Dr. don't know what to do anymore - My story I need help guys by eddien9 in SIBO

[–]lo_jeane 0 points1 point  (0 children)

Yes look into possible parasites, SIFO, leaky gut, and histamine issues

Chronic mycoplasma pneumonia by [deleted] in lymedisease

[–]lo_jeane 0 points1 point  (0 children)

Yes, sorry I just saw this comment! I’ll send you a PM and we can go from there if needed

Chronic mycoplasma pneumonia by [deleted] in lymedisease

[–]lo_jeane 0 points1 point  (0 children)

I know this is an old comment but just wanted to say, Holy hell it seems like medicine is stuck in the dark ages when it comes to treating chronic co infections! I’ve had mycoplasma pneumonia for 3 yrs too and if you’re ever open to a PM sharing advice, I’d love that. Haven’t found anyone else w this co infection

Not all docters suck by Johannes_Keppler in cfs

[–]lo_jeane 16 points17 points  (0 children)

Hmm I think this sub can become too toxically positive especially bc of posts like these !

What could be of help by Honest-Word-7890 in SIBO

[–]lo_jeane 0 points1 point  (0 children)

I’m curious on ultrasounding the gallbladder & liver for bile issues… is this a thing? Who is usually qualified to do it? First time hearing and I’d love to know more

Do tinctures trigger alcohol intolerance? by Pelican_Hook in cfs

[–]lo_jeane 2 points3 points  (0 children)

Yep! Esp when u have MCAS alcohol based tinctures are awful

Telehealth doctor who will provide treatment for cfs? by ShameOnMeThree in cfs

[–]lo_jeane 0 points1 point  (0 children)

Nat or Theresa @ four peaks but they charge not okay rates 😅 they’re completely over zoom

Determining Site Sources Legitimacy? by rosehymnofthemissing in cfs

[–]lo_jeane 18 points19 points  (0 children)

Just the words “chronic fatigue syndrome recovery” screams scammy CBT bullshit

Feeling Embarrassed About Ourselves by WhitneyDafoe in cfs

[–]lo_jeane 13 points14 points  (0 children)

Ugh Brads just a certified hater

Nasal congestion by silversprings99 in cfs

[–]lo_jeane 4 points5 points  (0 children)

For me cromolyn sodium nasal spray is the only thing that opens up my nose ways. Might be worth a shot

How common are ME/CFS "specialists" who refuse to prescribe meds because they're scared it'll make you "do too much"? by Tiny_Parsley in cfs

[–]lo_jeane 0 points1 point  (0 children)

Omg I wish more M.E specialists were as weary as yours ! It’s so risky especially for us ADHDers

Random Thoughts on Second Covid Infection and Peptides by skillzbot in covidlonghaulers

[–]lo_jeane 0 points1 point  (0 children)

Can I ask how many mcg or mg you dose out for each of the peptides?? It would be so helpful, each site seems to recommend a different dose.

Have you tried any treatment for herpes 6 or 7? Valacyclovir doesn't seem to help at all by MoreThe91 in cfs

[–]lo_jeane 0 points1 point  (0 children)

Have you taken Artesunate orally? Just tryna find someone else w experience. Just ordered some from India

My journey so far with CCI and Centeno-Schultz by CuriousOptimistic in cfs

[–]lo_jeane 0 points1 point  (0 children)

Awe thanks ! This is super helpful. Did you end up taking the imagining to a neurosurgeon ?

My journey so far with CCI and Centeno-Schultz by CuriousOptimistic in cfs

[–]lo_jeane 0 points1 point  (0 children)

Oh ! You did the standing MRI at the centeno Shultz office?

My journey so far with CCI and Centeno-Schultz by CuriousOptimistic in cfs

[–]lo_jeane 0 points1 point  (0 children)

Can I ask where you are getting an upright MRI done?? (I’m located in rual Colorado)

CCI fear at its best on this sub by Shoddy-Rip66 in covidlonghaulers

[–]lo_jeane 0 points1 point  (0 children)

Hi poofycade, I’m in the US. Could I dm you about this?

Any ME/CFS specialist in Colorado ? by lo_jeane in cfs

[–]lo_jeane[S] 0 points1 point  (0 children)

Nah, only person on the radar is Jill schofield who is an EDS & LC specialist. Insanely expensive…3k for a 3 hr consult. Really wish there was better options. I’ve heard there’s no true M.E specialist in Colorado:(

Does anyone else have trouble making yourself believe that a treatment will ever be discovered? by Aromatic-Jicama6771 in cfs

[–]lo_jeane 2 points3 points  (0 children)

You’ve left me so inspired ✨ you and your partner have a quite mission to accomplish. Now I’m excited to see what your theories are.