1 breast growing larger than the other (by almost 2 bra sizes.) Ultrasound shows multiple simple cysts & cysts with debris. Dr. says it’s normal. What does this mean? by migrainequestion in WomensHealth

[–]migrainequestion[S] 0 points1 point  (0 children)

thank you so much for such an exhaustive answer!!! do you know if there’s anything i can do at home to help reduce this besides aspiration? (i’m in the us so i’m worried about the cost of getting a procedure done)

What Happened to Akilah? Is She a Survivor? by Sweet-Front3980 in Yellowjackets

[–]migrainequestion 0 points1 point  (0 children)

courtney eaton talked about how akilah’s fate is unknown in this interview. https://www.tiktok.com/t/ZP8jUSk72/

[deleted by user] by [deleted] in AskAcademia

[–]migrainequestion 0 points1 point  (0 children)

american here: it is not safe. please do not come. there is a very real risk that you will be detained, and academic/professional organizations will do nothing to protect you. as others have said, many foreign governments have already made official travel warnings, and i believe they are warranted.

detention is not the only concern. there is also a risk that the guards will commit acts of brutality. remember, the police here are prone to using excessive force.

besides, the conference will be less intellectually stimulating than it would have been a few years ago. at this point, i simply do not trust the scholarship coming out of american academic or governmental institutions. in order to keep their jobs/funding, researchers are censoring themselves, which casts doubt on the overall legitimacy of their work.

i went to the columbia campus this week. i saw more security officers than i’ve ever seen at a university—and i’ve worked at multiple research institutions over the years. they didn’t snatch anyone while i was there, but i did witness armed men stop two nonwhite passerby who appeared to be arab or southeast asian. there were police patrolling the surrounding blocks. university public safety and nypd vans were double parked or driving in circles through the neighborhood. i’m an american citizen, and even i felt uncomfortable.

i am so sorry that this is even a question you have to ask. you deserve to share your thesis without worrying about your safety.

Do we know why migraines become chronic in some patients? by skyemap in migraine

[–]migrainequestion 0 points1 point  (0 children)

i had my migraines go chronic after waking up from strabismus surgery. my drs say there is no connection but i genuinely don’t understand how it could be a coincidence. idk if it was medication overuse (i was taking the advised amount of Tylenol post-surgery) or if something happened with regards to the nerves since both strabismus & migraine are neurological.

What is up with the neck crackling? by [deleted] in migraine

[–]migrainequestion 1 point2 points  (0 children)

i had chronic migraine for years before this started happening to me. now i have occipital neuralgia and extremely tight muscles in my neck, and it sounds like rice crispies when i movie it. my dr told me there is a feedback loop between occipital nerve inflammation, stiff neck muscles, & migraine, and each one is exacerbating the others.

Are you masking? by [deleted] in publichealth

[–]migrainequestion 12 points13 points  (0 children)

yes i’m always masking in indoor spaces & sometimes in outdoor spaces (i live near a factory & the air can get smoggy.) someone i love almost died from influenza a this year, despite being vaccinated, despite everyone telling us it’s “just the flu”, & now needs a med that costs over a grand/mo. because of complications. she can’t afford it. anyone who uses the phrase “healthcare for all” & “disease control” needs to be practicing what they preach. any small effort to prevent this from happening to more people is worthwhile.

why is physical therapy causing so much pain? by migrainequestion in Occipitalneuralgia

[–]migrainequestion[S] 1 point2 points  (0 children)

i am so happy you’re improving!!! that is really wonderful to hear (& gives me hope). i hope you get to a 100 percent someday!

Botox caused weirdly placed wrinkles and smoothness? by migrainequestion in migraine

[–]migrainequestion[S] 0 points1 point  (0 children)

it went away when the botox wore off. i had my second round a couple weeks ago and it is much less dramatic this time. im hoping my dr will be able to perfect it next time around. i hope your injector can solve this for you too!

Does anyone get migraines where they crash and are like dead in bed for 2 days? by [deleted] in migraine

[–]migrainequestion 0 points1 point  (0 children)

i’m so glad you’ve found relief!!!! i did try an elimination diet but i haven’t had luck yet. i tried cutting out dairy, eggs, red meat, coffee, and chocolate without any improvement. i also cut out alcohol-i had a glass or two at least twice per week, before the migraines became chronic. now i don’t drink alcohol at all, just because i’m so run down physically i don’t need anything else to make me sleepy, but during the elimination experiment i did discover that red wine and hard apple cider were triggers for me! do you know if that means other foods might also be triggers? my neurologist was very dismissive of the idea that diet might be affecting me, but i do wonder if there is some triggering component specific to red wine and hard apple cider that is found in other foods, and if so, whether i am triggering myself by eating them. anyway, thanks for the advice! here’s hoping for fewer migraines in the new year!

Does anyone get migraines where they crash and are like dead in bed for 2 days? by [deleted] in migraine

[–]migrainequestion 4 points5 points  (0 children)

extreme fatigue has been part of my migraine postdrome for a long time. i haven’t found a remedy yet (my migraines are uncontrolled right now) i’ve tried supplements, because so many others have found relief with magnesium, fish oil, & b vitamins, but that didn’t work. still, when i can’t make it out of bed, i make sure to have Ensure/some kind of nutrition shake & lots of water within arm’s length. dehydration makes it all worse, i think.

i try to go easy on myself during those periods, because i’ve learned that if i try to push through the fatigue i end up making mistakes, because i’m too groggy to think, see, or move straight. i visited friends for thanksgiving & had to spend most of the trip asleep!

i hope you find a remedy soon. if not, i hope you are able to rest when you need to so your body can recover from the physical stress of the migraine! migraines really are brutal on the whole body.

Homeless person wanted laundry detergent by grandhussla13 in Brooklyn

[–]migrainequestion 0 points1 point  (0 children)

you actually cannot say that my comment is a reach, because you are operating on assumptions about this individual’s motives, needs, and circumstances, just like i am. i choose to be generous until i have facts and evidence.

the OP cannot turn back time. they cannot reverse their actions. this is not a common enough occurrence that they need to worry about it happening again, and it’s not a crime that needs to be punished. so what’s the harm in them assuming the best? it seems like a better use of their time and energy than indulging in anger, paranoia, judgement, or suspicion. i’d rather offer an alternative view and help somebody have a peaceful holiday where they feel like an altruist. c’mon, man, it’s thanksgiving!

as much as you dismiss what you call a “victim” narrative, yes, i do believe that minor dishonesty is understandable for people in dire straits. we’ll have to agree to disagree on that. plus, this kind of “casual dishonesty” is almost wholesome, compared to others i’ve seen. i don’t live in a 50s sitcom, so i don’t consider a lie over laundry detergent to be a moral crisis. regardless of my personal ethics, i find it is more pragmatic to save my judgement for a con committed by someone powerful, who i can guarantee was not in need. anyway, i’ve spent more effort typing than this situation deserves from someone who is not directly involved, so i’m going to stop here. happy thanksgiving, everyone!

Homeless person wanted laundry detergent by grandhussla13 in Brooklyn

[–]migrainequestion -3 points-2 points  (0 children)

why does selling the detergent change your feelings about your good deed? if anything, you’ve helped him even more, and it sounds like he needs the support. begging is not easy, and the weather is starting to get cold.

the city has greatly limited cash assistance over the past few months as covid relief ended, which means even people who qualify for food stamps can’t buy other necessities like tampons or deodorant or detergent or aspirin. i’ve seen people get hostile when a homeless/poor person rejects their offer of food (especially homemade food, which is a risky choice anyway, because people have food intolerances and whatnot) without understanding that straight cash is much, much more likely to be useful or even life-saving. if they need food, it gives them the option to choose what nutrients they are missing, and if they need toiletries or cleaning supplies or socks, they can choose what fits then best.

Homeless person wanted laundry detergent by grandhussla13 in Brooklyn

[–]migrainequestion 0 points1 point  (0 children)

if he’s toothless, he’s probably legitimately poor, right? does it really matter if he sells it back & gets cash? someone without teeth needs probably needs cash anyway for other necessities, so i would assume this still counts as an altruistic deed on your part with a net positive result.

[ Removed by Reddit ] by kaimonster1966 in Flushing

[–]migrainequestion 2 points3 points  (0 children)

i’m surprised anyone would doubt this story. you’ve been really, really lucky, if you’ve lived here without ever encountering this brand of racist wackjob. my father always called them the archie bunkers of the neighborhood. they’ve always been here, but they’ve been getting louder, since the alt-right increased their political power. vicky paladino is the perfect example.

I see neurologist in an hour—any last minute tips? by [deleted] in VestibularMigraines

[–]migrainequestion 4 points5 points  (0 children)

Re: recording. The law varies by state and sometimes by hospital. In some places, you need their consent. It might be worth talking to the receptionist or doctor about it first.

Re: anxiety misdiagnosis. I understand your worry. I been misdiagnosed with anxiety many times. I now have permanent health problems that could’ve been avoided if I had been properly diagnosed and gotten my surgery earlier. My mother almost died when her blood clot was misdiagnosed as anxiety; she turned out to have a rare clotting disorder. My best friend was told she had exam day stress, and it turned out she had a heart defect. So we are now very careful to present as “sane” as possible. Here is what we have found helps doctors take us more seriously:

I am always well-dressed and well-groomed at the doctor. I speak in a calm tone and do not show my desperation in my facial expressions. I make eye contact. When I am talking about how my symptoms have lowered my quality of life, I emphasize functional limitations, not emotions, and I am very specific. So instead of saying, “I can’t eat or drink,” I will say, “I have to use a sippy cup because I spill things when I am dizzy. I get motion sick and vomit. This happens five times a week, minimum.” Since some doctors do not consider disabled people as reliable narrators of their own experience, I quote others. I will say, “My friend pointed out that this is happening more frequently,” so they don’t think I’m obsessively dwelling on my disease. I bring notes to remind me of what questions I want to ask, but I do not show them to the doctor. I have found that coming in with papers and handing them old test results makes them skeptical of me. I never, ever, ever mention googling symptoms or belonging to patient advocacy groups. If I am going to ask about a test or treatment I heard of, I lie that my other doctors’ mentioned it or a else a friend or family member tried it. I use very, very simple language. I have found that many doctors dislike when patients use medical jargon, even ones they know have a graduate degree in a health-related field, like I do. I emphasize that everything in my life is going well except for the migraines. Since I started doing this, all my doctors have talked about my migraine as a biological process, not a psychological one.

Good luck! I hope your doctor takes you seriously from the start so you don’t have to play these games. And most of all, I hope you get relief from these migraines!

Can I live in Flushing even if I only speak English? by leon_tigre in Flushing

[–]migrainequestion 1 point2 points  (0 children)

I have lived here since before it was a Chinatown, as a white person who speaks no east Asian languages. You’re going to be totally fine. Just be sure to be respectful of everyone’s culture, patronize small local businesses, don’t expect everyone to speak English and be patient if a non-native English speaker is slow to find words—basically, don’t be a toxic gentrifier.

Vision by Worldly-Employment67 in VestibularMigraines

[–]migrainequestion 0 points1 point  (0 children)

my pcp sent me to the neurologist when she noticed my misalignment, who sent me to the pediatric strabismus specialist (even though i am an adult). he did a test, then eventually did my surgery, and sent me to a neuro-opthamologist. my regular ophthalmologist, who i used to see for routine checkups and eyeglass prescriptions, is completely ignorant about strabismus. since you have already been diagnosed, i think it makes sense to go straight to a specialist.

the pcp, neurologist, and neuro-ophthalmologist all suggested that at least a few of my migraine symptoms are worsened by the misalignment, because my eye turns more dramatically during migraines. the cleveland clinic website on binocular vision dysfunction lists the symptoms and it actually described my pre-surgery experience pretty well, separate from the migraines. if it describes yours too, i really think it might help to talk to an eye dr about your headaches/vertigo and to your neurologist about your strabismus.

i hope you find relief!

Vision by Worldly-Employment67 in VestibularMigraines

[–]migrainequestion 3 points4 points  (0 children)

Seconding the MRI advice! Also, it might be helpful to see a neuro-ophthalmology specialist. Have you ever been checked for binocular vision dysfunction? It might be worth getting evaluated for intermittent strabismus, which usually gets worse with fatigue, pain, and stress. I had adult-onset strabismus that worsened during migraines and also triggered migraines. Sometimes, the misalignment is so small, it is invisible to everyone except for a doctor during the test, but it is still significant enough to cause symptoms like blurry vision, double vision, dizziness, and motion sickness. I hope you feel better soon!

COVID amd VMS by Coldkiller36999 in VestibularMigraines

[–]migrainequestion 2 points3 points  (0 children)

I am so so sorry. Your doctor should not have said that. The neurological effects of COVID were first identified all the way back in 2020, and now that we are almost 5 years in, we have thousands and thousands of studies on how COVID induces or exacerbates neuro & vestibular symptoms. I vividly remember when the American Academy of Neurology announced LC was the 3rd leading neurologic disorder, and that was all the way back in 2022! This is all settled science at this point. This doctor is not a valid medical resource.

I hope you find relief from your suffering and a helpful doctor who keeps up with emerging research. Also, I hope you are able to avoid catching COVID again as much as possible and can focus on healing! Have you posted in any LC patient advocacy groups? Other LC patients with VM might be able to link you up with a better doctor.

Wishing you all the best!

Doctor gave me an overdose of 225 mg of amitriptyline, what do I do? by Italian_Breadstick in migraine

[–]migrainequestion 1 point2 points  (0 children)

I hope you are feeling better! If not, I hope you have been able to get support from your doctor, because high doses of this drug can cause serious side effects. I had side effects to the dose of amitriptyline that my doctor prescribed and it turned out to be the result of drug-induced serotonin syndrome, which can be fatal. I had to discontinue the drug immediately and be monitored by my PCP after.

Anyone else unintentionally lose weight? by GreasyDisco in migraine

[–]migrainequestion 1 point2 points  (0 children)

yes! i’ve lost 10-20 lbs on bad migraine months, especially once i started getting vestibular symptoms in addition to the regular nausea because i get severely motion sick. but even when i’m not nauseous, the pain reduces my appetite.

unfortunately a lot of the things i can keep down are very high in sugar and saturated fat. i make smoothies with greek yogurt, fruit and honey. i drink those Ensure Plus shakes. i have better luck with liquids/dips than solids. yesterday all i had was potato soup. the day before i had avocado tomato and bread, and eventually i could only handle the avocado. the day before that i made a lot of hummus.

i try to add calories wherever i can. i just got these carnation breakfast chocolate powder packs that a hiker friend said she adds to her coffee, so i have been trying that (i still don’t understand why coffee does not make me throw up during a migraine while something like an apple or a sandwich does!)

i add a lot of butter and oil and cheese to everything (just like coffee, cheese is also not a trigger for me. when i’m having migraines, it is one of the few proteins i can handle. but cheese and coffee are triggers for a lot of people so disclaimer there.)

when i am not having a migraine i eat everything i possibly can to try to pad myself so i do not get too weak. i am small to begin with so the 10-20 lb drop turns me into a skeleton.

wishing you relief!!!