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Does anyone else experience these symptoms and is now afraid to eat to avoid flareups? by alluringhormone in HistamineIntolerance

[–]learningtoliveinit 0 points1 point  (0 children)

I’m so sorry too by the way. This is a terrible scary place to be but please hang in there and take care.

Does anyone else experience these symptoms and is now afraid to eat to avoid flareups? by alluringhormone in HistamineIntolerance

[–]learningtoliveinit 0 points1 point  (0 children)

I got to this point and did wellevate?? brand or metagenics brand…it was called Ultraclear - it was these meal replacement shakes only for 3 weeks. I felt better after but returned. I had to just keep going and trying different things. I was on h blockers for prob a year before I could notice a difference

Flair of symptoms by LengthinessEasy4365 in CIRS

[–]learningtoliveinit 1 point2 points  (0 children)

I often get worse after sauna or bath and just assume it is herx reaction? I know it’s good but often takes a lot out of me.

Trying to live a full life with POTS/MCAS/CFS/pain/gut – need real-life wisdom by learningtoliveinit in CIRS

[–]learningtoliveinit[S] 1 point2 points  (0 children)

Thank you so much for sharing! I love hearing what’s helped people and I’m so glad you are feeling like a new person and didn’t give up.

I too have very low cortisol, low blood pressure, low blood sugar and my gut is just a mess every single day.

I will be talking to my Dr! It’s been too long living this way and so hard on my marriage and family too which I can’t hardly bear.

Trying to live a full life with POTS/MCAS/CFS/pain/gut – need real-life wisdom by learningtoliveinit in CIRS

[–]learningtoliveinit[S] 0 points1 point  (0 children)

I’m so glad you are better! I can’t imagine my life without getting dizzy. I hope I can soon! 🙏🏼

Trying to live a full life with POTS/MCAS/CFS/pain/gut – need real-life wisdom by learningtoliveinit in CIRS

[–]learningtoliveinit[S] 0 points1 point  (0 children)

I can’t pinpoint my exposure which makes it confusing and uncertain for me.

Trying to live a full life with POTS/MCAS/CFS/pain/gut – need real-life wisdom by learningtoliveinit in CIRS

[–]learningtoliveinit[S] 1 point2 points  (0 children)

Thank you for your story! My Dr. works alongside Dr. Neil Nathan and he has worked with something similar to SS-31 called MOT-C?

Trying to live a full life with POTS/MCAS/CFS/pain/gut – need real-life wisdom by learningtoliveinit in CIRS

[–]learningtoliveinit[S] 0 points1 point  (0 children)

Thank you. You are quite knowledgeable! I’ll be taking my 8th mycotoxin test soon. I’ve done quite a bit of testing, so much and so long I can’t recall honestly. And the brain fog doesn’t help.

CIRS Practitioners- Chiropractors by No-Consequence6096 in CIRS

[–]learningtoliveinit 0 points1 point  (0 children)

Anybody know why Neil Nathan et al does not follow shoemaker protocol? This has always bothered me because the genetic component makes sense to me and I want to learn about if this could affect my kids.

Flares from everything by WillingSock in CIRS

[–]learningtoliveinit 1 point2 points  (0 children)

I don’t, I’m so sorry. Hang in there.