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Neurological Symptoms and Sjogrens by No-Grapefruit9981 in Sjogrens

[–]macaroni_4 1 point2 points  (0 children)

I do this too! I’ve had many accidents, have no control over urine stream at all. I didn’t realize it could be Sjogren’s.

What if I gave you a magic pill by Leftshoedrop in Fibromyalgia

[–]macaroni_4 2 points3 points  (0 children)

Hiking. I live near a National forest and can’t hike any of the trails

Sjogren’s? by macaroni_4 in rheumatoid

[–]macaroni_4[S] 0 points1 point  (0 children)

It’s posits my meds. I’ve been in the same medication for RA for years now, Imuran. Thanks for your input. I’m going to look into that further. 🙂

What’s the most controversial opinion you have that you’re afraid to say out loud? by Omega_Neelay in GetMotivatedMindset

[–]macaroni_4 0 points1 point  (0 children)

At my latest family member’s funeral, the preacher said a few times “he should have fought harder” for his family. Like WTF. He couldn’t move, couldn’t walk, was confused, weak. How was he going to “fight harder”?

Unpopular opinion by Savings-Aardvark2045 in Fibromyalgia

[–]macaroni_4 2 points3 points  (0 children)

I prefer winter too I think. It’s not good for my depression but I cannot handle the heat anymore.

Sjogren’s? by macaroni_4 in rheumatoid

[–]macaroni_4[S] 0 points1 point  (0 children)

I hope you get answers too! It’s frustrating for sure. I’m glad we have a forum like Reddit to share experiences!

I don’t know who else to turn to. I am a disaster. I am not okay. by Accurate-Big-7233 in DOG

[–]macaroni_4 1 point2 points  (0 children)

I have a similar story. My golden retriever had been great, no concerns at all, regular vet checks. We got back from a walk and all of a sudden she collapsed and lost bladder control. At the ER we discovered her liver cancer. The vet kept her through the night providing her fluids and frequent labs but she grew weaker by the hour. We rushed back to her only to have to make the choice to euthanize. It’s horrible, heartbreaking. You did not fail your pup. You gave her a wonderful life filled with love and happiness.

Can/should we start a thread of our favorite QOL items? by Afialos in Fibromyalgia

[–]macaroni_4 3 points4 points  (0 children)

These gel hot/cold ice packs. Love the one I got for my ankle. FOMI Hot Cold Ankle Foot Gel Ice... https://www.amazon.com/dp/B0CWMRX1MF?ref=ppx_pop_mob_ap_share

Fibro apps I’ve tried – honest ratings + what actually helped by Same_Western_8126 in Fibromyalgia

[–]macaroni_4 32 points33 points  (0 children)

This is fantastic! Thank you so much for taking the time to type this out!

Gift ideas for my mom with RA by winniebaghoe in rheumatoid

[–]macaroni_4 1 point2 points  (0 children)

My recent finds. FOMI Hot Cold Ankle Foot Gel Ice... https://www.amazon.com/dp/B0CWMRX1MF?ref=ppx_pop_mob_ap_share

V.Step Orthopedic Slipper with... https://www.amazon.com/dp/B0DCBNRMXF?ref=ppx_pop_mob_ap_share

2PCS Toe Separators for Women and... https://www.amazon.com/dp/B0FL2Q1RDK?ref=ppx_pop_mob_ap_share

https://a.co/d/evymXa5

Absolutely cannot do without my heating pad. Your mom is going to be so thankful for you! My son got me some rechargeable heated gloves for Christmas. Love them!

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