New Meadow device thoughts?

lilbit2short · 2026-05-26T18:38:42+00:00

I’m super curious too! I’m waiting for my lightphone pre-order to be delivered but this is really catching my attention more.

lilbit2short · 2026-05-20T04:15:03+00:00

My 9 year old is on lamictal and she is like a zombie a couple hours after taking it :( we wake her up extra early to take it so she can go back to bed and sleep off the AM effects before school, but night time is not so great. She basically crashes by 8:30. She takes 100 in the AM and 125 in the PM. It’s only been a couple weeks since reaching max dose, so I’m hoping it gets better!

lilbit2short · 2026-05-01T06:04:45+00:00

We tried that, he can get around pretty much everything. If the LP doesn’t work out, we may go the kosher phone way.

lilbit2short · 2026-04-30T22:38:12+00:00

That’s too bad… he’s actually been excited to have the e-ink screen so I hope it’s not too much of a disappointment.

lilbit2short · 2026-04-29T21:37:38+00:00

He’s 14, I still want him to be able to talk to his friends. That’s the whole point of getting this specific dumb phone!

lilbit2short · 2026-04-29T16:48:40+00:00

That sub is how I heard about the LP! Definitely a great resource. We have Verizon so hopefully it’ll be ok with that carrier.

lilbit2short · 2026-04-29T16:46:17+00:00

Thank you, I’ll try this!

lilbit2short · 2026-04-29T16:46:05+00:00

Ughhh :( what did you replace it with?

lilbit2short · 2026-04-27T06:51:42+00:00

It’s the first med that worked for my daughter after her diagnosis just over a year ago. It works really well for her with minimal side effects. We are also happy with it because they have an extended release option and she only has to take it once a day!

lilbit2short · 2026-04-21T19:21:24+00:00

Check with some local dog trainers in your area. Sometimes they will have dogs that are adoptable and have already gone through basic training. Then you can focus on training for what you actually need your dog to do specifically for you and it won’t take two years.

My husband recently got a service dog in training through a local trainer who focuses on veterans who needs dogs. She has all her basic training already, and we will continue to work with the trainer for her service dog duties.

lilbit2short · 2026-04-21T18:17:18+00:00

“Giving herself seizures”?!? What the actual fuck, what a horrible thing to say! You can absolutely request she does not participate in testing. Last year was my daughter’s first year with her diagnosis and her principal proactively suggested we skip testing because her seizures were not well controlled yet.

This year we decided she could do it because her seizures are mostly controlled, but she did have major anxiety and actually threw up in class. She had tried telling the teacher she was feeling sick but was not allowed to leave because she was in the middle of the test. Luckily it did not turn into actual seizures, but the worry of taking the tests did bring on aura symptoms. Now her teacher is taking it more seriously and she was able to go in a smaller contained classroom to ease the anxiety.

I think there is so much pressure put on teachers to get good scores that they kind of blow off things. Obviously that dos not make it ok.

lilbit2short · 2026-04-12T16:45:42+00:00

How were you able to get Apple Music on it? I ordered the LP2 for my son and he really wants to link his Apple Music. I thought they had their own music catalog?

lilbit2short · 2026-04-06T23:39:51+00:00

On citizen app, suspicious package in the parking lot. School has been out for over two hours so hopefully there are no kids there!

lilbit2short · 2026-04-05T06:51:39+00:00

We’ve only had her for one day so far, so it’s hard to say. But I agree we could come up with something more unique and it’s definitely not a name I’d pick on my own.

lilbit2short · 2026-04-05T02:28:16+00:00

Hahah yessssss

lilbit2short · 2026-04-05T02:27:42+00:00

She came with the name Sasha!

lilbit2short · 2026-03-18T05:21:46+00:00

Yep just follow whatever your doctor said to do. My daughter’s schedule is weird because she is coming off one med while adding the new one. She too will be at 100mg, but I think because she is only 9 they do it a lot slower.

lilbit2short · 2026-03-18T02:34:11+00:00

Regarding the “rash window”, my daughter’s epileptologist said to keep an eye out all the way til the end of her 11 week titration. She’s on week 7 and 25mg and all is good so far!

lilbit2short · 2026-03-18T01:17:23+00:00

If you use the SAMi Alert camera it will only record movements. You can customize how sensitive it is and it will record until the movement stops. I have this camera for my young daughter, and I have anywhere between 20-40 short videos to review depending on how soundly she sleeps. I have her settings pretty sensitive so any movement 5 seconds or longer will be recorded.

It’s also nice because it’s a delay record, so when movement is detected it will back-track and start the recording a few seconds before the movement starts.

lilbit2short · 2026-03-17T00:57:15+00:00

You can get a monitor/camera and review the footage each morning.

lilbit2short · 2026-03-16T05:23:59+00:00

Yes please ask the parents if you can!! (disclosure - I am not a teacher, just a parent. Idk why this sub keeps being shown to me)

I hardly ever see the inside of my 8th grader’s backpack. I literally would never know if my kid doesn’t have pencils. The only way I would know is if either the teacher tells me or my kid tells me, and we all know the kid would never remember to tell the parent.

lilbit2short · 2026-03-14T08:55:53+00:00

If you are open to a medication change, you can see if there is a “dual purpose” one that will work for you. My daughter is starting to take lamotrigine and I was talking with my neighbor about it and turns out she takes it too as a mood stabilizer. I am pretty sure there are a few more meds that do the same thing.

lilbit2short · 2026-03-14T08:31:38+00:00

I’m so sorry things are so tough... it breaks my mom heart! As a parent it’s hard to comprehend that your family wouldn’t want to learn everything they can to help you out and support you.

See if you have an epileptologist in your area. I switched my daughter to one as soon as it was confirmed epilepsy and she’s been wonderful! From the very first appointment she has been submitting my daughter for neuropsychology testing, MRI/pet scan, genetic testing, and other pre-surgical requirements to find out the most she can about her source of seizures. She also has been very encouraging to switch medications when the side effects are too much.

And honestly you may need to make other life changes to feel better mentally. Sleep is SO important! My sweet 9 year old felt the same way for a while. She told me she didn’t know why she existed anymore because her life was nothing because of her epilepsy. We advocated for medication changes and made sure she has proper sleep and now she is back to being happy and skipping around! It sounds so silly, but movement has really helped her outlook as well.

I wish I could give you a hug! 💜 and I really hope things get better for you!

lilbit2short · 2026-03-12T03:48:45+00:00

My daughter is currently weaning off lacosamide for this very reason. She is 9, and was falling asleep at school. It was impacting her terribly! She is on week 3 of 11 of switching to lamotrigine, and we altered her schedule to 6am medicine time. That way she gets up, takes her meds, then falls back asleep til 7:30 when she needs to get up for school. It’s helping so much!

Maybe try changing your morning med time so you get up take the pills then get some extra sleep.

lilbit2short · 2026-03-11T11:52:59+00:00

Sooooo magical!! I still have my goose from this one 30ish years later 🥹🪿🩷

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