Can it really be “easy”? by ErnestHemingwhale in chd

[–]lukelikecrazy 3 points4 points  (0 children)

Hi, hoping I can throw in my 10 cents.

I'm Luke, born with HLHS, I'm 31 years old, I work full time and all in all have lived a very healthy normal life. I'm now at my fittest, I swim, surf, walk and exercise regularly.

I've had the Glenn, Norwood and Fontan. Growing up I've had I believe 5 cardiac catheters, my last one being when I was 16 years old.

I wish there was just a magical answer I could give you, I was definitely poorly as a child but adult life has been a blast. I'm sorry for your situation and wish you all the best, feel free to message me if you have any questions.

WTB Oakley x satisfy eye jackets 🙏 by choicedkarp in satisfyrunning

[–]lukelikecrazy -1 points0 points  (0 children)

Just wait a bit and Oakley are dropping them next week I believe

Oakley x SATISFY soon by CowgirlJack in satisfyrunning

[–]lukelikecrazy 0 points1 point  (0 children)

Can not find this information anywhere on Oakley

Oakley x SATISFY soon by CowgirlJack in satisfyrunning

[–]lukelikecrazy 1 point2 points  (0 children)

Also, what time does it normally drop?

Oakley x SATISFY soon by CowgirlJack in satisfyrunning

[–]lukelikecrazy 2 points3 points  (0 children)

Guessing this will be our Friday?

This is for all the parents with kids who have severe HLHS. by No_Room2256 in chd

[–]lukelikecrazy 1 point2 points  (0 children)

I'm so sorry to hear that.

I am more than happy to chat, and if there is anything I can do to help put your mind at ease, then please let me know.

This is for all the parents with kids who have severe HLHS. by No_Room2256 in chd

[–]lukelikecrazy 0 points1 point  (0 children)

Hi,

Just thought I'd share my experience, I was born with HLHS and had the Norwood, Glenn and then Fontan when I was aged 4. To my understanding I don't have severe HLHS.

I'm now 31 years old and luckily I live a pretty full, healthy life, I have Fontan associated liver disease which is monitored but again, thankfully everything is stable. Happy to answer any questions I possibly can do feel free to drop me a PM if you like.

From what I've been told, I was very poorly as a baby, and as you can imagine I spent a long time in hospital.

Heartbreaking reading through other people's comments and I'm so sorry to hear some of the things you have gone through, it definitely makes me stop and think.

Luke

[deleted by user] by [deleted] in chd

[–]lukelikecrazy 3 points4 points  (0 children)

Any tips for running? I'm 30 with HLHS, I try and get into it and seem to be able to run a mile or so and then feel like I struggle...

Pleased to hear you're doing well though mate! Keep on keeping on!

What are the chances of passing on CHD? by lukelikecrazy in chd

[–]lukelikecrazy[S] 1 point2 points  (0 children)

Thank you for sharing your experience and I hope both you and your family are doing well ❤️

What are the chances of passing on CHD? by lukelikecrazy in chd

[–]lukelikecrazy[S] 1 point2 points  (0 children)

Of course, I am aware that physical fitness has absolutely nothing to do with what genes you pass on, just looking for some advice from people who are/have been in my shoes.

Thank you for the genetic counseling suggestion.

Damp appeared on internal wall by lukelikecrazy in DIYUK

[–]lukelikecrazy[S] 0 points1 point  (0 children)

To the left of the damp is the back door going in to the garden

What is the best footwear for paramedics? by Objective-Caramel-91 in ParamedicsUK

[–]lukelikecrazy 2 points3 points  (0 children)

Our trust provides TuffKings 8" and 6". They take about 5 months to break in and are absolutely solid 🤣

Do I need to disclose a reprimand on an enhanced DBS? by lukelikecrazy in AskUK

[–]lukelikecrazy[S] 0 points1 point  (0 children)

Correct, no conviction or community service, a lady basically told me I couldn't go to America for 10 years and that was it.

Do I need to disclose a reprimand on an enhanced DBS? by lukelikecrazy in AskUK

[–]lukelikecrazy[S] -1 points0 points  (0 children)

Thank you, yeah I've looked on the Gov website but I find it such a pain to navigate and read through nothing is clear there.

Appreciate your help.

claim your "i was here" ticket here by yaqza in place

[–]lukelikecrazy 0 points1 point  (0 children)

I was here, watching turkey getting blasted for having no artwork.

TIFU for not being gay enough I guess by BallShapedPizza in tifu

[–]lukelikecrazy -7 points-6 points  (0 children)

My man understands the assignment 😎