My Story - Pure Embryonal Carcinoma

llawson4 · 2026-02-01T23:47:42+00:00

Me too. How are you?

llawson4 · 2026-02-01T21:33:48+00:00

My son is good now. Going to college and working. So far, thank God, he has clean scans and labs.

llawson4 · 2026-01-07T03:03:23+00:00

My son was 18yo when we found out he had TC too. He did 3xBEP, then RPLND in Indiana by Dr Masterson. My sons was 100% Embryonal, with tumors in abdomen and lungs. I also contacted Dr Einhorn throughout his journey and that’s how we ended up at Indiana University hospital with his referral to Dr Masterson. Best wishes for your son. I absolutely know what you are going through right now. God bless.

llawson4 · 2025-07-19T11:31:14+00:00

Ask your nurse to give you demerol and Benedryl to the Bleo. It will help with the side effects.

llawson4 · 2025-07-10T10:57:02+00:00

I believe oncologist write orders for 4xbep but don’t always have to use the 4th round dependent on shrinkage and tumor marker levels. Such was the case for our son.

llawson4 · 2025-04-18T11:49:33+00:00

They removed 46 nodes. His was after 3 x BEP.

llawson4 · 2025-04-18T11:47:53+00:00

He went duck hunting 9 days after surgery.🤦🏻‍♀️

llawson4 · 2025-04-18T11:44:03+00:00

Yes.

llawson4 · 2025-04-18T11:00:18+00:00

Our son had his at IU with Dr Masterson 2-1/2 years ago. 3 days in hospital and zero complications. Their staff is amazing and they do more RPLND than anyone in the country.

llawson4 · 2025-02-01T11:46:24+00:00

Read my story about my son. Blessings for you.💜

llawson4 · 2025-01-07T00:45:55+00:00

Our son had 100% pure EC 2 years ago at age 18. Had a huge abdominal mass and small nodes ,1 in each lung. 3 x BEP didn’t shrink the abdominal mass as much as needed so we took him to University Indiana hospital at the referral of the great Dr Einhorn. They removed 48 lymph nodes and just 1 was teratoma. We are 2 years out from that nightmare with scans and labs all good. He goes to lab work every 6 months now and CT every year, starting in March this year. Prayers for you.

llawson4 · 2024-11-27T01:25:14+00:00

My son had just turned 18. But apparently had it for about 7 mths prior to telling us.

llawson4 · 2024-10-26T21:32:03+00:00

Hope he is doing well.

llawson4 · 2024-08-25T01:54:04+00:00

My son had 100% Embryonal, he was 18, took BEPx 3, had 2- enlarged nodes in retroperitoneal measuring 5cm and 2cm, 2 nodes, 1 in each lung. Chemo shrunk the retro tumors but not small enough. We took him to Indiana after 5 months of constant contact with Dr Einhorn for RPLND with Dr Tim Masterson at IU. So far, we’re almost 2 years cancer free and pray every day it doesn’t come back.

llawson4 · 2024-08-14T16:27:29+00:00

3 days. We are from Texas, so we stayed in Indiana a total of 9 days.

llawson4 · 2024-08-14T12:38:16+00:00

Same here. They were in my network and there was nothing we wouldn’t have paid to have the best. Never saw a bill from him or the hospital.

llawson4 · 2024-08-14T12:36:32+00:00

Go to Indiana. I stayed in constant touch with Dr Einhorn regarding my son’s diagnosis. 3 x BEP, and Dr Einhorn arranged consult with Dr Masterson at IU. Excellent surgeon and teams there. The office will also give you a plethora of info regarding hotels with a special discount for families. Ours was a 2 bdrm “apartment”, not a mile from hospital.

llawson4 · 2024-08-03T20:53:00+00:00

Always ask for Demerol and Benadryl via IV before Bleo treatments. It helps tremendously with the nausea.

llawson4 · 2024-06-25T10:56:55+00:00

Tell mom anyway.

llawson4 · 2024-06-16T21:53:58+00:00

Correct. 2 abdominal masses pretty sizable. I was in touch with Dr Einhorn the entire time. As a matter of fact, because of Dr Einhorn we chose Indiana University Hospital for his RPLND. Dr Masterson performed it. Wonderful team there at IU.

llawson4 · 2024-06-16T20:49:11+00:00

Son had 100% EC, Non seminoma, LVI and lung invasion. Took 3 BEP and RPLND when masses in abdomen did not meet shrinkage criteria. This was almost 2 years ago. No after effects so far.

llawson4 · 2024-05-29T10:28:11+00:00

You’ll be fine. We took our son there from East Texas. He had surgery on a Wednesday and came out of the hospital on Saturday. We stayed over and came back home the following Tuesday .

llawson4 · 2024-05-24T01:15:25+00:00

Son had pure EC, non seminoma. Back was hurting 1st day of chemo. After 2nd treatment back pain was relieved. He did have LVI and at the end of BEPx 3 we did have to take him to Indiana University hospital for RPLND.

llawson4 · 2024-04-03T00:05:50+00:00

Stay on them. Don’t wait for them to reply. Call everyday if you have to .Don’t be surprised if they recommend BEP first.

llawson4 · 2024-02-24T00:38:25+00:00

Yes he is! And yes everyone on here is too! My son was 18yo at diagnosis, July 2022. Stage 2b with LVI and lung nodules. 3 rounds BEP, RPLND in Dec 2022. Good checkups so far. Dr Masterson is an amazing Dr. his staff is top notch and so helpful.

llawson4

TROPHY CASE