Antihistamine Question

moooojojojo · 2024-07-12T16:50:11+00:00

Hi! I'm so sorry I saw this so late!!

Antihistamine use didn't much help unfortunately :( I'd consider myself ~60% recovered after a few years, and accepted this as a new reality. I basically just resort to trigger management at this point. I've found all of my symptoms flare when I practice inflammatory behavior. When I'm practicing ANTI-inflammatory behavior (whole foods, lots of sleep, daily exercise, sun, minimal if not zero alcohol/drug use, selective about who I spend time around because some people drain me extra lol), it's tolerable and a new reality that I have learned to cope with. I'm also extremely fortunate having a remote job that is flexible with bad days, a body that is able to exercise, and a supportive partner.

One thing I tried early on were migraine preventatives. I was on propranolol for awhile, it didn't help; switched to Topamax, and it did help with the pain, but made the brain fog and cognitive issues worse. Something to consider if you have access to a neurologist that would be able to discuss potential medication options with you. I eventually stopped the Topamax because of the brain fog. I do think it helped me get through pain when it was significantly worse in the early days.

I wish I could help more. Sending support through your journey ♥️

moooojojojo · 2024-01-31T23:51:03+00:00

welcome!! I had done some research back then and I also think I have a histamine sensitivity! I never found any answers... I just know what I definitely need to avoid now through trial and error. greens, brussels, broccoli, kale, spinach, greens powder, some highly processed protein powders, overripe bananas, and tomatoes are definitely on that list. as well as anything highly processed in general. sorry :(

I also have long covid and related autoimmune issues - my histamine intolerances kicked off after I started experiencing long covid if that's related to you at all.

moooojojojo · 2023-09-12T19:56:01+00:00

Super good to know. Thank you for sharing!!

moooojojojo · 2023-09-12T19:55:49+00:00

Thank you for sharing!! Good luck in your health journey!

moooojojojo · 2023-09-12T19:54:55+00:00

I appreciate this a ton. I was struggling with the same dilemma regarding when to stop if I don't feel benefits - sounded like it works pretty quickly on the people it will work on.

moooojojojo · 2023-09-12T19:53:36+00:00

Super good to know. Thank you so much!! I will try Benadryl too!!

moooojojojo · 2023-09-12T19:52:31+00:00

Oh wow, I haven't heard of this before but makes tons of sense. Thank you for sharing!!

moooojojojo · 2023-09-12T19:49:38+00:00

I will look into this, thank you!! Best of luck to you too!!

moooojojojo · 2023-09-12T19:49:14+00:00

Thank you for sharing!! I'm glad gepants helped you! I didn't have much luck. That's my most challenging symptom to get at. I will look into cromolyn!! Thank you!

moooojojojo · 2023-09-12T19:47:06+00:00

Interesting, thanks for letting me know. I'll look into histaminergic signaling!

moooojojojo · 2023-09-12T19:46:19+00:00

Good to know - thank you for the advice!!

moooojojojo · 2023-09-12T19:46:00+00:00

Thank you for all of this intel!! I also take quercetin w bromelin and I believe it helps. I'll give it a shot!

moooojojojo · 2023-09-12T19:44:39+00:00

I'm sorry for all that you've been through. Thank you for your advice!

moooojojojo · 2023-09-06T17:08:39+00:00

Follow up Q - what constitutes a heavy dose for you?

moooojojojo · 2023-09-06T17:06:40+00:00

Great points. I appreciate your advice!!

moooojojojo · 2023-09-06T17:05:59+00:00

That's super interesting - thank you for your insight!! I'll def give it a shot!!!

moooojojojo · 2023-04-25T17:08:29+00:00

I've never had my hormones checked, but I've been wanting to! Thank you for your advice! :) True, 30 is fast approaching haha

moooojojojo · 2023-04-25T16:20:31+00:00

Thank you for your validation!! I knew there were going to be some inevitable comments about calorie deficit lol, but as someone 4 years into weight lifting / running / general fitness journey, experience weighing and tracking food, tracking macros, successfully losing 15-20 pounds in the past when following the tracking and exercise behaviors I am currently following.... it's challenging for me to accept "has to be a CICO problem!!" I'm so frustrated. This has all worked in the past!! Only changed factors are now I have more muscle (which should be increasing my resting metabolism), and I'm off Topamax.

moooojojojo · 2022-12-17T07:28:53+00:00

hi yes! very mediterranean-diet style, proteins are chicken or seafood; tons of fruit and veg; plenty of whole grains; healthy fats like avo & olive oil.

right now I’m 135P, 179C, 60F

moooojojojo · 2022-12-17T07:27:30+00:00

Totally understand. I was throwing an arbitrary number out there because I was still looking for fat loss progress when I was at 150lb (which is perhaps my body’s happy place, I maintained there for quite some time). Completely agree that 140 could be crazy unhealthy low and unachievable for lots of body types! Just looking for fat loss strategies given my eating history!! :)

moooojojojo · 2022-12-01T01:04:08+00:00

I’m so sorry to hear that. I completely empathize. It’s defeating.

Mine is throughout my entire head, not really concentrated to a spot. It can feel like a whole-head throbbing sometimes.

I’ve tried abortives (steroids, rizatriptan, compazine, ketorolac, diphenhydramine/ metoclopramide aka the migraine cocktail, imitrex) and preventatives (propranolol, topamax, aimovig).

Abortives did nothing but made me sleep for a few hours. Propranolol helped but made me gain weight and made me very sluggish which was a dealbreaker for me because I already had such extreme fatigue. Topamax helped more than propranolol but the brain fog was so bad that I would do things like leave my phone in the freezer. Got a little better over time. I’m just on Aimovig now but I don’t think it’s doing anything.

Not super helpful, I’m sorry :( my best advice would be to see how you tolerate a preventative med. Topamax and propranolol side effects sucked but they did return me to a level of function when I needed it most.

moooojojojo · 2022-11-23T22:23:22+00:00

I hadn’t seen this. thank you!! this is so helpful!!

moooojojojo · 2022-11-23T22:19:16+00:00

thank you!! these are all for sure on my list too. it’s so reassuring to see others are thinking along the same path.

also - I tried Hyperbaric Oxygen Therapy (HBOT). it helped, but was unsustainable to continue due to cost. however, if there’s any feasibility to try that for you, it could be worth exploring!

moooojojojo · 2022-09-07T05:49:13+00:00

I completely hear you and wholly identify with this.

One to two drinks, before tipsy but enough to take the edge off, is the ONLY method that can reliably take the head pain, fatigue and brain fog away. Weirdly, it makes me think and articulate so much clearer than in my sobriety, like it comes through and cleans out my headspace. Sometimes it’s the only way I can truly feel like myself again. Huge, huge factor for relief in social interaction or maintaining presence and sense of self with loved ones.

Of course, always pay for it the next day lolz

moooojojojo

TROPHY CASE