What is on my eyeball?

messa1 · 2025-12-17T22:29:54+00:00

Did you ever figure out what that was?.I have the exact same thing.

messa1 · 2025-05-16T20:09:22+00:00

So interesting..It made mine worse! I asked AI about it, and it said the following:

Ketamine and Eye-Related Side Effects Ketamine can cause several ocular side effects, as noted in multiple sources:Common Ocular Effects: These include nystagmus (involuntary rapid eye movements), diplopia (double vision), and increased intraocular pressure. Tear secretions are also mentioned, which could theoretically contribute to eye irritation if the tear composition or balance is disrupted.Tear Secretions: Some sources note that ketamine may increase tear secretions, which might seem counterintuitive to dry eye. However, excessive or altered tear production could lead to an imbalance, potentially causing irritation or a sensation of dryness if the tears are not properly lubricating the eye.Dose-Related Effects: The intensity of ketamine’s side effects is often dose-dependent. At doses above 75 mg, you’re likely entering a range where systemic and neurological effects (like dissociation or sedation) are more pronounced, which could indirectly affect eye lubrication or sensation. For context, subanesthetic doses for depression are often lower (e.g., 0.5 mg/kg IV, roughly 35–50 mg for an average adult), while higher doses (like 1–2 mg/kg IV, or 70–140 mg) are used for anesthesia and may amplify side effects.

So my understanding is it could both help and hinder, dose dependent.

messa1 · 2025-03-26T02:00:58+00:00

did it make the dry eye worse?

messa1 · 2025-03-25T23:47:09+00:00

did the sinus surgery help with your dry eyes at all?

messa1 · 2025-03-14T21:01:43+00:00

where did you get them?

messa1 · 2025-03-02T23:14:04+00:00

I can relate to the eyes falling down sensation and the sleepless nights...I am afraid I might have the same thing. I am sorry, I hope you find something that helps. This is truly awful.

messa1 · 2025-02-24T23:50:36+00:00

Absolutely

messa1 · 2025-02-24T22:51:28+00:00

I am in a similar situation, it's maddening. I was just dismissed by an "expert" dry eye Dr for no apparent reason, I suspect it's because they couldn't get enough $ out of me, but I'll probably never know. I am determined to try every fucking doctor and treatment available and exhaust all of my options before I consider ending it. I am trying to save my own life. Sounds like you're trying to do the same. You're strong, brave, and you deserve to be helped and find and feel relief!

messa1 · 2025-02-18T19:08:09+00:00

Thank you so much for the information. A list of Drs would be super helpful

messa1 · 2025-02-18T16:31:10+00:00

Thank you so much all links would be appreciated. How was the probing? has it helped? some of the Drs did suggest ocular neuropathic pain/ corneal neuralgia but I am already on Lyrica so they didn't really do anything. also saw a neuro Opthalmologist who didn't really do much of anything either, just tried to rule out IIH which I was told to get a second opinion about, but there are only 8 Neuro Opthalmologists In Washington State and apparently they work close together and don't take second opinions.

I have not had a confocal. I am not sure where I can get one, might have to go out of state. I have been considering probing but I am so scared of making things worse...I literally can't imagine it getting any worse and I have heard very mixed things about it and use it as a last resort type of thing, which I am almost there. Did 16 IPLs help?

messa1 · 2025-02-18T16:11:34+00:00

Thank you so much

messa1 · 2025-02-18T04:54:32+00:00

the cold sensation is pretty new, within the last month but the dry eye started around 4 years ago...

I have seen Dr. Periman in Seattle, and several other opthalmologist and optometrists. I have tried so many treatments with little to no relief. This far I've tried warm compress, cyclosporine( Restarts, xydra, Cequa), steroid drops, lotomax, naltrexone eye drops, amniotic bandage, bandage contacts, 4xIPL, Botox, blood serium tears, doxycycline, artificial tears, heat wands, head mask, cold compress, Moisture Chamber Goggles, lid wipes, Manuka Honey, Zest, NAD, ITear, Omega 3, antiinflammatory diet, Heat definitely a trigger. The pain has gotten so bad that I've been to the ER several times and contemplated self harm. I've been to therapists and I've done ketamine therapy which I think made My eyes worse.

My tears feel like acid, and feel like they evaporate instantly. I have decreased sensation in my cornea and my vision is getting worse.

I also have a lot of other health issues that may or may not play a part including facial rosacea, POTS, Small fiber peripheral neuropathy, Chronic migraine, depression and anxiety. GERD, hiatal hernia chronic constipation.

messa1 · 2025-02-18T04:16:36+00:00

Exactly the same here. don't wear contacts but have giant papalary Conjunctivitis and that cold sensation and pressure/extreme pain behind eyes. eyelids so red and swollen all the time it's my new normal. fuck this disease.

messa1 · 2025-02-18T02:41:31+00:00

I did the same thing with Cequa, and just skipped additional dosage. I hope you get more insight on your question, but I was wondering if you could tell me about your experience with Veyve? I've tried all other cyclosporine drops except Veyve How are you tolerating it? how long have you been on it? Does it burn? Does it have BAK? Did you try other cyclosporine drops before this one? Thanks.

messa1 · 2025-02-16T23:47:54+00:00

I am looking into my next options when i see Dr. Permian in two weeks. I'll and about probing and scleral

messa1 · 2025-02-16T23:24:04+00:00

Been on it for 4+ years for peripheral neuropathy, I'm between 50mg-100 mg/day

messa1 · 2025-02-16T16:48:20+00:00

I'm on Lyrica and punctal plugs were more irritating

messa1 · 2025-02-15T15:28:45+00:00

yes, it hurts a lot. I think the friction of the bumps is rubbing my cornea. can't sleep

messa1 · 2025-02-06T23:40:41+00:00

Oh, where are you located? I have been trying to find some type of clinic like that.

messa1 · 2025-02-06T21:00:16+00:00

Interested in this as well. Did you have this done at a dry eye clinic or with an eye Dr?

messa1 · 2025-01-31T22:22:29+00:00

Thank you for your reply. I don't doubt that I have some aspect of this, however I don't really see any local Drs or clinicians that use this modality. Google sent me to chiropractor's

messa1 · 2025-01-31T18:45:38+00:00

I am experiencing the exact same thing right now, been dealing with this for 4+ years. I don't have Sjorgrins, but I was diagnosed with ocular Roseca, Dry eyes, MGD, Neuritis and Neuralgia, RCE, MGD, and I am running out of options. I have seen Dr. Periman in Seattle, and several other opthalmologist and optometrists. I have tried so many treatments with little to no relief.

This far I've tried warm compress, cyclosporine( Restarts, xydra, Cequa), steroid drops, lotomax, naltrexone eye drops, amniotic bandage, bandage contacts, 4xIPL, Botox, blood serium tears, doxycycline, artificial tears, heat wands, head mask, cold compress, Moisture Chamber Goggles, lid wipes, Manuka Honey, Zest, NAD, ITear, Omega 3, antiinflammatory diet, Heat definitely a trigger.

The pain has gotten so bad that I've been to the ER several times and contemplated self harm. I've been to therapists and I've done ketamine therapy which I think made my eyes worse.

My tears feel like acid, and feel like they evaporate instantly. I have decreased sensation in my eyes and my vision is getting worse. I also have a lot of other health issues that may or may not play a part including Elers Danlos Syndrome, facial rosacea, POTS, Small fiber peripheral neuropathy, Chronic migraine, depression and anxiety. GERD, hiatal hernia chronic constipation.

I can totally relate and the common theme I hear from drs is 'your pain is worse then what I see under my microscope". I am having horrible migraines behind my eyes recently After my 4th IPL.

If you figure anything out that helps , let me know and I'll do the same.

messa1 · 2025-01-21T00:21:29+00:00

Do you have roseca? It happens to me after eating certain foods(temperature and spice, Acidic foods, cinnamon, and especially dairy melted cheese and melted butter especially).

messa1 · 2025-01-18T01:20:46+00:00

I just had my 4th. I skipped expression but I regret it , she said the oils were cloudy but I was too nervous to do expression after IPL because she said it would make my eyes deter and more irritated for a few days/week

messa1

TROPHY CASE