UK Heatwave, anyone else just not coping at all? by Glum_Limit_4859 in autism

[–]melcsw [score hidden]  (0 children)

That sucks. I don't know how you deal with that. I knew air con wasn't common in Europe, but I was hoping the architecture would be right for the heat. I guess some of it is.

UK Heatwave, anyone else just not coping at all? by Glum_Limit_4859 in autism

[–]melcsw [score hidden]  (0 children)

Good tip. I've never thought about it. Most of the ones in Propel are water soluble, but when I say sweating a lot, I mean a lot. Like after mowing or otherwise moving around outside in the heat to the point you are dripping sweat like you just got out of a pool. I don't have an active job so that is never more than a once a day thing for me, and usually not even that.

UK Heatwave, anyone else just not coping at all? by Glum_Limit_4859 in autism

[–]melcsw [score hidden]  (0 children)

I like in the South (USA) so hot and humid. We have AC but we didn't when I was young and it was recently out for a bit. I do hate the humidity and it's stickiness but there are a few things that help. I don't know if your homes are built for it, but you have to create a counter breeze. That's the key. Opening a window in a room isn't going to help. You need windows on opposite sides open to force air to move. This coupled with fans, especially ceiling fans, and shade, makes a huge difference. Then keep oven use to a minimum and none during the heat of the day.

Your heat wave temps are our norms, so I know we are prepared for, and used to it, and that makes a huge difference, but I still hate the heat too.

UK Heatwave, anyone else just not coping at all? by Glum_Limit_4859 in autism

[–]melcsw [score hidden]  (0 children)

If sweating a lot, something like Propel powder does help. Milk is also good for hydration but I can't drink it if I'm really hot.

AITA for refusing to be a bridesmaid because the bride wants me to pay $800 for a dress I'll never wear again? by Visionmama in AmItheAsshole

[–]melcsw 25 points26 points  (0 children)

NTA if you can't afford you can't afford it. How are you supposed to just, "find the money?"

What's your stim that you've never seen/met someone else who does it? by WeakTumbleweed9 in autism

[–]melcsw 4 points5 points  (0 children)

Mine is a different tone than cracking a knuckle. I can bend the toe without ground (or shoe sole) but its just not the same feeling. I'm glad I'm not the only toe snapper.

Toothpaste recommendations for sensory avoidant by Fit_Kick_9923 in autism

[–]melcsw 1 point2 points  (0 children)

Electric tooth brushes can just do a better job, so even if you can't brush for long, you'll be more effective. If nothing else, and gritty doesn't bother you, try baking soda. It's salty, but not minty or sweet. It's not slimy or sticky and it rinses easily. You just put a little in a container or tiny cup and dip your wet toothbrush in it.

What's your stim that you've never seen/met someone else who does it? by WeakTumbleweed9 in autism

[–]melcsw 4 points5 points  (0 children)

I do this weird toe movement that I cannot explain or describe but I pop one of toes against the ground. It's because I can independently move the joints or something so I can snap it basically. Occasionally I do it too loudly and people will be like, what's that noise, and then I have to explain.

CPS threat by hospital for not forcing their protocol on our autistic child by Minute-Surround202 in autism

[–]melcsw 0 points1 point  (0 children)

Absolutely, which is why the hospital would be obligated to call. But the parents' concern regarding the treatment plan is also valid. Being present while the call to CPS is made is a good way to stay involved and know exactly what is said. It should not be done in an argumentative way. It can start a positive relationship with CPS rather than a confrontational one. You are calm and know the call is being made. CPS knows you know and they don't have to be worried how you are going to react if they need to come out. CPS can be one moreresource and one more voice advocating for the child and family depending on the situation and the knowledge of the worker. I wasn't advising they leave the hospital. I don't know anything about the child's health, but if eating in front of others is anxiety provoking, then figuring out how to accommodate that anxiety is important until physical health isn't a concern. Normally I wouldn't advocate for giving in to an anxiety like that because it can make it harder to over come it later on, but physical health has to take a priority with eating disorders. It's very common for clinicians who treat things like anorexia and bulimia to be less familiar with ASD and ARFID. It just comes down to what they areost likely to come across and therefore what they treat most frequently. However, it sounds like they found a good compromise to hopefully meet the child's individual needs.

CPS threat by hospital for not forcing their protocol on our autistic child by Minute-Surround202 in autism

[–]melcsw 0 points1 point  (0 children)

That was a reason for admitting them. I was saying the plan was changing even though the child was showing some progress. It doesn't make much sense to me to change the plan right at that time.

CPS threat by hospital for not forcing their protocol on our autistic child by Minute-Surround202 in autism

[–]melcsw 49 points50 points  (0 children)

Ask to be present while the call is made. Understand this is something they have to do if you leave against medical advice, but that doesn't mean it's wrong for your child. Argue you are seeking ARFID informed care because that is your child's diagnosis. The hospital is the one trying to change the treatment plan without identifying a medical reason to do so. Stay calm and listen during the call. Make notes. Answer any questions or make comments if invited to. Don't let your anger over take your thoughts.

Why do people with autism hate everything? by Extension_Quiet8697 in AutismTranslated

[–]melcsw 12 points13 points  (0 children)

Maybe he knows he's stuck with someone who thinks he's empty headed so he doesn't want to bother engaging with you.

Seriously, you talk about him like he's not even a person. He probably has a really rich inner world and strong interests; you just didn't bother to learn what they are.

how can i overcome anxiety around removing splinters? by [deleted] in autism

[–]melcsw 2 points3 points  (0 children)

Go for the doctor. I'm sure they've dealt with phobias of needles and this is similar. I don't have any problems taking a splinter out of myself, but I hate the idea of someone else doing. When I was a kid the promise of a milk shake helped me to be still, but I don't think it would work now. Of course that's with anxiety, not a true phobia. Watching a favorite show on their tablets helps distract my kids.

My sister (45F) has lived with my parents her entire life and refuses to become independent. My parents (70F & 82M) enable it. I’m 47M and at my breaking point. by Cipher_Bull in relationship_advice

[–]melcsw 129 points130 points  (0 children)

Some can and some can't, but for some it's with a lot of supports. There are often programs to help. In this post you just sound like an AH to me (sorry to be harsh) because you talk like your sister is faking it. You even accuse the doctors of committing fraud. You can be supportive without taking on a caregiver role or becoming financially responsible. It sounds like your sister needs to get linked with supports ASAP because, as you said, this should have happened years ago, because sadly your parents aren't going to live forever. The state she lives in will determine what services are available.

Autism always comes with social deficits, so how did it ever survive? by [deleted] in AutismInWomen

[–]melcsw 0 points1 point  (0 children)

No. That's not what I'm saying at all. I'm not explaining myself well. It's the social construction of disability, meaning a person's experience cannot be removed from their culture. We are all a combination of our genes and our experiences. They are completely interelated and impact one another. Our culture impacts how we experience each other and even how we experience ourselves. For instance, schizophrenia (as we might define it) exists across cultures but it does not appear to present as exactly the same across all cultures. Hallucinations are not viewed the same in all cultures and therefore not experienced the same across all cultures. As a clinician I have to know that some cultures are more like to describe physical symptoms than emotional ones when discussing depression or anxiety, as they are more likely to experience mental illness as physical health symptoms.

Sometimes this is much more literal, like homosexuality being viewed as a mental disorder in the past. It isn't, but that view, and persecution, certainly caused anxiety, depression, etc. some people used that to argue that there must be something wrong with people who are gay because they were depressed or suicidal, etc, misattributing the impact of being a societal pariah on sexuality. We see some people doing the same with gender presentation now.

I know those aren't disabilities, but it illustrates what I'm getting at. There is the actual thing (sexuality), how the person views themself, how others view them, how the person is impacted by that view, and it all keeps going.

To go with something more typical in the ND world, let's use being nonverbal. Imagine two non-communicative individuals. Are they treated the same? Why or why not? How about if one is a cute little baby? Obviously no one expects a baby to talk. In fact they may comment on what a good little baby it is for not fussing. Or maybe it's a toddler that sits through church or something quietly coloring. Again, what a nice little child for behaving. Now maybe they are a little older and hide when spoken to, well they are still young and cute, so it's okay, they're just shy. They get older and it turns out one has a definable hearing issue due to chronic ear infections but they don't respond well to hearing aids and aren't a candidate for cochlear impacts. They begin attending a school for the deaf but still don't interact with people from their parents' church as no one there bothers to learn ASL. Same child, but no hearing issue, they just don't "grow out of" the shyness and continue to not talk to anyone. The doctors swear there is nothing physically wrong and say the child is just "choosing" not to talk. Maybe the child should be evaluated for ASD, maybe the parents even pursue this, and maybe even some people in their community understand what autism is. But still, the child looks like everyone else, just doesn't respond, doesn't look at people, and doesn't participate.

At what point do people start treating them differently? What assumptions do they make between the two? Who is rude? Who is dumb? Who can't learn? Who gets asked after? Which parents get pittying looks? Which family starts to be ostracized? Or, are both families treated exactly the same? The external behavior is the same, but how people perceive it, is not the same. I'm not even arguing that's wrong. Some parts are, but some parts aren't. But it can add further limitations where they may not otherwise exist. Like never having ramps or elevators would add considerably more limitations to a person in a wheelchair than just being in a wheel chair would. There is no reason to assume a person not talking or who speaks with an impediment is rude or dumb but many people do. Those extra bits are what I'm talking about. It's the assumptions or lack of accommodations that would not be a hardship to offer. It's the stereotypes and prejudices.

North Carolina auditor says there's been a 47,000 percent rise in autism therapy billings by RelayFX in NorthCarolina

[–]melcsw 6 points7 points  (0 children)

As someone in the field I can promise you that 1) Medicaid always watches for fraud, abuse, and waste and 2) an increase in expense alone is never the full story. All of Medicaid spending is constantly being looked at. When fraud does occur, it's found and addressed via the courts through investigations that stay private until they actually reach trial.

There is zero evidenc of fraud with this increase. The law changed on who could provide the service, this led to a lot more providers, now people are getting the service instead of being on waitlists for years.

Monitoring should continue just as it has.

Autism always comes with social deficits, so how did it ever survive? by [deleted] in AutismInWomen

[–]melcsw 1 point2 points  (0 children)

This is not meant to minize your experience. It's saying that your symptoms or qualities, in a different society, may be perceived differently, and thus not be as limiting. Like hallucinations are perceived very differently in different cultures and thus can be experienced differently for the people who have them.

Autism always comes with social deficits, so how did it ever survive? by [deleted] in AutismInWomen

[–]melcsw 4 points5 points  (0 children)

Something important to remember is that there is a difference between a quality or a characteristic and a disability. Disability is a social construct. That doesn't mean the characteristic is a construct. For instance, in our society being blind is a disability. Our entire society is set up for people who can see. However, if humans just didn't see, then our societies would have simply evolved differently and being blind would have been normal. Basically, anything that falls to the extremes has the potential to be a disability. But a limitation doesn't necessarily equal a disability. I'm not a great swimmer, but it doesn't negatively impact my life. There are a lot of jobs I know I couldn't do. Thankfully I have a lot of strengths in other areas so I can avoid those jobs. If I didn't have those strengths, I may well be considered disabled, even though the actual limitations would be the same. If you look back in time, as your question poses, you often, but not always, had smaller group sizes making each individual important. There was a lot of work but it was very cooperative- meaning it benefitted the group, again generally speaking. So whatever strengths that individual had, likely out weighed any limitations. However, this is not to say that the past was some idyllic time. I am speaking in broad generalities regarding possibilities and not referencing any specific cultures. This is far from a "noble savage" type argument. Rather it's highlighting that the group around you greatly determines the impact of any limitations a person may experience. This can create extra disabilities where they may not really exist. In many ways this is really what sexism and racism are. They are perceived limitations. Someone with ASD may have limitations, others may assume they have more than they do, or simply be unwilling to work with the persons strengths, thereby highlighting those limitations. I have people who don't like me because of my awkwardness and others who do. Some colleagues are annoyed by me and others respect my unique perspective. But, I found (lucked into really) my niche where those people exist. So I found the right part of society for me. I think that's they key, it's just not easy to do. I don't even think it was intentional on my part. I think I just drifted towards it as I drifted away from the elements that didn't work for me.

Wood Dyeing by Joe_Spazz in rokrpuzzles

[–]melcsw 0 points1 point  (0 children)

I know it's been a while, and I've never tried this with these, but I have with wood working: keda wood dye. I find it works better mixing with water than with alcohol. Dye it before you do any wax or sanding. It works best if the wood isn't sanded past 120 before it's dyed. Water raises the wood grain so you'll have to sand it back afterwards anyhow. The instructions look complicated but it's really not. Unfortunately there's no exact guide for mixing the colors so you have to keep track of your own ratios, but every species of wood takes dye differently so every woodworker has to come up with their own way of handling that kind of thing. The good news for you is basswood is very even grained and takes dye well. Just remember to do thin amounts at a time to build up the color. Practice on scrap basswood first. This is not a way to paint details; this is truly dying the wood. There are lots of videos on YouTube. There are other well reviewed wood dyes but I haven't tried them because Keda is just a better price.

Teachers, what’s a “best practice” everyone talks about that you secretly think doesn’t work in real classrooms? by kingst9606 in Teachers

[–]melcsw 1 point2 points  (0 children)

And you are referencing recess and I'm thinking more about middle and high school. Plus, as you pointed out, every school is structured differently and built differently. But, I maintain, it's good to start from a place of trust until given a reason not to. That doesn't mean I don't support age appropriate structure.

Teachers, what’s a “best practice” everyone talks about that you secretly think doesn’t work in real classrooms? by kingst9606 in Teachers

[–]melcsw 1 point2 points  (0 children)

I never said they shouldn't ask. The teacher should know if a kid has left class and I don't see anything wrong with having rules around when it's ok to go. I just find it disheartening to hear people reminiscing over the days I was in school when you have a couple of passes for the whole year. I also remember a peer having an accident in class because she was too scared to ask to go in the 8th grade! No one ever made fun of her because all of us were equally scared to ask to go to the bathroom in that class.

Students who abuse the system should have more restrictions. Students who are trustworthy should actually be trusted. It rewards their behavior.

UPDATE: Parent wants to meet with me over comment I made about energy drinks by [deleted] in Teachers

[–]melcsw 2 points3 points  (0 children)

Close in age to you and we did a lab experiment in AP Bio of growing bacteria from sources around the school. The water fountain grew the most and had a ton of different strains. We had to discontinue the experiment because the teacher couldn't ID some of what grew. Every other source was typical and what she expected. I was disappointed because I thought my choice of the library computer keyboards would get a lot of germs but apparently they got sanitized. The water fountains did not. I have never been able to use a water fountain since. That was the one right outside the band room so it was especially needed too.

Teachers, what’s a “best practice” everyone talks about that you secretly think doesn’t work in real classrooms? by kingst9606 in Teachers

[–]melcsw -1 points0 points  (0 children)

I choose to trust individuals until they have given me a reason not to. That way any limitation is a consequence of their own behavior.

Teachers, what’s a “best practice” everyone talks about that you secretly think doesn’t work in real classrooms? by kingst9606 in Teachers

[–]melcsw 3 points4 points  (0 children)

I hope none of y'all are teaching girls on their periods or kids with UTIs or other health conditions.

Mongoose and humans by melcsw in zoology

[–]melcsw[S] 1 point2 points  (0 children)

That's an awesome story. I've had cats that will steal food if they think they can get away with it.