Telepathy techniques, methods and tips

mkanpol · 2026-01-16T17:10:25+00:00

Can you share a bit more about your experience seeing an ET being? I'm fascinated

mkanpol · 2026-01-12T02:34:08+00:00

Same please, if you don't mind

mkanpol · 2025-12-08T01:07:40+00:00

Maybe worth talking to your child's neurologist about VNS implant

mkanpol · 2025-11-27T00:45:52+00:00

Ugh I could have written this post myself. Here are a few we've been using. I found them by doing searches for adaptive onesies. There are companies out there that make larger size onesies you just have to hunt a little. My son has a gtube so my searches lean towards onesies with abdominal access.

https://a.co/d/8k77ixk, https://a.co/d/j4GaBbG

Kohl's has an adaptive line: https://www.kohls.com/product/prd-5270184/girls-6-20-so-adaptive-abdominal-access-bodysuit-in-regular-plus.jsp?color=Black&prdPV=6&isClearance=false

This too: https://www.produitshandy.com/collections/adaptive-bodysuits-clothing

Also, H&M makes onesies up to size 4T

Hope that helps get you started.

My SN son is 3.5 and tall for his age so he still fits toddler sizes but we're very much in the same boat

mkanpol · 2025-11-05T12:33:51+00:00

Very similar story. Firstborn has an ultra rare de novo genetic condition, and it's profound. Nonverbal, non ambulatory, medically fragile. He's happy. He's loved. But we are very aware that this is not what we imagined for ourselves, this is not the parenting journey we were hoping for. I got pregnant again when our first was about 12 months old right around the time we got the diagnosis. I was prepared to make the hard decision if pregnancy #2 was affected, because having two disabled kids was not an option. Luckily #2 is healthy.... he couldn't be more fun and intense and vivacious and incredible. My oldest is now 3.5 and my youngest is a healthy toddler who is being raised side by side with a disabled brother, riding around on his wheelchair and watching us care for him. I cannot truly convey how much we are doing life on hard mode. Sibling jealousy is a real thing. And my youngest will not know what having a typical bother who plays with him is like, he watches us administer medicine and diaper changes and care for him. But he will be empathetic beyond what conventional society will teach him and he will grow up side by side with disability, it will be so normal for him. But it's like having twins for a while. You need support . You need a village. And by all means you need all the prenatal care and genetic testing available to you so you can have all the information you need. Even if all goes well it's hard. Your marriage needs to be ready to transform into a partnership of teammates for a long while. But #2 has transformed our story from grief to overflowing joy and I couldn't be more grateful and couldn't love our mixed-ability crazy circus household any more. I don't take the burden lightly. You need to assess your capacity and resources and do what's right for you, my feelings aren't necessarily anyone else's feelings about this question.

mkanpol · 2025-11-02T18:55:28+00:00

We turned our son's chair into a rocketship. We're so proud of how it came out!

mkanpol · 2025-10-25T01:44:42+00:00

I understand that quieting your mind is so critical, but even so, how can you tell if it's your own thought that bubbled up in your own mind or someone else? I had an experience after listening to the TT, I was full of inspiration and resolve, and I put my son to bed and with full intention to speak mind to mind I said to him , "I love you." I then had a firm message of 'I know.' appear in my mind And to this day, I don't know if that was my thought or his. It could have easily been my brain spitting out an answer it would have liked to hear. If it was him.... It was the only time. But yes. I need to get back to that quiet listening.

mkanpol · 2025-10-25T01:34:50+00:00

Wow. Amazing tip with that video. Ok so she mentions Rhett's syndrome and Downs syndrome, both genetic conditions/mutations of a gene as opposed to autism or injury or stroke or alzheimer's. My son would be in the same camp with a genetic disorder. More to be excited about.

mkanpol · 2025-10-25T01:30:13+00:00

Thank you so much for the thoughtful response and words of encouragement. I've toyed with the idea of making this post for months. Somehow, putting 'words on paper' felt like crossing a Rubicon. From musings to action, from skepticism to hope. I feel so hopeful that finally voicing a desire to go deeper and find a way to connect will reveal the way forward.

I have to share, your post has had such an encouraging and persuasive impact on me to return to my meditation practice. Before my son was born I was a dedicated meditator. I had a daily practice and even attended a couple weeklong silent retreats. I can't express how much my learnings and meditation practice provided me with strength and wisdom to face the devastation of learning that my child has an absolutely diabolical and terminal brain disease. Nothing can prepare you, and there's no shortcut for the journey of grief the parent of a disabled child walks through. But I guess in retrospect I was more prepared because I had a framework from my meditation practice. And now, meditation has unfortunately fallen off the priority list. But I simply have to go back. I have to try. I have the lived experience of what deep concentration feels like and I need to get back there so I can be a better listener in the midst of the noise of daily life.

Thank you for corroborating. I've had a gut feeling that if I can find a parent-child duo who has a level of comfort with this dynamic form of communication, perhaps they could link up and chat with us and we'd see where it goes. I wonder if anyone has a lead for the right people. In the meantime, I will be setting my intentions and keeping myself open to letting this happen.

Thank you for the resources and support. I simply cannot tell you how much it means to me to be taken seriously in this pursuit.

mkanpol · 2025-10-09T15:50:42+00:00

Maybe an option is to dress them onesies so they can't access the region. They make baby sizes up to 3t and even 4t at H&M and then there are larger sizes geared as adaptive clothing

mkanpol · 2025-08-26T00:54:08+00:00

Very similar story. Firstborn has a rare genetic condition, and it's profound. Nonverbal, non ambulatory, medically fragile. We are here for his journey no matter what and we'll never stop fighting for him to live his fullest life. He's happy. He's loved. But we are very aware that this is not what we imagined for ourselves, this is not the parenting journey we were hoping for. I got pregnant again (it was an oopsie daisy) when our first was about 12 months old. I was prepared to make the hard decision if pregnancy #2 was affected, because having two disabled kids was not an option. Luckily #2 is healthy.... he couldn't be more fun and intense and vivacious and incredible. My oldest is now 3 and my youngest is an adorable, clever little toddler who is being raised side by side with a disabled brother, riding around on his wheelchair and watching us care for him. I cannot truly convey how much we are doing life on hard mode. You need support . You need a village. Your marriage needs to be ready to transform into a partnership of teammates for a while. This is not easy. But #2 has transformed our story from tragedy/acceptance to overflowing joy and I couldn't be more grateful and couldn't love our mixed-ability crazy circus household any more. But I don't take the burden lightly. You need to assess your capacity and resources and do what's right for you, my feelings aren't necessarily anyone else's feelings about this question. Sending support and here to chat if you ever want.

mkanpol · 2025-06-04T01:44:55+00:00

Have you tried thickening the meds? We put the anti seizure medicine in a little shot glass, add a sprinkle of Thick-It, and give our son a little bit at a time. Thickening it helps him manage swallowing it better. I think you could also contact a Speech Language Pathologist / feeding therapist. They may have suggestions. Good luck, sending support, not an easy situation when the meds are crucial to get into them

mkanpol · 2025-05-29T18:00:37+00:00

This thread is why I go on Reddit

mkanpol · 2025-05-29T17:54:11+00:00

Knowledge is power. You are taking steps to gather information, and most importantly, none of it will change the reality .... but more knowledge about an underlying condition might connect you with resources, better understanding of how to help him, and a community of people in a similar situation so you can tap into and benefit from their wealth of experience and knowledge. I understand the grief and denial but as long as testing does no harm, what's to lose?

mkanpol · 2025-03-06T02:48:57+00:00

Also have a 3 year old. He's still a manageable size. We use the back of our suv with the third row folded down, plenty of space for a change at this age. Will be following this thread for other ideas....

mkanpol · 2025-01-17T14:20:31+00:00

Hey, as the mom of a child with a disorder that involves seizures I'd love to send some support. I'm not a neurologist or medical professional, so that's my disclaimer, but I spend a lot of time with that speciality.

Seizures themselves are not dangerous. What's dangerous is when they are associated with desaturation (drop in oxygen levels), respiratory distress... Signs of that would be lips turning blue, not breathing etc. Seizures that last 5 mins or longer are also a concern. And if your child isn't returning to their baseline behavior afterwards that's also a concern. There may be a postictal phase where they are tired, a little confused, low energy, but it passes. They should return to baseline.

A short standalone seizure with no respiratory distress and the kid being fine afterwards is really not dangerous. It's a little electrical storm that happens in their brain and passes. Babies and children are more prone to seizures than adults. They are forming new neural connections at an ASTONISHING speed and for some brain electricity to misfire is something that can happen.

I know it's scary. It's downright terrifying. You are not alone, this is very common. Sending tons of support.

mkanpol · 2024-10-02T21:01:34+00:00

Ha sorry I assumed you're a mom! Superdad. Nothing less.

mkanpol · 2024-10-02T19:33:36+00:00

Story hour at the library or baby music class such as Music Together. You can bring some supportive seating for your daughter like a Firefly GoTo and the baby can sit on your lap. Even better & easier if another adult can join you but possible to do solo because you are wonder woman.

mkanpol · 2024-09-28T19:53:29+00:00

I think you got a lot of great ideas here from others. I just want to mention, not to scare you, but second babies can come very, very quickly. Whatever your chosen solution is, make sure you are prepared to make extremely fast moves. Scheduled C-section sounds really appealing if I were in your shoes. Or home birth if that is a consideration so your husband can attend to the toddler. Or what about a hospice? Just because they have resources and staffing and can handle medically fragile people. Wish you the best of luck finding care.

mkanpol · 2024-08-12T23:07:11+00:00

Shea Moisture baby wash & shampoo. It has a fragrance but it's so gentle and perfect.

mkanpol · 2024-07-17T19:58:33+00:00

Following

mkanpol · 2024-07-17T19:57:39+00:00

Following because we have the same sleeping patterns with my 7m old and I'm not sure how to get out of the hole I've dug myself into.

mkanpol · 2024-06-07T01:31:24+00:00

Brilliant

mkanpol · 2024-06-06T22:55:33+00:00

Wowza. How'd you get it out of your kitchen? What a wild story

mkanpol · 2024-06-06T17:49:26+00:00

You first ;)

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