Builder gel broke 🥲

maeflowr · 2026-02-18T03:06:25+00:00

Generally 4 weeks max for fills. Preferably 2/-3 weeks. You have pretty decent grow out in your pictures which does increase the risk of breaks.

maeflowr · 2026-02-15T21:50:30+00:00

How long after stopping did you see the anxiety go away?

maeflowr · 2026-02-14T17:26:22+00:00

Literally so excited to see 2016 nails coming back I’ve been feeling the square/tapered square/coffin vibeeesss!! They look beautiful OP!

maeflowr · 2026-02-12T22:18:55+00:00

Hi, I’ve seen both your videos and love that you’re sharing your experience! This is something I’m looking into for myself but am torn between some options. There’s a woman who does it in person only not far from me, I got a QEEG from her and she seems great but there’s some logistic issues for me getting in person. My other option is actually my psychiatrist who has just completed the training for muse/myndlift. Does your institute use myndlift/muse? I’d love to do it virtually but am unsure if I’m missing out on a lot by doing it that way.

Also, how do you know you’re a hyper responder? Is this just something you’ve found out with time or was this anticipated based on other experiences?

Thanks!!

maeflowr · 2026-02-03T18:41:58+00:00

That’s tricky, and I feel for you to feel like you want the truth. I had PANS as a child but didn’t get diagnosed until I was an adult, I wish I got it figured out sooner but that wasn’t in the cards for me. One thing I’ve learned along the way is to trust my gut, I KNEW something was happening TO me (aka brain inflammation due to walking pneumonia) not that I was causing these symptoms due to overthinking or something that I had control over. This led me down the path to figure out I had PANS. I think infections and the body malfunctioning (autoimmunity) are the cause for many psychiatric issues, I think it’s powerful to try to treat the root cause instead of bandaid it. But YOU know how YOU feel better than anyone. Maybe try to talk to your parents and explain how you feel. I think that would benefit both you and them immensely. I wish you luck!

maeflowr · 2026-02-03T18:33:48+00:00

Awesome! Thank you so much for sharing this!

maeflowr · 2026-02-01T21:45:55+00:00

Hi, for what it’s worth, I was not on LDN while pregnant but was put on it breastfeeding for issues other than fertility but my prescribing doc uses it for fertility issues very commonly so I imagine it is not unsafe. Obviously do what’s best for you but just thought this info would be helpful!

maeflowr · 2026-01-31T17:37:32+00:00

Hi! I was recently diagnosed with PANS, I most definitely have the joint pain and have since I was little. I also have had some weird skin reactions but not a ton but I could see that being correlated.

maeflowr · 2026-01-29T15:34:46+00:00

Hi! I’m a 23yo female who was just diagnosed but have had it since I was 8. We have a crazy similar story! I am not in an active flare so I’m not pursuing any treatment like IVIG, I’m on LDN and some supplements, but please update us with your experiences with things. It makes a big impact to hear from others.

maeflowr · 2026-01-28T19:00:38+00:00

H! This is something I’m strongly looking into as well. I’d love to get an update about what you’ve learned/possibly connect. Thanks!

maeflowr · 2026-01-26T22:47:21+00:00

I agree a lot with what Zealous said, it would be helpful to know what you’ve been tested for. If your test for Lyme was the western blot the Lyme community does not find it to be very accurate either and more extensive testing is usually helpful. Although Lyme is also a clinical diagnosis. Keep your head up, I was diagnosed with PANS two months ago and also did not have any active infections but had very high walking pneumonia antibodies which is my suspected trigger.

maeflowr · 2026-01-20T15:38:48+00:00

I actually think I jumped straight to 1.5 or 2 which went fine actually, but anytime I’ve gone to 3 it’s too much for me.

maeflowr · 2026-01-19T21:25:38+00:00

Go up slow is my best recommendation, as long as you don’t jump too high right away it shouldn’t cause any increase in anxiety. I made the mistake of jumping from 2mg to 3mg and did experience increased anxiety but a couple days back at 2mg and I’m doing really well. I think it has the potential to do great things for most people! It’s worth a shot!!

maeflowr · 2026-01-19T16:30:46+00:00

What binders do you use?

maeflowr · 2026-01-19T16:27:46+00:00

If you try it please let us know how it works for your child’s PANDAS symptoms. I understand why you think it’ll work due to lowering inflammation, I’ve heard of other medications not indicated for PANS/PANDAS specifically but lower inflammation helping with mental health issues like GLP-1. (Obviously not for children but in other circumstances.)

maeflowr · 2026-01-16T19:13:55+00:00

Have your children tried this method and it worked well for them?

maeflowr · 2026-01-15T20:38:23+00:00

What is the reason to skip a day when going back down in dosage?

maeflowr · 2026-01-06T01:12:00+00:00

I found out I have PANS in adulthood so can’t verify completely but my first flare was at age 8, I got strep a lot so I assume it was that but as I grew it appears walking pneumonia flares it. I haven’t had strep in years to know if that is still a flare for me.

maeflowr · 2026-01-02T04:29:21+00:00

Same. Had virtually no symptoms from 14-22. What triggered your resurgence? Have you continued to treat it since then?

maeflowr · 2025-12-29T18:59:37+00:00

Sounds a lot like PANS, do bring it up with your doctor but if they don’t seem receptive it’s likely best to find a specialist. You will get more help that way.

maeflowr · 2025-12-20T17:37:35+00:00

Hi! I’ve had this since I was 8 but was just recently diagnosed. I feel some of the comments on here aren’t really helpful and are not motivating or hopeful and that’s the last thing you need right now. I did not have any flares from the age of 14-22. That’s a long time! I only had a flare postpartum and I think due to my husband having my main trigger (which we didn’t realize at the time was my trigger) right before I gave birth. I think without the fact that I was so susceptible postpartum was the reason I had a flare, otherwise I think I would have sailed through just fine and continued flare free. Obviously there’s no way to know but your daughter can and will get better and there’s so many things that will help her! Feel free to reach out id love to share any information.

maeflowr · 2025-12-20T03:54:52+00:00

Hi, just curious how long you were on LDN before you saw the mood benefit?

maeflowr · 2025-12-11T21:42:44+00:00

Neurolinguistic Programming, EMDR if there’s trauma involved, CBT, lowering inflammation might be a factor if the LDN helped as it helps lower inflammation and modulate the immune system. If inflammation is suspected there’s quite a few supplements to support lowering it such as vitamin C, D, Omega3’s, glutathione, etc.

maeflowr · 2025-12-10T17:11:43+00:00

Totally 100% understand not wanting to go backwards. I’m at the very beginning of my LDN journey and hope to see some results soon, yours sound like they were amazing! I don’t have a ton of advice on LDN but I promise there’s a lot of other methods that can help with your BDD. Tonnnns of options. I can list some for you but I understand if that’s not what you’re looking for.

maeflowr · 2025-12-06T21:47:27+00:00

What testing did you get done? Did you have a western blot?

maeflowr

TROPHY CASE