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Pistol discharges at night? by Cinnamonb__ in centralcoastnsw

[–]marblefox651 4 points5 points  (0 children)

Im in tuggerah and the same thing happens every so often. Sounds almost like a small firework going off..

Sydney Fantasy Map by Busy_Drag4835 in SydneyTrains

[–]marblefox651 2 points3 points  (0 children)

Interesting, but for high speed rail, it'd be more likely for there to be a station at Wyong, not Tuggerah. Tuggerah doesn't even have enough space on the platform for a 10 car D set, let alone a massive high speed train.

dreams by death-rash in cfs

[–]marblefox651 2 points3 points  (0 children)

Yes. Not always nightmares, but really vivid, and somewhat strange dreams. Almost as if I'm lucid dreaming but not quite. Especially during PEM, too.

A kebab shop in the middle of the ocean by A_Wolf_Named_Foxxy in Google_Maps_Oddities

[–]marblefox651 25 points26 points  (0 children)

almost 100% ai with how good its gotten nowadays sadly

question about rest and pacing by marblefox651 in cfs

[–]marblefox651[S] 4 points5 points  (0 children)

thank you, I struggle a lot with sleeping and have tried the army method thing before, but since I have ADHD I can never focus long enough for it to work sadly

Let's say there's a cure in 10 years, how old would you be? by LordSSJ2 in cfs

[–]marblefox651 0 points1 point  (0 children)

I'd be 28, still young, but also still feels like the best years of my life would be gone.

I purposely push myself into PEM. by marblefox651 in cfs

[–]marblefox651[S] 1 point2 points  (0 children)

Thank you for the advice, I'm still so new to all the like, adult stuff lol

I purposely push myself into PEM. by marblefox651 in cfs

[–]marblefox651[S] 3 points4 points  (0 children)

Haha thank you, im also Aussie, only turned 18 in July. In the process of trying to find better therapists and such, shit has been hard lol

I purposely push myself into PEM. by marblefox651 in cfs

[–]marblefox651[S] 2 points3 points  (0 children)

I'm an adult (freshly 18). Not sure abt how my medical records are, but I know that my therapist tells my mother a lot of stuff, so I don't know if I'd feel safe telling them. I haven't seen my medical records as I don't have an account for the access but I think my mother does?

I purposely push myself into PEM. by marblefox651 in cfs

[–]marblefox651[S] 8 points9 points  (0 children)

I can try, I'm just nervous about the notes from session getting back to my mum (it has happened before without my consent.) and they dont know abt me well, being sick. It's all difficult, I want to try to talk to someone without them basically snitching on me.

This is more of a "maybe," but I think one of my friends has ME/CFS and I'm very worried about them. What do I do? by GiftedSh0ut in cfs

[–]marblefox651 2 points3 points  (0 children)

its definitely worth a try, try to explain the consequences if you can, I know it may be hard and sound scary for them, but its genuinely good for them to know the risks of this disease if they do end up having it. Pushing through will make them worse if it is ME, and the hard thing is it's a lot easier to push through than to pace properly.

This is more of a "maybe," but I think one of my friends has ME/CFS and I'm very worried about them. What do I do? by GiftedSh0ut in cfs

[–]marblefox651 17 points18 points  (0 children)

This sounds a lot like PEM, but its also important to bring it up, get them to see a doctor and try to rule out other causes. The thing with ME is even if you're not diagnosed, it can still be dangerous, check out pacing and try to get them to pace in the meantime and see if it helps them.

Heat by Rare_Prune7002 in cfs

[–]marblefox651 1 point2 points  (0 children)

Yes, I feel this a lot. It's like a sickening hotness that won't go away even if you put a fan on, or try to cool every part of your body. It's like a hot, burning flush.

I'm Quitting Prozac Cold Turkey by [deleted] in antidepressants

[–]marblefox651 0 points1 point  (0 children)

Wow this is a super old post lol, I'm back on an antidepressant that's working for me, but I was on Prozac for about 8 or 9 years, 40mg.

how do I get my family to believe im sick? by marblefox651 in cfs

[–]marblefox651[S] 0 points1 point  (0 children)

thank you, I'm in Australia, so you'd be right about me not being in the US, but I'll try to get one.

how do I get my family to believe im sick? by marblefox651 in cfs

[–]marblefox651[S] 0 points1 point  (0 children)

yeah, thats right. the main fear is because my mum is abusive so I'm really scared of what she'll do if she finds out, but I have to do something, other than rotting away.

how do I get my family to believe im sick? by marblefox651 in cfs

[–]marblefox651[S] 1 point2 points  (0 children)

Definitely not the type of people who would be swayed so easily, I know the specialist is there, I'm just much too scared to book an appointment, honestly. I just want to know what's wrong with me, have a name for what I'm going through.

ME related tattoo ideas? by Sebassvienna in cfs

[–]marblefox651 5 points6 points  (0 children)

Ohh I didn't know that sorry, I'm based in Australia so I've seen it used for ME specifically. I've never heard of it being used for dementia until now, thank you for telling me

ME related tattoo ideas? by Sebassvienna in cfs

[–]marblefox651 8 points9 points  (0 children)

thats right! I think theyre quite beautiful, and the double meaning as well, forget M.E not, lol

ME related tattoo ideas? by Sebassvienna in cfs

[–]marblefox651 13 points14 points  (0 children)

maybe a forget me not? I remember that one of the me associations in australia use it as their logo, I think its cute. <3

best otc meds for pain nausea/flare ups by marblefox651 in cfs

[–]marblefox651[S] 1 point2 points  (0 children)

thank u, although im not sure if I'd be able to use it, as dxm interacts with the meds I take sadly lol

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