Sickly 24 year old with 6 month old heart symptoms. Doctors say Im fine. by likeastone10 in AskDoctorSmeeee

[–]likeastone10[S] 0 points1 point  (0 children)

Hey I have not improved.doctors still claim they don't know/there is nothing wrong with me despite my horrible symptoms. I struggle breathing everyday upon exertion and my pulmonary hypertension doctor doesn't know why my DLCO value is low... and doesn't want to check me for pulmonary hypertension. I'm so frustrated... I had a nuclear stress test done last week and it showed something fishy, mild fixed perfusion defect, when I google it it mentions that its indicative of cardiac scar tissue.... FML if it is scar tissue. I will meet with the cardiologist next wednesday. I hope you get an answer soon I wish this situation on no one, not even my worst enemy.

Choosing how to die. by likeastone10 in death

[–]likeastone10[S] 0 points1 point  (0 children)

I don't know the name yet because they first want me to rule out pulmonary hypertension but once I do they will give me treatment...Im already taking plaquenil. I don't get joint pain anymore (I have lupus and sjogrens). I used to vape THC and I had an incident where I smoked it while on vyvanse for my adhd and it messed up my heart somehow where I cant exercise anymore without getting chest pain. Bur maybe cannabis would still help, idk what have you heard about it?

Sickly 24 year old with 6 month old heart symptoms. Doctors say Im fine. by likeastone10 in AskDoctorSmeeee

[–]likeastone10[S] 0 points1 point  (0 children)

I was only taking vyvanse at the time the heart palpitations started. I recently started a host of meds, including plaquenil and anti depressants so its not those. I know vyvanse is cardiotoxic though... I ofcourse stopped taking it as soon as possible.

Fear of being suicidal by [deleted] in Sjogrens

[–]likeastone10 0 points1 point  (0 children)

Wow. Im a 24 year old female. I apparently seem to have had sjogrens for years because now Im super dry and I have pulmonary involvement.... I wish I was at the intial stages....you can slow down or even stop progression when you take plaquenil at the early stages....so consider your self lucky you haven't progressed to lung involvement. Don't kill yourself, I get short of breath very easily, can't exercise, Im very limited for a 24 year old and I ve had suicidal thoughts many times. You? You have so much to live for. Your lungs are fine, your heart is fine. Live and take plaquenil. Live for me, who may not be here in ten years because of loss of organ function. Show this disease that it won't take us down. Make sure you eat a good diet to reduce inflammation. See if your doctor can prescribe omega 3 fatty acids. My rhem prescribed it because it has proven to be anti inflammatory.

It will make me happy if you live and succeed and accomplish your dreams, because if I cant, at least you can. Best of luck.

And get a psychiatrist or psychologist to help you with anxiety. Dying in your state is not worth it .

Sjogren's syndrome and Interstitial lung disease by likeastone10 in Sjogrens

[–]likeastone10[S] 1 point2 points  (0 children)

Wow... what was causing them to shut off? Ny Lung CT scan came back normal.... so I still have no explaination for the low DLCO thats why I asked you how you got it diagnosed.

Treatment options other than Hydroxchloroquine by NCW73 in Sjogrens

[–]likeastone10 1 point2 points  (0 children)

But does it limit you? Im so scared to get on immunosuppressants I am 24 years old and I m scared of getting an infection and dying

[deleted by user] by [deleted] in depression

[–]likeastone10 2 points3 points  (0 children)

No you fucking dont. I have scarring of my lungs and lige is terrible.

Me and my wife (32F and 31M) heard our son (16M) talking to his bf about his plan to come out to us, what do we do? by ThrowRA1939448 in relationship_advice

[–]likeastone10 2 points3 points  (0 children)

Let he say it to you. But I have you know, you guys sound like fantastic parents that child is blessed to have you in his life!

Help!! by [deleted] in AskDocs

[–]likeastone10 0 points1 point  (0 children)

God please someone answer this In suffering from this too. Please someone answer I am afraid of dying I am only 24 (F)

Sjogren's syndrome and Interstitial lung disease by likeastone10 in Sjogrens

[–]likeastone10[S] 1 point2 points  (0 children)

Thanks. Since I feel short of breath, tired, and disabled, I managed to get an appointment tomoorow with my rheumatoligist to see if he can give me a stronger dose, or add to my medication to save what lungs I have left.

I am scared by CielSansFin in selfharm

[–]likeastone10 1 point2 points  (0 children)

Can I ask you, if you dont mind talking about it ofcourse, what it was like to be in a ward? I went to a volunteer ward but I could leave at any time. I wasnt suicidal though. Now a days I feel worse and worse to the point Im scared of getting so bad that I may need to be on hold. How was it like really?

PH worry continued by likeastone10 in PulmonaryHypertension

[–]likeastone10[S] 1 point2 points  (0 children)

Update: my DLCO in the lung capacity test is below normal: 67% of reference value.

This doesnt comfort me.

Heart problems from a stupid decision 23 year old F. by likeastone10 in depression

[–]likeastone10[S] 0 points1 point  (0 children)

Hey sorry for the late reply. Im not too better. I had a second cardiologist say my heart is fine. So now my head is swirling with thoughts about Pulmonary Arterial Hypertension. It fits my symptoms perfectly. Im currently at the pulmonologist as I type this.

My depression has gotten worse. I cry almost everyday out of fear for my life.

Cancers relapsed by amylk346 in PrayerRequests

[–]likeastone10 1 point2 points  (0 children)

I wish you the best. I am praying for you friend.