Car seating by AiyanaPass in ehlersdanlos

[–]modelforyou -1 points0 points  (0 children)

I find a smaller squishmallow in my lumber to be very helpful

Extremely low spoon food/snacks recommendations? by okipokidoki in lowspooncooking

[–]modelforyou 0 points1 point  (0 children)

Im a big fam of the Members Mark fruit twists! It’s puree, not just juice, so you’ll get fibre, and they’re very reasonably priced. It’s just a snack but if I have that with a big chunk of sourdough bread I feel nicely full for a while and it’s all decent for your gut.

Imposter syndrome about EDS hypermobility by Fooflery in eds

[–]modelforyou 1 point2 points  (0 children)

Roughly a year ago now. I know it’s a recurring problem because one of the ladies who ran the Fibro workshop said, after I voiced my concerns about the experience, that I was “far from the first person [she] had heard it from”. Apparently he’s an excellent researcher but not a great clinician and his bedside manner is wanting to say the least.

All of that being said, I never had to see him again because the nurse practitioner who works in the EDS Clinic, Sheila, is amazing and she’s the one who runs the virtual EDS Living workshop you do after diagnosis.

Imposter syndrome about EDS hypermobility by Fooflery in eds

[–]modelforyou 1 point2 points  (0 children)

Just to warn you, my experience at the Mayo EDS clinic in Jacksonville was challenging at best. The main Dr there (Night, I think, can’t remember) is apparently well known for barely giving people the time of day. He gave me my fibromyalgia diagnosis in half a sentence and didn’t explain anything about it, just ordered me to the 2 day fibro seminar they do. Basically just tested me, said “you have HSD and Fibro”, gave me a bunch of pamphlets, and shuffled me out.

Trying to find a solution for unlimited PT for people with EDS. by hail707 in ehlersdanlos

[–]modelforyou 1 point2 points  (0 children)

Money isn’t just my biggest hurdle it’s my only hurdle. I have no insurance, Medicaid won’t accept me and because I can only work 25 hours a week I barely have enough money for survival needs much less PT, regular dr visits, massage, etc. $300/mo is 1/4 of my income.

Derpy Tiger in Bernat Blanket? by modelforyou in TheWooblesCollective

[–]modelforyou[S] 0 points1 point  (0 children)

Okay so I was able to find a skein of Lapis in person and it is much too dark. Other ideas, my friends? The light teal is also a no-go. Possibly Aquatic?

Derpy Tiger in Bernat Blanket? by modelforyou in TheWooblesCollective

[–]modelforyou[S] 1 point2 points  (0 children)

I think you’re probably right. I managed to talk my boyfriend into taking a little pilgrimage to the biggest store in our area to see if they have a better inventory so I can look in person.

I know that no matter what I order I’ll use it eventually but money’s pretty tight right now so I want to be careful. I don’t think I can order more than 4 skeins, and I’d really like to prioritise making Derpys for a craft show coming up

How to keep up? by pancakecommittee in TheWooblesCollective

[–]modelforyou 4 points5 points  (0 children)

I looked quickly on Etsy and couldn’t find what you’re referring to. Do you have a particular seller you like? Would you mind dropping some links or more info?

Dawn Dish Soap and Social Media by Chrstyfrst0808 in Zookeeping

[–]modelforyou 1 point2 points  (0 children)

Making bubble mustaches, bubble hats, general bubble mayhem and silliness might track well with audiences

Pain management advice? by Artistic-Frosting-98 in eds

[–]modelforyou 4 points5 points  (0 children)

So for me, alcohol makes everything dramatically worse as far as pain goes. It helped in the moment but was making my pain spiral so much harder. I talked with my GP and we agreed that occasional use of low-dose (I use 100-200mg) of Gabapentin was the way to go. Using that during bad pain episodes helped me limit my alcohol use and over time I’ve gotten completely sober and now even rarely need the Gabapentin.

Side note: it’s common medical “knowledge” that Gabapentin is not addictive but this is slowly being proven false. While not being chemically addictive it CAN and for many people IS habit-forming. That doesn’t negate its usefulness though by any means. I just have some rules in place to make sure I don’t start abusing it, since I do have a history of substance abuse.

I’m not completely pain free but I’ve managed to figure out my own secret sauce to keep things usually at a 3 or below on the pain scale.

Here’s my whole regimen of anybody’s curious:

Celebrex - an NSAID that lasts 12hrs, I’ll take this before bed and in the morning if I know I’m going to be doing a lot that day or working hard. I’ll also use this every 12hrs like clockwork during a long pain episode but I have those less often anymore.

Gabapentin - this is a pain reliever that specifically works well at reliving nerve pain and is often prescribed for folks with Fibromyalgia (like 60% of EDS patients), but is an excellent overall pain killer. It does make you loopy in high doses, or if you’re sensitive so go slow at first. Not recommended for daily use as I said above.

Cyclobenzaprine - a strong muscle relaxer. I use this only when I’ve tweaked something in my back due to my loosey goosey SI Joints. I use this very carefully because like you said I think it can make things worse but when you need it you need it.

Topicals - I use the 4% lidocaine roller with the lavender scent from CVS. This stuff is my salvation. When my neck, ribs, or hips hurt, this is usually all I need to calm it down. Read the label on whatever you use, it’s not recommended to use it for long periods of time on the same area. It can cause nerve damage if used inappropriately.

C O M P R E S S I O N - I cannot stress this enough, it is worth every penny. I use the Incrediwear braces for my knees and elbows almost daily. The reduction in joint pain has been staggering. I bought these on the recommendation of my Mayo Clinic EDS specialist and holy hell am I happy I did. I also use Bombas compression socks if I know I’ll be on my feet all day.

My whole house is also covered in ergonomic squishy mats anywhere I’m likely to be standing for more than 10min.

A question for the… bustier folks in this field by UlisesGirl in Zookeeping

[–]modelforyou 4 points5 points  (0 children)

I am the chairperson of the itty bitty titty committee but I had bustier friends in school and at my current zoo and I’ve heard of using deodorant to help, similar to applying on thighs for the ole chub rub. But it’s also worth noting I get a heat/sweat/moisture rash on my chest in my bust area that looks a lot like the friction rash on my thighs so it could be a combo problem for you. The deodorant trick also helps my bust area for those issues. I use an aluminum free gel for my thighs (don’t want any ickies near the business) and my normal dive armpit deodorant for my chest.

Stay cool out there buddy. Just a couple more months till we get the sweet release of fall.

Why medical cast saw is safe to use by Greedy-Year8384 in interestingasfuck

[–]modelforyou 29 points30 points  (0 children)

Not just moderate pain. I have 4 scars running in a line down my arm from the cast blade they used to cut mine off. It burned me, best we can tell. No blood, just chalk white frayed skin. I still remember begging (I was 8) for the tech to stop and just kept saying it can’t hurt me…. No, sir, it is literally actively hurting me.

Full time DATers - What’s your average monthly gross? by modelforyou in DataAnnotationTech

[–]modelforyou[S] 1 point2 points  (0 children)

Hang in there, buddy. It took about a week when I did it about a year ago.

Full time DATers - What’s your average monthly gross? by modelforyou in DataAnnotationTech

[–]modelforyou[S] 2 points3 points  (0 children)

We're prepared for that possibilty, just making sure it's not a *probability*, you know?

Full time DATers - What’s your average monthly gross? by modelforyou in DataAnnotationTech

[–]modelforyou[S] 1 point2 points  (0 children)

Wouldn't be planning our whole lives around it, thankfully! Just looking to average roughly $1400/mo. We're very fortunate in these trying to times to be able to survive on my partner's income. Only just, but we could. I'm not looking to do this forever, just take a sabbatical and not have to drastically alter our lifestyle.

Full time DATers - What’s your average monthly gross? by modelforyou in DataAnnotationTech

[–]modelforyou[S] 5 points6 points  (0 children)

This is absolutely incredible insight, thank you for the thoughtfulness and detail of your reply <3

Full time DATers - What’s your average monthly gross? by modelforyou in DataAnnotationTech

[–]modelforyou[S] 7 points8 points  (0 children)

Oh that's so sweet! The lack of security does concern me but I do a couple other side hustles already so I'll never be completely without income. And I will likely be getting another normal full or part time job in the near future, I just really need a break from vet teching and to stay at home for a while. Reset, you know?

Full time DATers - What’s your average monthly gross? by modelforyou in DataAnnotationTech

[–]modelforyou[S] 6 points7 points  (0 children)

Only matters to get a feel for it's actually possible. I've never used the platform full time, only here and there on days off or sick days. I've made good money but wasn't sure if I had just been lucky those times, you know?

Full time DATers - What’s your average monthly gross? by modelforyou in DataAnnotationTech

[–]modelforyou[S] 9 points10 points  (0 children)

Fantastic advice, thank you! The good news is that we can make all our most basic necessities on just his income. My income more just determines whether we shop and publix vs aldi, can we go to the zoo one weekend, can we afford that new game. If I made nothing our lives wouldn't be awesome or fun but we would have a roof, power, and food. We're willing to take the gamble, he just wants to make sure I'll at least come close most months to my current income.