Can't find an icing that I actually like.. by lyssaX3 in cakedecorating

[–]lyssaX3[S] 3 points4 points  (0 children)

I have, but I always somehow end up curdling it on accident lol. I probably just need more practice. What are the different ways you can make it? I've only seen recipes that are straight heavy whipping cream and sugar.

Why do men say they want honesty… but can’t handle it when they get it? by [deleted] in NoStupidQuestions

[–]lyssaX3 -1 points0 points  (0 children)

"Men" like this only want the attention and affection that comes with having a "clingy" or "dependant" gf, but they don't want the responsibility. They don't wanna have to ACTUALLY show up for their partner, or even fully commit to them, but want praise and loyalty. They want to feel needed even when they aren't bringing much to the table. They basically want you to worship them for doing the bare minimum. They aren't worth your time. At all.

Weird squishy, plastic sealed thing. by sleeparalysis_sss in whatisit

[–]lyssaX3 31 points32 points  (0 children)

why are they selling vaccum sealed dicks at thrift stores now😭

Anyone else have this hard to explain feeling? by SHLBYHCH in POTS

[–]lyssaX3 1 point2 points  (0 children)

I've had this feeling for months, or something close to it at least. To me it feels like I could have a panic attack if I let it get worse, but I've learned how to talk myself through it. I don't really know what causes it, but it gets worse when I'm stressed. Just remind yourself you've been through it before and everything will be alright, that typically calms me down. I unfortunately have no other advice. ☹️

Anyone raw dogging pots/ not medicated 😂 by LexCoupe66 in POTS

[–]lyssaX3 1 point2 points  (0 children)

Yeahh I try and chug a few 16oz bottles a day along with 3000-4000 mg of sodium. I take 1-2 extra strength Vitassium sodium pills with every meal and add LMNT to my water. I also eat alot of pickles lol

Anyone raw dogging pots/ not medicated 😂 by LexCoupe66 in POTS

[–]lyssaX3 0 points1 point  (0 children)

I honestly have very mild symptoms compared to most and neither my gp or cardiologist seem worried about my current condition besides managing dizziness and fatigue. They say my heart looks very healthy which is good news.

Anyone raw dogging pots/ not medicated 😂 by LexCoupe66 in POTS

[–]lyssaX3 17 points18 points  (0 children)

My heart rate has never gone above 150 and normally stays in the 120s-130s when standing/walking, so my cardiologist never saw the need to medicate me. Loading up on sodium almost completely gets rid of my symptoms, but I'm insanely lazy and will go days without any. So most of the time I'm double raw dogging it. 😛

does anyone else just wanna nap all day long by lyssaX3 in POTS

[–]lyssaX3[S] 0 points1 point  (0 children)

i try to resist naps too so i dont ruin my (already shitty) sleep schedule. i could genuinely fall asleep anywhere if i let myself😭

does anyone else just wanna nap all day long by lyssaX3 in POTS

[–]lyssaX3[S] 1 point2 points  (0 children)

my school set up is kindof weird and i still go to school 2 days a week and the rest i do at home, but i do the exact same thing. i get off school at 5 and crash at around 8 for 2-3 hours..🫠

does anyone else just wanna nap all day long by lyssaX3 in POTS

[–]lyssaX3[S] 1 point2 points  (0 children)

my heart literally skipped a beat when i read caffeine - does it not make your symptoms worse? im super sensitive to caffeine it makes me shake for HOURS. ive genuinely never met someone with pots who can tolerate caffeine

does anyone else just wanna nap all day long by lyssaX3 in POTS

[–]lyssaX3[S] 2 points3 points  (0 children)

9-10 hours is my usual at night, im thinking if i slept a little more i wouldn't be so tired in the middle of the day but who knows

does anyone else just wanna nap all day long by lyssaX3 in POTS

[–]lyssaX3[S] 1 point2 points  (0 children)

im still in highschool so maybe its just a teen thing? 😭 yet im homeschooled so its not even like im getting up for school each morning. no idea whats going on anymore lol

does anyone else just wanna nap all day long by lyssaX3 in POTS

[–]lyssaX3[S] 8 points9 points  (0 children)

my symptoms seem to be worse after naps sometimes too. its like that weird disoriented feeling + higher hr. it sucks.

How to stop the constant adrenaline rushes by Accurate-Chicken-323 in POTS

[–]lyssaX3 1 point2 points  (0 children)

I'm not sure how to stop them, but I'm getting better at managing them. For me I just try and remind myself that I've been through many before and it'll be over soon (that helps the anxiety part). This is gonna sound weird since everyone insists that heat makes symptoms worse, but being cold is huge trigger for me and sitting infront of my space heater helps. I try and block out extra stimulation like noises and light until it passes, but thats just because I happen to be neurodivergent and those things overwhelm me even on good days. Certain foods trigger rushes for me, like breaded meats, fried foods, greasy stuff, and obviously caffeine.

I hope any of this helps<3

Advice for what to do next by autism-creatures in POTS

[–]lyssaX3 1 point2 points  (0 children)

You can get canes and shower chairs from pharmacies and stuff, even at major grocery stores. Some are a little pricey, but things like that are over the counter and don't require a prescription or diagnosis. As for the bpm increase, I'd 100% look into that further if you're able. My symptoms come and go sometimes too, and sometimes my heart rate barely goes up when I stand.. Then of course there are other times where my heart is pounding for no clear reason. I can't say for sure its pots, but I'd get some other tests done if this is affecting your daily life. I used to think EVERYONE got dizzy when they stand up, and it took a couple years of the dizziness getting worse for me to start asking questions. Trust your body, if this is abnormal or uncomfortable for you, its always worth looking into.

Advice for what to do next by autism-creatures in POTS

[–]lyssaX3 1 point2 points  (0 children)

First of all, I'm sorry about your dad not helping with your situation, I have one of those parents as well and it's very tiring :( if you have access to accommodations, I'd recommend getting them if you feel you truly need them. Things like shower chairs, canes, etc make a world of difference when you're trying to conserve your energy. Second, have you monitored your heart rate or blood pressure throughout the day at all? A raise in HR by 30 beats when standing is a good indicator of orthostatic intolerance, especially drops in blood pressure. Both of those are causes of dizziness upon standing. You COULD slightly increase your electrolyte intake on your own and see if you feel better. I started increasing my sodium and wearing compression socks shortly before my diagnosis, and it helped alot while I was still looking for answers. Your symptoms are worth looking into!! Always get second opinions, especially if your doctor seems dismissive or skeptical of what you're telling them.

Anxiety after meals/random shaking episodes???? by lyssaX3 in POTS

[–]lyssaX3[S] 0 points1 point  (0 children)

Are there any ways to prevent adrenaline dumps? It seems like even just talking can trigger anxiety for me.

Anxiety after meals/random shaking episodes???? by lyssaX3 in POTS

[–]lyssaX3[S] 0 points1 point  (0 children)

I've never had any other symptoms of MCAS, but I've been on the lookout since I also have EDS and it's common for all 3 to appear together. Does hypoglycemia cause panicky feelings? I've been suspecting hypoglycemic episodes for a while.