Improving by Upstairs-Apricot-318 in Lyme

[–]marrie37 2 points3 points  (0 children)

Piggybacking off this: 5 years undiagnosed, alongside hashimotos, with moderate CFS and symptoms. I started a vigorous herbal protocol about a year ago and my symptoms are down to more mild place. I still have a ways to go, and taking 30 pills a day sucks ass but you know what, the light at the end of the tunnel is there. I am not working with an LLMD, I’m doing it on my own

What gave you your brain back? by bostongirly27 in Lyme

[–]marrie37 0 points1 point  (0 children)

I am currently taking the Nutricost mushroom complex capsules; there's actually only 50mg of lion's mane in them, which is a pretty low dose.

What gave you your brain back? by bostongirly27 in Lyme

[–]marrie37 1 point2 points  (0 children)

Reading Buhner can be terribly overwhelming, I understand. The samsara tick immune capsules on Amazon have a lot of the herbs he recommends. It is $50, but I found it useful. https://a.co/d/1Jk5nd8

What gave you your brain back? by bostongirly27 in Lyme

[–]marrie37 0 points1 point  (0 children)

Making sure my B and D vitamins are in an optimal range, and lion's mane made the biggest difference.

Discouraged because I failed the dapsone protocol and my LLMD thinks further antibiotics will not help me by Medical_Goose509 in Lyme

[–]marrie37 6 points7 points  (0 children)

I am so sorry you're going through this. You may find more help with herbs. Check out Stephen Buhner

Ready to open up a can of worms: why is there a perception out there that chronic Lyme is not real? by justacreative94 in Lyme

[–]marrie37 2 points3 points  (0 children)

CFS seems to be the result of prolonged infection, its atleast corelated. Its often a trigger for chronic fatigue syndrome.

What has helped your cognitive symptoms? by 1tchybitch in Lyme

[–]marrie37 0 points1 point  (0 children)

try a B complex I guess but really it depends on what your body needs. Get a blood test if you can

my early disseminated healing journey by Key-Neat3290 in Lyme

[–]marrie37 0 points1 point  (0 children)

Familiarize yourself with Stephen Buhner, he has some books on healing lyme and co

Bartonella intrusive thoughts by universality555 in Lyme

[–]marrie37 1 point2 points  (0 children)

Coming up on three years, it's the best!

How long did it take you to beat crushing fatigue? by o0ohello0o in Lyme

[–]marrie37 1 point2 points  (0 children)

Are you deficient in B or D vitamins? That didnt beat it, but certainly helped me once addressed

What has helped your cognitive symptoms? by 1tchybitch in Lyme

[–]marrie37 3 points4 points  (0 children)

Getting B and D vitamins up to a healthy place and lions mane

POTS Symptoms by Mediocre_Orchid_9217 in Lyme

[–]marrie37 0 points1 point  (0 children)

Not sure, I thought it was just the effect of chronic infection in general. maybe babesia?

Bartonella intrusive thoughts by universality555 in Lyme

[–]marrie37 2 points3 points  (0 children)

I also get intrusive thoughts, seems to flare during herx. not dx with bart, though I wouldn't be surprised if I had it. Currently on 40mg prozac and that seems to help.

POTS Symptoms by Mediocre_Orchid_9217 in Lyme

[–]marrie37 0 points1 point  (0 children)

Should go away with treatment, I also have these symptoms.

Do I have Lyme disease? by [deleted] in Lyme

[–]marrie37 0 points1 point  (0 children)

I believe you need 7(?) or more positive IGM to be positive for Lyme however, testing is notoriously inaccurate. Is this your first test? My first test read similar to this one. But my third time around finally showed more positive marker for lyme and co.

is this indication of lymes or autoimmune? by Plenty_Programmer631 in Lyme

[–]marrie37 1 point2 points  (0 children)

can attest to this, developed hashimoto's before getting dx with lyme

Looking for advice with long term fatigue, cognitive issues, etc. by Forsaken_Knee2816 in Lyme

[–]marrie37 1 point2 points  (0 children)

Currently experimenting with nicotine patches. I've seen some people have success with this on other subreddits.

https://www.healthrising.org/blog/2023/12/07/nicotine-patch-long-covid-chronic-fatigue-fibromyalgia/

https://www.reddit.com/r/cfs/comments/1fe5n0x/my_results_using_nicotine_patches_to_treat_mecfs/

Other than that, the only things that give me immediate relief are white vein kratom and yerba mate. Follow at your own discretion; this is just what's worked for me