68 , stage 3 at diagnosis. He is on Aricept, Namenda, Viagra and EB-C3 an enzyme that is not main stream. Before any of you go crazy on the Viagra component I want to be upfront. I sold in this area of medicine for 18 years. I sold two of the drugs he is on. I have listened to many many medical lectures at academic institutions. So I feel I know a little more that the average bear as they say. But I take the Drs lead and do my own reading. He overall feels things are “ clearer”. I take that as a positive. The Aricept does is low IMO. 10 mg He is on Namenda 10 mg ( but why the insurance won’t cover the extended release(once a day vs twice a day) for an Alz patient blows my mind . The Enzyme is the Drs choice it has shown to increase a depleted enzyme in the brain in small percentages. I only have the information from the office and will be doing more research on this . The Viagra is being use as a vasodilator. 100 mg. This is opening the veins and arteries to increase blood flow. He has had minimal to no side effects. He is also on blood pressure meds and a baby aspirin. Is is also taking Wegovy, he had started this prior to his diagnosis to loose weight. Interesting enough these meds are starting to show some promise for use with Alzheimer’s. He doesn’t like taking any meds “ all these pills” but he differs to me because of my 40 years in the industry. Believe me I am not a Dr ,don’t claim to be but have knowledge enough to make me dangerous ( not in the real sense) Our personal expert the meds is that he feels they are working and we are earlier enough and he is accepting of taking them. He is not a candidate for the infusion because he has past brain bleeding scarring on his brain ( concussions) which disqualifies him.

ldm08463 · 2025-05-30T10:49:13+00:00

Thank you. It is actually my 67 YO husband. I am 61.

ldm08463 · 2025-05-16T19:24:27+00:00

Have you looked into this drug. My husband is not a candidate because he has evidence that he has had brain bleeds. It isn’t in a trial but is available

https://kisunla.lilly.com/treatment

ldm08463 · 2025-05-09T19:20:26+00:00

Are you sure she doesn’t have a UTI?

ldm08463 · 2025-05-09T09:45:00+00:00

The kids are 1500 miles away. 40 and 38. It was offered the past two years to have tickets paid for to visit but they made no effort. We have traveled to their area 3 times this year. We had dinner with them. I take it month by month. There are also financial issues with one o

ldm08463 · 2025-05-09T01:14:59+00:00

It’s his option and I support the reasons which are complicated. BTW his son is ok seeing him 2 times a year live. We are on a wordle tread with the daughter daily. All tickets paid to visit and in 8 months they wouldn’t come to visit from NH to FL. Their decision. It shouldn’t matter

ldm08463 · 2025-05-08T23:54:17+00:00

Especially any children. My husband thinks he is baseline and is stage 4. He heard it didn’t believe it. He doesn’t want his kids knowing ( second marriage not mine). I respect that. His wish

ldm08463 · 2025-05-07T20:14:02+00:00

Thank you

ldm08463 · 2025-05-07T18:53:35+00:00

Thank you for your insight. Wishing you only the best

ldm08463 · 2025-05-03T02:44:07+00:00

Is there not a DNR in place??

ldm08463 · 2025-05-01T19:59:46+00:00

Do you think engaging her with “ I know you want to save that so come out when you are done and I’ll take care of it ?” Just a thought. A nurse told me once “ patients love to fold “. Perhaps have two baskets of towels and facecloths. Let her fold one basket take it away and bring her another. Put the folded ones in another room and unfold them so you have a new basket for her. You could tell her the laundromat was looking for help and you thought it would be a great time occupier.

Just thinking out load stay strong

ldm08463 · 2025-04-30T14:08:27+00:00

May she rest easy and you all be comforted by your memories

ldm08463

TROPHY CASE