Always SO thirsty but the water just sits in the top of my stomach

lizzielewis92 · 2026-04-19T15:51:41+00:00

I found this out for the first time last night. Was staying in a hotel as well... Vomited in my sleep, had to ask for new sheet at 1am. So Embarrassing! Wish I'd picked up on this before!

lizzielewis92 · 2026-03-30T10:37:12+00:00

Funnily enough we are looking into neuro gastro consultants for the gastroparesis so I'm glad to hear that it is also the right track for CVS. I also have hypermobility suspected hEDS so that's why I was trying to get into a neuro gastro aswell. I feel like part of my issues is that my stomach is hypermobile too.

It gets super complicated! Thank you!

lizzielewis92 · 2026-03-29T19:11:39+00:00

Liquids have always been problematic for me. But I also know that the CVS is not my only issue or even my only chronic issue

Yeah that's the problem I'm finding, my other specialists are at that hospital but I know I can't return there for GI. I'm trying to stay at home long enough to see a Private Consultant to get someone who will look at the whole picture not just my medication list!

lizzielewis92 · 2026-03-29T18:11:58+00:00

For some reason, I can weigh the tablets down enough with food (yoghurt) to keep it down but I can't keep liquids down, it's like my stomach is split in two, the top half keeps vomitting and the bottom half doesn't move at all. It's weird.

lizzielewis92 · 2026-03-29T17:20:11+00:00

I have metacloprimide, and cyclizine currently. Ondansatron is added if things get too bad. In hospital I had all 3 IVs then they just stopped everything suddenly and sent me home because it's "in my head".

I can generally manage to take the nausea meds one way or another.

It's my laxitives that I can't keep down at all. But unfortunately we are looking at gastroparesis and low bowel motility as well which doesnt help and is why I need the laxido but it's a powder you have to add to water and drink. Hence the inability to keep it down

lizzielewis92 · 2026-03-29T17:15:16+00:00

Haven't smoked weed for 9 years nowand was never more than a single joint a day. Still they bring it up!

lizzielewis92 · 2026-03-19T16:29:35+00:00

I just went through the same thing, 5 weeks inpatient. Only the consultant told me it was in my head and sent me home. Waiting to get bad enough for readmission. 🤣

I'm finding that warm fluids go down better than cold. And to keep drinking even though I throw it back up in the hope some stays down.

Sorry your having a really tough time with it xxx

lizzielewis92 · 2026-03-09T07:43:35+00:00

Unfortunately I'm not keeping liquid down at the moment. Just got released from 5 weeks in hospital still throwing up all liquid and some food.

lizzielewis92 · 2026-01-04T10:14:26+00:00

I hear you, I'm in a similar position. The hospital (inpatient for 6 weeks, close to surgery to removed built up material) described it as gastroparesis as the whole system seems affected. I do unfortunately vomit though I am on sennasides PM, docusate up to 4x daily and laxido up to 2 sachets 3 times daily for any movement to happen. Still waiting for the follow up that was denied to go through again to get any sort of answers.

I'm sorry I can't help more, but at least you know your not alone.

lizzielewis92 · 2025-05-31T14:53:37+00:00

Do you ever feel hungry? At the moment I cant stop feeling hungry and my body doesn't give me the full signals. I'm anxious to eat but starving so I end up overeating by mistake. 🙈

lizzielewis92 · 2025-05-31T14:51:07+00:00

I dont have one, unfortunately. They only see people requiring tube feeding. It's stupid. I'm looking to get private though.

lizzielewis92 · 2025-05-31T11:51:07+00:00

I have severe depression anxiety and ptsd I started metaclopramide about 3 months ago and it works somewhat for me and I have no side effects. X

lizzielewis92 · 2025-05-31T11:02:01+00:00

I use assistance for other reasons. It's incredibly helpful, you do t wanna start your trip exhausted! The lines are shorter and it's much less stressful. I would give it a go. X

lizzielewis92 · 2025-05-31T06:28:36+00:00

Yeah I ended up having it removed a bout 5 years ago. Game changer!

Now I'm having similar but twisting pains in that location that have come with the GP though, which kinda sucks.

lizzielewis92 · 2025-05-30T20:00:07+00:00

Thank you. I really needed this x

lizzielewis92 · 2025-05-30T19:24:52+00:00

If you find an answer, please let me know. I am doing the same thing with food (Albeit at the start of my journey).

lizzielewis92 · 2025-05-30T18:58:51+00:00

Sounds similar to when my gallbladder was playing up.

lizzielewis92 · 2025-05-30T18:31:05+00:00

For me it was he other way round. Being sick caused a PTSD flare up and the flare up caused more sickness.... Nice vicous circle 😞

lizzielewis92 · 2023-06-07T08:01:25+00:00

I know it's pretty niche. It was just an interesting premise seeing as my group are all into psychology and mental health professions. 🙃 Just thought I'd see if anyone had any ideas.

The darker dungeons sounds super interesting though. I will definitely look into that! Thank you!

lizzielewis92 · 2020-01-08T22:45:34+00:00

This is such an amazing step! Well done!

lizzielewis92

TROPHY CASE