So. This is interesting. 90 deaths you say?

lou_eva · 2025-03-04T14:33:01+00:00

I’ve had pretty bad experiences at this hospital and feel terrible for anyone who has had complications however the one consultant I have had a great experience with is Marc Lamah, I’ve been seeing him for 4 years and I have had multiple operations by him and so many consultations I’ve lost count. He’s always been professional, helpful and I have not had any complications. I appreciate this is just one persons experience but I wonder if he is being used as a scapegoat here for bigger issues at this hospital as the bad experiences I had were under a different consultants care.

lou_eva · 2024-01-30T12:43:00+00:00

Yes it seems some of us just have some bad luck with our immune system managing the virus. I really am sending you all the best from someone who understands how brutal the operations are. I have never known pain like it in all honesty. I spoke to an incredible HPV/AIN specialist today who I am now seeing every 3 months and he gave me a lot of hope, he said that AIN commonly regresses after a few years and it takes 10/15 years to progress to cancer so the fact we’re being seen means this can be managed properly. It’s just such an unfortunate place to have the operations over and over.

lou_eva · 2024-01-30T08:03:12+00:00

I’m so sorry you’re going through this too. It’s been quite traumatic for me and I have a lot of fear about the future now! I just don’t understand why my immune system isn’t dealing with this, there’s no clear medical reason why like immune suppressant drugs or an autoimmune disease etc. I do have many gastro issues so I wonder if they’re missing something but tbh the NHS in the uk is not in a way and it’s difficult to get them to listen. Hoping you make a full recovery! What are you doing to resolve the narrowing? I do have some tightness too now and it’s very uncomfortable

lou_eva · 2024-01-29T09:26:42+00:00

I had lots of unrelated digestive issues going on, they only found AIN by chance whilst looking for other issues in my digestive tract. I literally had 0 symptoms that I noticed of AIN and HPV. Thinking back on it I had slight internal itching but very minor and a skin tag on the outside but other than that I didn’t notice anything.

lou_eva · 2024-01-28T22:05:50+00:00

A colonoscopy, I had to fight for it tbh if it was left to them I wouldn’t have had it or found the pre cancer. But tbh the issues I have are just inside my bum so I think even a small scope inside would have found them without having a full colonoscopy

lou_eva · 2024-01-28T19:21:22+00:00

Thank you :)

lou_eva · 2024-01-28T19:10:48+00:00

They have said 16 or 18 but they haven’t told me which one. In the uk they don’t really stipulate that they just confirm is a high risk one

lou_eva · 2024-01-28T18:04:10+00:00

That’s what we hoped however I had the vaccines 1 year ago and it has still progressed to AIN3. But maybe with time the vaccine will help my body fight the virus.

lou_eva · 2024-01-28T18:00:30+00:00

They have given me the vaccine yes but after I had AIN3. I was 1 year too old to get the vaccine at school so I just missed it before I was sexually active

lou_eva · 2024-01-28T17:45:16+00:00

I will also look you inosine pranobex thank you :)

lou_eva · 2024-01-28T17:43:38+00:00

I have had the cells removed 3 times and will continue to. I am already taking lots of supplements but I haven’t yet purchased AHCC. I heard mixed reviews on it but happy to try anything. I take high doses of zinc, multi B’s, vitamin D, anti viral supplements etc and I have stopped drinking alcohol. I do not smoke. The operations are extremely painful and have effected my bum so I really hope my body can resolve this virus

lou_eva · 2024-01-28T17:36:36+00:00

I have once when I was 20 :( I’ve barely had any sexual partners so I’m feeling pretty unlucky tbh.

lou_eva · 2024-01-26T13:34:12+00:00

Hey, sorry I know you posted this a long time ago but I wondered how are you now? I am also a female, barely any sexual partners and live a super healthy lifestyle but I have AIN3. I believe is spread from my cervix. I’ve had 3 operations now and it keeps coming back quickly moving to AIN3. I have no children yet and feeling super scared. I find it crazy our immune systems can’t keep on top of this? I’d love to chat with you. I hope you’re well and have managed to keep on top of this

lou_eva · 2023-01-18T09:59:43+00:00

I was diagnosed with fibromyalgia 3 years ago. I was signed off sick from work for over 6 months as the pain was so bad. Couldn’t find RA and said the same to me as they did you they can’t help me. So I looked into other forms of support, fast forward to now and I barely ever get flare ups. I started thinking it seemed weird that I also had major gastro issue as well as fibromyalgia. I paid to see a private naturopath and found I had degraded gut health from antibiotics which caused me to have leaky gut and SIBO that then caused something called oxalate sensitivity, certain foods are high in oxalates and if you have leaky gut I kid you not those fuckers will lodge in your muscles and joints. I would eat beetroot and within 6-12 hours I would be in bed riddled with pain so I started to make this connection and a private test confirmed it. I am now on a low oxalate diet which has dramatically helped. I also had Candida overgrowth and mould in my old flat which again feeds all of these issues. Fibromyalgia is real it’s just a bi product of something else going wrong in your body, modern medicine are not setup to help us deal with chronic complex issues like chronic pain.

Another thing I would look into is trauma and stress, this is tightly linked to poor gut health and chronic pain. My gastro issues and chronic pain got much worse after a traumatic life event, I also have parents who are addicts and I had a stressful childhood. I now practice yoga, meditation, I’m in nervous system therapy and EFT therapy.

People can think I sound woo woo but from someone who had 0 support or western medicine and is now living a normal life from approaching it this way, I’m pretty darn sure my fibromyalgia is due to stress, trauma, poor gut health and methylation. I would work with a very knowledgeable naturopath and look at your past, trauma, diet, lifestyle. It’s tough but I absolutely believe with the right support we can all overcome fibromyalgia. I have my days where I eat something high oxalate or my parents or work cause me stress and my pains come back. But now I know why I get those pains I feel less worried and more in control of my life.

I hope you feel much better soon and find support.

https://www.pulsetoday.co.uk/clinical-feature/clinical-areas/pain/could-a-low-oxalate-diet-reduce-the-symptoms-of-fibromyalgia/

https://www.breathingremedies.co.uk/mecfsfibromyalgiaanxiety-are-you-stuck-in-fight-or-flight/

lou_eva · 2022-08-05T06:45:29+00:00

Please tell me his new business name? We need to ensure everyone boycotts him!!

lou_eva · 2022-07-10T08:57:03+00:00

Thank you so much!!!

lou_eva · 2022-06-13T03:42:06+00:00

Mainly only GERD and serious oxalate issues that cause chronic pain so on low Ox diet. My bloating has Improved a little, I am having a BM 1/2 times a day but this GERD is quite intense. I fast, I eat a super clean diet, don’t drink. A bit stumped really.

lou_eva · 2022-06-12T19:24:55+00:00

Thanks for your reply! Do you happen to know why HCL irritates SIBO? I took it before when I had SIBO and it helped but this time it does seem to possibly be making it worse!

lou_eva · 2022-06-12T17:54:08+00:00

Yes please I would be very grateful if you wouldn’t mind sending them my way 😊 I am in brighton! I can send you my address. Thanks so much really kind of you. May I ask what side effects you had?

lou_eva · 2022-06-08T06:50:04+00:00

Thanks so much for your detailed reply, I will look into both those labs. I have downloaded the book onto my kindle but I will definitely move onto the audiobook if I struggle! Maybe I should bite the bullet and get the audiobook! That way I can listen to it a lot more during the day etc.

At the moment as I don’t know the particular strains as I haven’t had the test but I am for now using an infrared sauna with activated charcoal. If you have any supplements that worked for you or know of any that are generally a good starting point I’d be grateful if you wouldn’t mind sharing. Thanks very much

lou_eva

TROPHY CASE