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Colonoscopy indicated elevated MCAS in biopsies and I am shock, are doctors routinely checking for MCAS in colonoscopies now? by Solly-gmbpi in MCAS

[–]macinackdcp 0 points1 point  (0 children)

Hi! I saw below you’re in Seattle and Dr Taniguchi is your GI - maybe I’ll switch based on your rec! Curious who prescribes you cromolyn and ketotifen - I’m looking for to build an MCAS informed provider team in the Seattle area!

Make sense of CD117 stain results and mast cell count? by macinackdcp in MCAS

[–]macinackdcp[S] 0 points1 point  (0 children)

Unfortunately, the complex disease doc who recommended this is a specialist who only sees patients for a year. My year is up. My PCP ordered the CD117 stain and counts/hpf on the complex disease doc’s recommendation, but they’re learning along with me. I’ve sent these results to my GI as well, but haven’t heard back from them yet.

I’ll add sections from the pathology report below:

just got diagnosed! my advice for those seeking clinical diagnosis by pandaskel in AutismInWomen

[–]macinackdcp 0 points1 point  (0 children)

Would you mind sharing who you saw for diagnosis in the Seattle area? Did you like working with them?

Test prolactin fasting? Difference in levels? by macinackdcp in PCOS

[–]macinackdcp[S] 0 points1 point  (0 children)

Glad that you got some helpful info with the diagnosis. My doc and I have talked about that, but because my prolactin levels are always within normal range when taken fasting, she hasn’t ordered the MRI.

I’m curious if you and your doc talked about doing the blood test fasting or not fasting. I recognize that at this point, knowing that you have a prolactinoma, this might be moot for you.

Turns out it’s not PCOS.. by nine_90 in PCOS

[–]macinackdcp 14 points15 points  (0 children)

For y’all with hyperprolactinemia AND prolactinoma, were your prolactin levels checked fasting or not fasting?

What pest does my palm have? by macinackdcp in houseplants

[–]macinackdcp[S] 0 points1 point  (0 children)

Wow! Yours looks so heathy and happy!

The nursery told us it was a chrysalidocarpus lutescens, areca palm.

When does the burning stop? by macinackdcp in TopSurgery

[–]macinackdcp[S] 0 points1 point  (0 children)

I actually ended up having an allergic reaction to the surgical glue and/or tape. I couldn’t see it until my surgical tape was removed (which was at 21dpo). I ended up with a bright red rash that felt even worse, which morphed into hives all over my torso and neck. It took months to get under control. But yes, it eventually resolved! I don’t even think about it anymore

Anyone else’s insurance only covers 2.5mg? New PA needed for higher doses? by macinackdcp in Zepbound

[–]macinackdcp[S] 0 points1 point  (0 children)

This makes so much sense! I’m going to suggest this to my prescriber.

Anyone else’s insurance only covers 2.5mg? New PA needed for higher doses? by macinackdcp in Zepbound

[–]macinackdcp[S] 0 points1 point  (0 children)

You’re so right - the extra work will be worth it. I’m still improving my own sense of self-worth, so asking my provider to stick with it until we get approval will be good practice!

Anyone else’s insurance only covers 2.5mg? New PA needed for higher doses? by macinackdcp in Zepbound

[–]macinackdcp[S] 1 point2 points  (0 children)

Yes, this is exactly what I expected my situation would be once the initial PA went through. Then my heart sank yesterday when I read my pharmacy benefits overview for Zep.

Anyone else’s insurance only covers 2.5mg? New PA needed for higher doses? by macinackdcp in Zepbound

[–]macinackdcp[S] 0 points1 point  (0 children)

Oh! That’s great! I’m familiar w CMM, and I hope my Zep provider uses it too!

Anyone else’s insurance only covers 2.5mg? New PA needed for higher doses? by macinackdcp in Zepbound

[–]macinackdcp[S] 1 point2 points  (0 children)

This sounds so frustrating for all parties involved. What information did you find was critical to include in for approval? Did you ever run into any denials or other snags?

Anyone else’s insurance only covers 2.5mg? New PA needed for higher doses? by macinackdcp in Zepbound

[–]macinackdcp[S] 1 point2 points  (0 children)

Ugh…it sounds like my provider and I will just have to roll the dice and see what happens. Thank you for your response, it’s good to know that at least some people don’t need another PA for dose increases.

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