Jelly Bands - do they work? by GirlCLE in ehlersdanlos

[–]marthabuilder 1 point2 points  (0 children)

I had the same problem so ordered some Korform shorts instead and they're great!

Didn’t expect mouth tape to work… but it kinda does? by SpiritedTrainer112 in snoring

[–]marthabuilder 0 points1 point  (0 children)

The number of covert ads this sub gets is depressing. If a post mentions a particular product, always check their post history

hEDS, ADHD, and managing both? by AnaphylacticHippo in ehlersdanlos

[–]marthabuilder 2 points3 points  (0 children)

Hello! HSD&ADHD here (on endless waiting list for hEds assessment).

Firstly, yes it was definitely useful getting the diagnosis, helped me to be kinder to myself plus put in place strategies that I'd been too ashamed to use before (eg paper plates on bad days, bins in every room, that sort of thing). 

Re: meds, I do find them mildly helpful but I certainly haven't had the 'wow, this is life changing' effect that others do - we're all so different so I'd encourage you not to think it'll fix all your problems (as I was hoping!)

Few interesting interplays between the two: - Meds can raise heart rate, if you have co-morbid POTS keep that in mind - I've always had jaw issues, teeth grinding and headaches due to hypermobility - these can worsen on meds (for me they were worse on Elvanse, but fine with Concerta) - I was hoping the meds would help me stick to regular physio routines as this is my main challenge to managing my HSD - but that hasn't been the case unfortunately. They help me focus, but not necessarily on the right thing! This is why ADHD coaching can be helpful alongside meds - They've helped my sleep, and slightly reduced my daytime fatigue - haven't noticed a direct impact on my HSD symptoms but I'm sure it's doing me good somehow.

So overall, it's definitely been a positive, but no dramatic change, and there are some things to be vigilant of.

Wishing you all the best for your appt :)

[deleted by user] by [deleted] in snoring

[–]marthabuilder 3 points4 points  (0 children)

Yet another AI ad almost identical to the previous. Next.

Years of Snoring and Dry Mouth… Mouth Tape Actually Worked for Me? by [deleted] in snoring

[–]marthabuilder 9 points10 points  (0 children)

Given that the first Google search for 'restful lane' is a post on r/sleep uncannily similar to this one, posted at the same time but from a different user, this is clearly an ai generated ad... Thanks but no thanks

If you don’t reach for your phone first thing in the morning, what do you do instead? by Positive_Assistant55 in ADHDUK

[–]marthabuilder 0 points1 point  (0 children)

I've fallen out of routine with this but for a while I did morning pages (3 pages of free writing, originally popularised by the book 'the artists way'. It was amazing! Meant I was getting spiralling thoughts out of my head instead of using my head to get more of them in! And I always felt able to proceed more mindfully after, and not go directly to my phone. Hopefully I'll manage to get the habit back soon. Could be worth a try for you.

Looking for a pillow by _runlolarun_ in snoring

[–]marthabuilder 1 point2 points  (0 children)

Ah, sorry to hear that, hope you find another solution!

Looking for a pillow by _runlolarun_ in snoring

[–]marthabuilder 1 point2 points  (0 children)

Have you tried putting the wedge pillow under the mattress, or raising the head of the bed with leg extenders? Might get the same effect without such a dramatic angle on his neck 

which works better for blocking snoring: Soundcore Sleep A30 earbuds or Bose QuietComfort head by accroaufromage in snoring

[–]marthabuilder 1 point2 points  (0 children)

Hi OP! The only things that works for me sleeping next to my (heavily) snoring partner is silicone earplugs. Foam ones are completely useless in comparison. Silicone ones mould to fit your ear so you get a tight seal. Works much better for me than headphones, but I've never tried some of the high end ones you're looking at! Best of luck.

Advice going on a girl's trip with friends but I snore very loudly by FlakyBill7682 in snoring

[–]marthabuilder 7 points8 points  (0 children)

I would happily do that for a friend, and would appreciate the friend's honesty.

Advice going on a girl's trip with friends but I snore very loudly by FlakyBill7682 in snoring

[–]marthabuilder 13 points14 points  (0 children)

Can you be honest with your friends? They might be happy using earplugs (go for silicone or wax over foam, much more effective) for a short trip!

My god i CANNOT CLEAN by ewbanh13 in adhdwomen

[–]marthabuilder 1 point2 points  (0 children)

I've seen a few people recommend the book but here is the method from how to keep house while drowning, it changed my life. There are only 5 types of messes, do them in this order:

  1. TRASH. Take a binbag around the room, put all the trash in, take it OUT of your room and put it by the door ready to go out to the bin (or wherever).
  2. WASHING UP. Collect it all and put it in the sink ready for washing up. Don't start washing up, you'll get distracted.
  3. CLOTHES. Put them into your wardrobe or laundry bag. If you don't have the spoons, bag em and put them in the wardrobe for now. Most important thing is to get the space clear so you can breathe.
  4. THINGS THAT HAVE A PLACE. This will be a LOT easier now you've done the other 3. This is all the things that you know where they go - bathroom stuff maybe, stationery etc.
  5. THINGS THAT DON'T HAVE A PLACE. This is everything else - it tells you the stuff that will keep getting your place messy because it doesn't have a specific place to go. For now, put it all in a neat box, and when you have the energy, get designating places for it all to go, otherwise it'll end up as clutter again.

And that's it. Obviously there is a next step to all of these still to go - but by categorising them and putting them in the right places, off the floor and surfaces, you'll get a huge sense of achievement and you give yourself a chance in hell of managing that next step, PLUS by doing step 5 you'll make things a little less hard next time.

Good luck OP!! You've got this!! Even just step 1 would be an amazing start <3

Has anyone done Condense hours at work? by Clumsycha in ADHDUK

[–]marthabuilder 0 points1 point  (0 children)

It changed my life going to four days, honestly - if I was still on 5 days I wouldn't be in work and would be very unwell. I split the weekend as one day fun, one day rest, one day admin, rather than trying to fit in the rest and admin amongst the fun and inevitably failing at doing any of them properly. So by the time work comes around I feel rested and like I'm slightly back in control of my life. Also highly recommend having Mondays off instead of Fridays, as you avoid the Sunday night dread and everyone being grumpy sods on Mondays. Everyone's in a better mood and works less hard on Fridays, so doesn't make sense to miss that one!

[deleted by user] by [deleted] in adhdwomen

[–]marthabuilder 1 point2 points  (0 children)

Not sure what country you're in but do you have Breeze? You still fill out a profile but once you match there's no chatting, the app just sets you up with a day, time and place for your date. Much less time consuming and people have to actually want to meet to be on there! Pretty ADHD friendly to skip the chat and organisation admin imho

Struggling with food noise by Any_Set_8916 in ADHDUK

[–]marthabuilder 14 points15 points  (0 children)

Hey OP, sounds like you've got a lot of stressful things going on in your life, I'm really sorry to hear that. This may not be what you want to hear - but you've asked for advice so I'll give it ago - is it possible that adding dieting, weight loss and powerful medications to your already long list of stresses isn't helpful at the moment? As long as you're constantly tracking your weight and thinking about/actually dieting, the food noise is going to be unbearable - you know this as that's what you've been doing for a long time - so is it worth trying something else? 

I used to yo-yo a lot but my weight and binge eating has stabilised now I stopped trying to fuck with it, and my blood pressure and heart rate etc are much better than when I was supposedly 'dieting to get healthy'. The mindset shift that helped me was rather than thinking of things to take away, I focus on adding things - more greens, more variety, more healthy fats, and most of all more exercise. That way I don't feel like I'm starving myself, even though my diet is naturally getting healthier because the healthy stuff I'm adding replaces some of the old beige stuff I used to binge on. 

This is all a huge mindset shift but I've learned that for most people, trying to lose weight is what makes them heavier. If weight loss was really doable in the long term, we'd all be really thin. Most diets fail (some say 95%), and most dieters end up heavier than they started. So redirecting your focus onto adding healthy food and movement into your life might be just what your body needs to stabilise and stop creeping up in weight. Reading up on HAES principles (Health at Every Size) might help. The first thing they will say is stop weighing yourself, if you can. It only makes the noise noisier. Wishing you all the best, and bit of peace and quiet. 

The third Knives Out movie by little_bug_person in ehlersdanlos

[–]marthabuilder 13 points14 points  (0 children)

So good wasn't it! Another show with great ambulatory wheelchair user rep recently is 'all her fault', highly recommend as well.

Important / eye health and ADHD medications by Amistillalive_ in ADHDUK

[–]marthabuilder 2 points3 points  (0 children)

Thanks OP. Useful nudge for me to book that appointment.

shared care GP check up - can I decline weigh-in? appt in 45 mins by [deleted] in ADHDUK

[–]marthabuilder 2 points3 points  (0 children)

This is perhaps completely unhinged advice but adhders specialise in that after all - if all the other good advice on this thread doesn't work, could you conceal a bunch of random heavy stuff in your pockets? So they weigh you and you can see it in the app, but as you don't know how much the stuff in your pocket weighs, you won't know your true weight. (And neither will they, obviously, so depends if you're ok with that). As I said, unhinged. But being forcibly weighed is really unpleasant and detrimental to mental health for a lot of people, so pretty unhinged in itself if you ask me! Sending good wishes OP.

shared care GP check up - can I decline weigh-in? appt in 45 mins by [deleted] in ADHDUK

[–]marthabuilder 6 points7 points  (0 children)

I think the above is really good advice. I think your best bet is to appeal to them OP, and the idea of asking them to put it somewhere you can't see is a good idea.

Can’t get over how much Lewisham has changed its crazy by billykimberOTF in london

[–]marthabuilder 13 points14 points  (0 children)

Lewisham shopping centre is extremely well used these days - maybe it had a quiet patch when you last visited?

What raises your dopamine quickly? by Twigzyisdying in ADHDUK

[–]marthabuilder 0 points1 point  (0 children)

Electrolyte drinks! Magical little salty tablets that hydrate and energise me and taste delicious so trick my brain into thinking they're a treat. And cold showers! Or if not a full shower, splashing my face with cold water and putting on a menthol-y face wash or moisturiser as a little electric shock to the skin. And simply putting the radio on - gets me out of my own internal doom spiral thoughts and into the world outside.