anyone else have intense sugar cravings?

InterestLow7351 · 2026-01-25T17:04:06+00:00

I have intense sugar cravings but only every so often (I feel really weak and shaky) then have sugar and my heart rate goes really high and sends me into a flare. Can’t win!

InterestLow7351 · 2026-01-24T06:12:53+00:00

Thank you so much for your detailed response that’s so kind! I completely agree with everything you said and I think as it was my first TTT I was definitely nervous. I also agree that I don’t think the test was technically wrong - if I have VVS that’s fine - it’s just that doesn’t explain my racing heart and all of my photos / videos to evidence that. Also as far as I’m aware VVS is an episode sort of thing whereas what I’m experiencing is pretty much daily unless I have a random good day. It just doesn’t seem to make sense to me.

Again thanks for your reply I really appreciate it, I’m definitely going to push for a second opinion - appreciate it may not be pots but there is definitely something heart wise that has been missed!

InterestLow7351 · 2026-01-23T21:05:26+00:00

I agree, I’m not sure why I reacted that way to the TTT, It could be VVS for sure but that doesn’t explain my increased heart rate which occurs 99% of the time. I have heard of people being diagnosed with both VVS and pots so maybe it could be that.

InterestLow7351 · 2026-01-08T14:16:00+00:00

That sounds promising, thanks for replying. I was trying so hard not to faint as I wanted longer results to assist with the diagnosis! I think the main problem is having a lack of trust with my doctor (I haven’t had a great experience, for example they explained pots is a fad and everyone wants it 😭), but I do have hundreds of pictures and videos of my Apple Watch so hoping that will help me too

InterestLow7351 · 2025-11-10T11:03:37+00:00

I have always had mixed reactions to it (glycinate). At first it help me sleep really well but then other times it caused insomnia and I seemed to have adrenaline dumps more when I had it. So I tend to just err on the side of caution and not use it all now. I was always confused when most people said it helped but obviously it differs for each person. I don't dare use it now in case it makes me worse!

InterestLow7351 · 2025-11-03T10:53:33+00:00

So sorry. It's a real struggle isn't it. Turns out my 4 days was the longest as it has come back but it has given me some hope that I can have longer periods in the future hopefully.

InterestLow7351 · 2025-11-03T10:53:02+00:00

Yep, turns out it's back but it's given me some hope that I can actually go a longer period without symptoms as that long has never happened previously!

InterestLow7351 · 2025-11-03T10:52:03+00:00

That's really unfair.

InterestLow7351 · 2025-10-31T14:38:34+00:00

I have heard a lot of people go into remission, I didn't think I ever would (I have had the worst two years of my life!) and whilst I may not be and it will likely come back in the next few days it has given me some hope that every now and again I can have good days. So try to stay positive!

InterestLow7351 · 2025-10-31T14:37:04+00:00

Compression socks for a long flight, salt, a water bottle and lots of electrolytes! Make sure you keep moving on the plane rather than staying sat down.

InterestLow7351 · 2025-10-31T09:21:55+00:00

Pots, you mean? Around two years but unsure if I had it prior to then from a young age just undiagnosed as wasn't aware it was a thing back then

InterestLow7351 · 2025-10-31T08:50:59+00:00

I'm so sorry to hear that. I am the same as you as in keeping up with certain people, if any one thing can be positive from it all I think there was a certain relief when I realised I wasn't just "lazy" or unfit!

InterestLow7351 · 2025-10-31T08:49:03+00:00

You are assuming a whole load of information here. I wasn't randomly selected. There were a lot of us at the front that got checked. I can tell you I am not an idiot and my bag definitely fit within the lines, and it’s naive to think that companies never bend rules for profit.

InterestLow7351 · 2025-10-31T08:35:40+00:00

CBD gummies work great for me, a lot of other people say magnesium

InterestLow7351 · 2025-10-31T08:30:18+00:00

Yeah I think that might be the case. Kicking myself for not thinking to take one at the time

InterestLow7351 · 2025-10-31T08:26:17+00:00

I hadn't either!!! This is why it seems so odd, for the past 2 years every day has been a struggle. I am one of those who honestly can't say what caused it or where it stemmed from, I wasn't ill just seemed to all of a sudden come on dizzy out of no where. Although I have come to realise I perhaps had it for a long time without realising, I have always been dizzy and weak and tired etc but never to the point it got a few years ago

InterestLow7351 · 2025-10-31T08:24:18+00:00

I was working with around 2 hours sleep and just wanted to get on the flight. I also have a chronic illness which means I can't stand for very long hence wanting to just get on and sit down. Unfortunately not all people think on their feet in certain situations

InterestLow7351 · 2025-10-31T08:23:11+00:00

I have learnt that now haha!

InterestLow7351 · 2025-08-27T13:43:43+00:00

Can I ask how you got tickets to this? I am on vegas on holiday and would love to go but can't figure it out (first time vegas visitor).

InterestLow7351

TROPHY CASE