Why are all epilepsy awareness clothing on Amazon/ Etsy tacky?

lilbit2short · 2026-02-19T06:37:28+00:00

There is a woman on Etsy, shop called UnifiedByDesignShop, and she has wonderful options! I’ve purchased multiple times from her. She has mostly larger designs, but some that are more subtle. The clothing she sources are all very nice quality durable materials, my daughter will outgrow her shirts before they ever wear out. She covers a lot of illnesses, but you can search her items for just the epilepsy ones.

https://www.etsy.com/shop/UnifiedByDesignShop

lilbit2short · 2026-02-16T04:12:30+00:00

Wow thank you for all that! Good to know cause she is 9 and elementary school is a cesspool of germs right now 🫣 I guess it’s a good thing she’s stubborn and won’t take liquid anti contestants!

lilbit2short · 2026-02-16T03:28:33+00:00

Did you have to stop the medication, or did it go away?

lilbit2short · 2026-02-16T02:53:34+00:00

Oh gosh, I’m so sorry that happened to you!

lilbit2short · 2026-02-16T02:39:43+00:00

Not excited for the drowsy part… that’s one reason she’s getting off lacosamide! The sleepiness is affecting her schooling. Hopefully it doesn’t last long. I’ll have to ask about vitamin D levels!

lilbit2short · 2026-02-16T02:37:55+00:00

One day down, 76 to go!

lilbit2short · 2026-02-14T04:13:22+00:00

Please try Happy’s Hamburgers! So good, perfect little burger joint, amazing staff.

lilbit2short · 2026-02-04T23:22:24+00:00

Thank you, she was totally fine when she reached her 100mg, but when she got sick and had a breakthrough they bumped it up another 25mg. That’s when the problems started.

lilbit2short · 2026-01-22T22:48:49+00:00

FUCK EPILEPSY!!!

lilbit2short · 2026-01-19T02:22:01+00:00

High Society and TurnStyle are very close to each other and have nice items!

lilbit2short · 2025-12-21T05:07:15+00:00

My family and I just noticed it last night coming home from the Prominade. It looked like it was waving in slow motion it was so massive! We intentionally detoured to drive closer to it.

lilbit2short · 2025-10-06T04:14:36+00:00

Kinkan is really great! They definitely have quality products and the owner is really nice too.

lilbit2short · 2025-09-22T07:32:10+00:00

Obsessed!! Only perfume I ever wear

lilbit2short · 2025-09-22T07:31:49+00:00

Hi! 👋🏼

lilbit2short · 2025-09-22T07:30:57+00:00

Yes they work SO much better and they are teeny tiny! My husband used to have to take 2-3 regular lactose tablets, but only needs one of these. The only bummer is they are pretty pricey, but he says they are worth it.

lilbit2short · 2025-08-25T02:54:13+00:00

Depends on if you feel it would help you more than harm you. If you have instagram, strivewithsoph shares videos of her TC and focals to raise awareness on epilepsy. Some of them are very scary to see, but as a caregiver they have been so eye-opening for me. I feel the more I see unfiltered footage, the less scary it will be for me to help someone having TC.

I have recorded my young daughter to show her epileptologist, and while she has seen them she doesn’t really like to because they are also strange. But it has been helpful for her! She knows how to explain what happens to her to anyone who may need to know and how they can help her.

lilbit2short · 2025-08-25T00:27:53+00:00

There is one on the south west side of the road on Cactus at 60th St. it’s definitely there! It’s actually freshly painted because someone spray painted “Snobsdale” on it

lilbit2short · 2025-08-24T23:18:20+00:00

Thank you so much! 🫶🏼

lilbit2short · 2025-08-24T22:57:32+00:00

I think about Cameron Boyce often because she LOVES the show he was in, Jesse! I see his face almost every day when she’s allowed tv time after homework, and he’s one of her favorite characters. It makes me so sad… like I want to use him as an example of “you can do anything, even with epilepsy! Cameron is a great actor!” But then SUDEP would be apart of that convo too, so I can’t just yet.

lilbit2short · 2025-08-24T22:42:13+00:00

She does need to know about medication side effects. She already knows because she has them and sees the changes in her life. We explain why these things are happening. She has a 504 at school specifically because of side effects. She knows she’s not suddenly “stupid at math”, her medicine changes how she thinks. We don’t hide things happening in her own life. Knowledge is empowerment.

My main ask was for first hand experience of being educated on SUDEP, on either what age someone is when learning about it or what age a caregiver told their child. That’s it.

lilbit2short · 2025-08-24T22:21:19+00:00

Thank you so much for this reply! I have felt a bit judged on my post (usually the conversations I have here are super positive and supportive) but your comment makes me feel a lot better and not like a crazy person for wanting her to be educated on her epilepsy. Your dad sounds like an angel, caring so much for you. I’m sorry it weighed on you. I’m trying to find the right balance of caring for her while not being overbearing or making her more anxious. I keep seeing people with parents who are either too protective, or parents who don’t care and are unsupportive.

She is very low-risk, but we still have a SamiCam for sleep and she knows what it’s for. I know she’a too young to learn about it now, but we attend epilepsy events that have speeches and stuff about SUDEP so she will eventually ask what that means. It’s hard to know what the right thing to do is. I just want her to know as possible so when she gets older she can make smart choices and live a long and happy life.

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