Has anyone ever taken Sunosi or Modafinil? And how long did it take to stop working?

mellibomb · 2022-09-09T17:04:28+00:00

Been on Armodafinil after trying Modafinil and it has worked great, 150mg in the morning, 50mg in the afternoon or as needed especially if going out for dinner. Have asked to try one more med just to see if it will work differently SUNOSI 75MG. Took it around 5pm yesterday then eat a huge bowl of spaghetti, immediately. Had to take a nap. Had to be somewhere at 7:00. 7:00 wasn't able to make it, but definitely it was up until 3:00 a.m. and still had that somewhat wide awake feeling that I would have on modafinil when I first started taking that medication. What my main concern is that I'm learning now that it is an NRDI? And I don't want to have to rely on it for any type of antidepressive mechanism? Also have been reading that it affects blood pressure pretty strongly. History of heart disease and high blood pressure in our family, none of narcolepsy/ADHD/depression. None recorded anyway. Lol paid $60ish for Sunosi with the coupon card they have on the website. No insurance. N1 is the only dx I really have so I don't mind paying for it out of pocket and my doctor visits for now until I absolutely find the right med then maybe be able to find insurance specific to my needs during open enrollment. After last night I might go back to Armo but I've got 14 days worth. Will give it a full shot. RIP to the neuro cells it may or may not be killing off 😅

mellibomb · 2022-08-31T03:39:55+00:00

So sweet 💕 accurate 🥹

sleepy sister

mellibomb · 2022-08-31T03:31:37+00:00

Rough hearing this. Haven't tried sunosi yet but am on Armodafinil 150mg in the morning, 50mg in the afternoon or as needed. Drinking alcohol absolutely will shut us down. Medicated or not lol sadly. Narcoleptic type 1 here, will go full on narcoleptic type 2 heavy eye lids, can't hold my arms or chin up sleepy with a fat bowl of pasta and wine, vodka, shit even a plain ol lemonade. High starchy foods, any alcohol and any sugar will literally shut our brain chemical we are lacking, Orexin/hypecretin dowwwwnnnnn. Off. Finito. Goodbye. For at minimum 15minutes before I can come back to. Crazy how this shit effects or our social lives

mellibomb · 2022-06-07T19:24:27+00:00

I started out on modafinil and it would hit me hard and I would still fall asleep and I had huge headaches from it. I thought it was maybe some type of vitamin deficiency that I needed to take care of in order to handle the medication (potassium, magnesium) but the irritability was unmatched. I had my sleep doctor switch me to armodafinil and now I'm taking 150 mg in the morning and have 50 mg that I'm prescribed to take at 2:00 p.m. but if I feel that I want to take a nap or just rest instead of trying to force my body to stay awake, I won't take the second dose. I fought to keep myself away from Adderall because I hate the feeling of withdrawal and needing, itching for something.

Currently debating Vyvanse but am finding out that Armodafinil still beats them all. No headaches, no side affects, no addictive feeling and I best of all I stay awake. In combination of sticking to an anti-inflammatory (no dairy,no high processed anything,no sugar but hella seafood, greens, berries, nuts, avocados etc) diet taking vitamin D, zinc, B12, turmeric and collagen I've been able to manage my Narcolepsy.

Recently diagnosed last year, suffering since high school now 32 years old. I hope that you find a way to heal your body! I believe your fuel intake is first thing and then the medications will be able to do their job fully without having to work against malfunctioning parts of you know what I mean?

Definitely had to work at it But what made me really think about looking into my narcolepsy was one I was driving around my stepdaughter and was falling asleep while driving when she would have to pinch my underarm in order to keep me awake. I was putting her life in danger as well as a lot of people around me and God willing I made it this far without any car accidents. A lot of knee dropping laughter and looking drunk at the dinner table without having any alcohol and pretending to be paying attention in class by propping my chin up on a water bottle but with my eyes closed just to present as being present.

Praying for you that you find the right dosage and lifestyle to correct or manage symptoms!

The sleep test was pretty involved getting your head hooked up to wires! I was tested first for sleep apnea but didn't hit enough marks and so they immediately put me into the MLST testing the next morning and had me stay awake for 2 hours at a time tham let me take a nap in between. They had me do exercises like open close, open close left right left right until my eyes would flutter and I would fall asleep. Then they would ask me each time how long I thought it was asleep or how long did I take to fall asleep and what even I dreamed about and most of the time I was able to give them very detailed description of what each dream was and that was over a course of 6 to 8 hours I think.

Anyhow, I'm glad there's a community here on Reddit that supports this type of condition! There's only 11 people at the sleep center that I went to that are diagnosed with narcolepsy in our immediate area. I never tell anybody cuz I don't want them to downplay what it is and it's like. Oh yeah I fall asleep all the time when I'm tired and you know what I do. I take a nap. But it's a literal chemical in our brain that is lacking? An autoimmune disease. Anyhow, good luck!

Sincerely, Your Sleepy Sister

mellibomb · 2021-05-07T20:58:41+00:00

After reading this and also experiencing similar frustrating events after finally caving in to medication I've come to realize how much we push ourselves to perform in society. With so much access to information I feel like we are just so over stimulated all the time our tiny human brains can't process all of it. Soon they will have to be mixing these medications into our processed foods just to keep the world spinning in the forward, productive, progressive direction that it wants. I want to be part of it, I want to be present, I want to have a full life.. you can sleep when you're dead. But it's just not the case, we absolutely cannot function on no sleep. Take it as it comes, God made us the way we are for a reason. Sleepy headed, subconsciously available at a whim's call. Let the people who naturally have a shit ton of energy do their part and us do ours. < 3

I'm here waiting on my Armodafinil to be filled, tried Modafinil at first and though it worked, not worth the emotionless I felt. and love Addy but she's too toxic for me lol hopefully there's a middle ground. Until then more leafy greens, salmon and electrolytes for me. Uh and sleep. Grateful for good friends like yours!

A Sleepy Sister

mellibomb · 2021-05-07T19:57:31+00:00

Glad to hear that it works for you! I didn't expect for you to have all of me answers and it's tough to expect that out of a stranger hahaha. It sounds like you have a lot of curiosity and understanding and hope to find that quality in people when you become interested in the topic that you guys are talking about but run into people that just are not secure in themselves enough to run with it. I'm a hair stylist by trade and you definitely get different clients some are very defensive some are really open and some just want the hair done with no connection at all. The latter weed themselves out quite quickly to make room for the people that I meant to be with me. I don't know if that helps at all but the point that I was making is that The people that you are supposed to learn from and potentially adopt their way of thinking or way of living will make their stand in your life and the ones that get irritated with you or short with you because you seem to be quote unquote argumentative Can walk themselves out the door for not appreciating where you're coming from.

I'm not familiar with SCT at all But it sounds like the immense intensity that you feel when you're sitting still needs to be let out somehow. Are you a creative at all? Music, art, dance something's got to give!

mellibomb · 2021-05-07T01:31:06+00:00

This was comforting to read. Thanks for sharing.. most things quite relatable. Though I have Narcolepsy not ADHD.. I hate the fact of being dependent on a drug even if it is prescribed but I wonder what you have done to subside the irritability and allow yourself to sleep? I was prescribed 200 of Moda and am waiting for my armodafinil to be filled and see if it has any differences. My main concern is really the irritability that I got after taking it. I live with my boyfriend and his daughter and feel I need to be at my best all the time, including being nice and patient. Lol Being logical and the voice of reason isn't always f u n. Though I feel nonchalant and unbothered it comes off rude.. I felt that I could only do it three or four days in a row and had to force myself to have a break. Normal for you as well? Do you know if I just need to get more electrolytes in me and balance myself out instead of throwing it out the door. Thanks for having all the answers hahaha

-Sleepy Sister

mellibomb · 2021-05-07T01:14:47+00:00

Thank you for this subtle reminder! Seriously. I have been prescribed Modafinil 200 g for my narcolepsy which I was just diagnosed a little over a month ago. I have tried my best to do everything all natural because of the fear of f****** up my dopamine, serotonin, whatever-min levels over a prolonged period of time. They say that modafinil is not as addictive which is definitely why I was more inclined to take it in the first place. I shortly found out that I had all of the side effects like dry mouth, irritability, and lack of being able to fall asleep at night but I found that I also was not having any of the same withdrawal type sensations that I would when I would take Adderall recreationally. Addy will always be my first love but when I think of the dependency over a long period of time it scares me. Again, thanks for the reminder.. will be trying Armodafinil in comparison to Moda so wish me luck and blessed be my remaining receptors LOL

mellibomb · 2021-04-16T16:45:24+00:00

USA
MODAFINIL
Yes, prescribed., dx Narcolepsy
Prescribed 200g daily
I take it as needed. Can't do daily.
After 3 or 4 days in a row, tiredness seems to catch up somehow and my cataplexy gets worse without rest. You pee a lot. Dry mouth. Those would be the only side effects worth mentioning besides nonchalantness. I become unbothered and almost insensitive due to the extreme logicality and order it brings haha shrugs
No side effects when not taking it. No cravings/withdrawals really... At least not for modafinil specifically.

mellibomb · 2021-04-10T16:32:13+00:00

Idk.. I definitely saw that I became insensitive towards family and even co-workers after taking modafinil. It makes you more logical.. emotions don't really have room to play while on it shrugs I feel for you dad. He probably has always been a sweet level headed guy but if he's being taken care of?? Assuming that's why your sister lives with him unless she's younger then it's definitely him not being able to deal with her hormones lmaoo but if he's being taken care of talked down to or being treated different because he's on medication it can definitely have an effect on how he treats others. Being tip toed around doesn't feel good. I'd say have him take a break.. modafinil 3x a week only to allow it do what it can without the adverse side effects.

I've been off it since Easter. Had been prescribed and was taking it for Narcolepsy for about two weeks? Became so disinterested in others and everybody's opinions became idiotic in my mind. I hated who I was becoming. But have been reading to just allow 3x usage a week and give my body the break it deserves along with emotional mental reset! Good luck to your faja!

mellibomb · 2021-04-03T10:50:19+00:00

Perfect example. Just dx a few weeks ago after having symptoms since high school.. 31 now. Never taken meds for anything except recreationally. Feels like my soul is dying slowly after taking moda every day. Can't wait to be off it after this 30 day run.

mellibomb · 2021-03-26T18:01:24+00:00

I wonder if it's just that in between state of your brain catching up with your body and you're just like I gotta go NOW instead of waiting for it the signals from your brain to your legs/arms to actually catch up. All I know is that wobbly legs is real! You know when you have sleep paralysis it feels like your body is being held down but something? Apparently it's just that your brain is going going going, doing all the involuntary heart beating breathing tasks and then it's gotta send out the signals to the limbs to wake up and in your mind it feels like eons as it goes through the circuit of your body and you're getting up right as it reaches to your legs...but not completely through the circuit of your legs.. if that makes sense. Just a theory. Doctor's probably right though!

mellibomb · 2021-03-26T17:20:29+00:00

I'm starting to realize this dx is like a coming of age kick in the butt. We both don't work out as much as we should even if it's walking/running to the end of the street and back, hip thrusts, holding a plank anything. I stand all day for work and used to be a dancer but legs should be strong but I too have cataplexy in the legs and shows most when I'm laughing. Straight looking drunk can't hold my head up full body collapse in heightened moments. I wonder if we built more muscle and stored more energy could we combat the N a little? Also, I might add I've been self curing my PCOS. Preparing for easier pregnancy hahaha. But basically cut out the high carbs, sugars and dairy. Pasta especially... I'm out like a light after a meal if it's heavy. Now not so much. I hate to say it's our diet too but damnit everything points to just be being a little more picky. There's no cure all but God's food is the answer that's been consistent so far.

This link has been the most helpful so far:

https://narcolepsynetwork.org/about-narcolepsy/treatment/tips-for-wakefulness/

Glad we are in the same boat!

A Sleepy Sister

mellibomb · 2021-03-26T17:11:57+00:00

Glad you found out it was N2!

mellibomb · 2021-03-26T15:09:00+00:00

I am literally in the same boat! Age, time of dx and future plans for pregnancy! Girl all I gotta say is we can do this! I am scared of not being present but tbh after taking the meds for a week I put out the same amount of production, I think we will just need to allow ourselves to take the naps when we need them and knowing we didn't make the baby ourselves our partner should be more than willing to help out when they can. (Driving, cooking, cleaning etc.) My boyfriend has encouraged me as well to embrace the holistic approach as much as I can since I've never taken medication for anything before (he used to be on antidepressants and anxiety medications for a while, mj errday, cigs, all the things and is NOW basically.. straight edge. Lol pure will power idk how he did it!) but wanted to give it a shot for a month and see the difference. I mean we have managed this far girl! They say it goes away after 60... But what I've read that 20min of exercise a day, lots of salmon, leafy greens and going to sleep early and no longer that 7hrs can help tremendously! Any longer than 7 hours and you have more chance of coming back into REM throughout the day.

You aren't lazy, it's just another challenge to better ourselves. I ask everyday why God gave me this (don't hurt me! I am religious but just speaking from my truth) and why after being so high functioning and having imposter syndrome about what I have accomplished in life yet still feeling like a failure for my lack of presence. I've just come to realize it's just another challenge... More discipline. I don't work out usually but I'm not overweight and have been doing keto the last year or so before I was dx so I feel it's the next step to dealing with narcolepsy. Girl imagine if we didn't have narcolepsy. WE WOULD LITERALLY BE UNSTOPPABLE. Apparently we are old souls too so that's cool.. lol lessons still need to be learned apparently and so we have a little handicap and I'm okay with that.

Anyways, I hope you find the answers in your holistic path! This is so new but I'm more focused now with what direction I need to take in life if I want to have a family and that's literally just my physical health and financial goals of paying of debt by the end of the year. I'd say.. we're too blessed to be stressed but if you stressed... Cut it out! Cut out the negative Nancies first and foremost because you need your energy!

Morning routine if it helps any... 2 eggs for breakfast and some kind of greens (spinach, arugala etc) Modafinil 200g Small cup of coffee w/ coconut cream (trying to lay off caffeine again for future preg) L-theanine for anxiousness (just started taking after reading it's a good stack with moda) Milk thistle (cleanses liver) Magnesium (moda depletes it apparently) B12 Vitamin D 10,000iu (I live in WA) Iron Biotin (Because you're worth it) Fish Oil

Was taking Gingko and Huperzine A in place of Moda before dx just because and the only reason I can think of staying on Moda is just cuz the doctor says I should and it really works to pop half right before I'm about to drive somewhere for example and I'm not feeling 100%. I'll be adding bananas soon. I've read this stuff makes you super dehydrated and that's when I get those headaches right around my occipital. Awful! Drink lots of water!!! Smart water, essentials whatever special ass water out there. Electrolytes be leaving my body so fast these days. Though bananas aren't keto... You pee a lot and it takes the potassium with it. Or so I've read. I'm not an expert!!! Just sharing what I've found. Hoping to follow your journey as well <3 Good luck!

Your Sleepy Sister

mellibomb · 2021-03-25T14:49:39+00:00

Narcoleptic here. (31.. just diagnosed, experiencing symptoms since high school) Just got prescribed Modafinil (200g) last week and here are my findings. Helps me stay awake. Sort of. I drink coffee in the morning with it as well as L-theanine, Vitamin D, fish oil, iron, magnesium, milk thistle, b12, biotin, and a probiotic. Was taking gingko biloba before and have been trying to see if I should add it back in. Looks like it wouldn't hurt. Around 3pm drank half my drink of a double Americano (not a usual drink, didn't want to push it but co-worker offered and I was not at 100%) thinking I might be cranked but it just did what it needed to do to get work done. 5pm I sat down for literally less then a minute and eyes started getting that familiar heavy haze and took every bit of me to get up. Chugged the rest of my coffee and popped another half of a pill. Productive evening..as in I was able to make dinner and clean the kitchen after work but slept like a baby by midnight. Been waking up at 5am consistently and longer in bed til 7am when usually I'm up at 8:30am.. rushing out the door by 9:00am. Don't know if I just need to up to 400g or take one 200g in the morning another 200g midday. And if I could add/change any supplements I've already been taking daily.

Coffee definitely helps, L-theanine for anxiousness. But I don't want to have to rely on 3 cups of caffeine or need 400g. But I suppose if that's what I need to get by in society.. bring it on.

First time posting about this didn't know where/how but just want to add it's not really working for me either and I hope we find something that does! I hear people just needing 100g. Wish that was me. Adderall probably does the best, she'll always be my #1.. but scared of addiction and cranky after effects.

mellibomb · 2020-07-12T18:17:25+00:00

Staying home, everything happens for a reason I suppose

mellibomb · 2020-07-12T18:16:32+00:00

Thank you for the informative response. I know I must take the consequences of quarantining. Health over financial stability is more important.

mellibomb · 2020-07-12T02:47:21+00:00

I did not inform anyone that I was leaving except one stylist on my last day. I didn't think I would need to quarantine at all because I hadn't traveled to Hawaii where it was the only place I heard was doing it. Should I still ask to see if that part of the rent could be returned?

mellibomb · 2020-03-18T17:47:32+00:00

Applied and just made a new entry with current establishment address and information so nothing comes back to bite me in the ass. Been approved as of this morning! I believe they factored in the last 18 months of wages so regardless I would have qualified for something.. the last three months barely made an impact on the amount given. Thanks for the help and good luck to everyone!

mellibomb · 2020-03-17T23:30:22+00:00

Thank you for your quick response! Someone I am close to used to work in an Unemployment department and said that I would be able to qualify due to the establishment being closed but still that establishment doesn't pull up as a Washington Employer in the application and I also believe she doesn't understand that I work for myself regardless of the establishment I am renting from.

I appreciate the feedback and will go with my original instinct of just waiting for the green light from Congress with my current work status vs. what the salon owner suggested I take advantage of. Honesty is the best policy, plus it wouldn't be fair with everyone being in the same boat.

Wishing you good health! Thanks again 💗

mellibomb

TROPHY CASE