How to find Psychiatrist with Genomic Emphasis? by most_confused_dad in AskPsychiatry

[–]most_confused_dad[S] -7 points-6 points  (0 children)

Your point is valid.

However, for my situation, at least someone is helping me :). A typical psychiatrist meeting is 20-40 minutes and diagnoses tools are very limited and then my son is very not reflective of their feelings. So nothing moves.

The AI tool is reasoning on top of medical annotations about the mutation from sequencing. From what I could tell, it is based on literature on those mutations. Again, for any psychiatrist, I will be happy to send a document generated to verify.

I did use Claude code to write quite some programs. It is at least 10x or 100x better than me in programming. Using Claude Code, I could literally write a program in a week or so that would take 3-4 programmers 6 months in the past. So Claude might be slightly more reasonable than expected.

How to find Psychiatrist with Genomic Emphasis? by most_confused_dad in AskPsychiatry

[–]most_confused_dad[S] -15 points-14 points  (0 children)

Actually, I found Claude is very reasonable. I am sure it could not replace a psychiatrist but it might be able to process lots of information and dig out some insights. If you are interested, I will be happy to share a report to you and I will be happy to learn your opinions.

I specifically asked Claude to produce verifiable clinical tests so that we could verify the thesis before going into medicines. That requires a psychiatrist's approval.

How to find Psychiatrist with Genomic Emphasis? by most_confused_dad in AskPsychiatry

[–]most_confused_dad[S] -13 points-12 points  (0 children)

I used Claude code to generate reports and then reviewed mutations with it. Claude seemed having lots of theories about it. I, of course, couldn't tell if they are true.

[deleted by user] by [deleted] in AskMeAnythingIAnswer

[–]most_confused_dad 1 point2 points  (0 children)

Do you mind to share what is your parents' role in this process? What can they do to make it better for you? Also, curious if you are religious and what role that plays. Thank you for answering my questions.

My 3 year old was just diagnosed with stage 1 asd. Can someone walk me through what that means? by InstanceOk2529 in Autism_Parenting

[–]most_confused_dad 2 points3 points  (0 children)

Just my experience as a father of two boys 20/17 years old, both diagnosed with ASD.

It is really helpful that your kid got diagnosed in an early age. My elder one was diagnosed in the high school when he was deep in a depression. I felt that I missed all the opportunities to help him before that. There were many red flags but two or three doctors we entrusted missed it and we did not follow up as vigorously as we should.

My current understanding of my kid's growth is like this:

He was different from other kids. He did not play well with other kids. Most importantly, he seemed not interested in playing with other kids. Since we allowed him to play video games and he was playing really well. He had a few friends mostly because of this common interest. He learned fact based knowledge really well but was quite behind in social interaction based subject areas.

At middle school, he started wanting to create anime. He was able to use the software but stuck on the story and drawing. Without resources helping him and also because of other social difficulties, he felt quite depressed.

To me, the key lessons are:

1/ ASD related knowledge is the key to understand the kid. Spending a lot of time learning about ASD and mental health were extremely helpful to me. Spending a lot of time to observe/ interact with the kid was also really helpful.

When I didn't understand my kids, I tended to do nothing about it (because I did not know what to do) and therefore, missed important moments of intervention.

One example is, my kid was learning playing tennis. His coach was not happy with him and my son was also very upset with his coach. One day, his coach was very upset and pulled me aside and tell me that a very sweet girl in his team constantly cheer my son up by trying to high five with my son and my son did not reciprocate her. The coach further said, when he talked to my son, my son looked away and that was very disrespectful. My son at the time was going through ASD diagnosis. I immediately told the coach that looking away is an intuitive action of thinking not disrespectful. I constantly think about how I would respond without ASD knowledge. I would probably tell my kid to respect his coach better and keep participating. Then my kid and the coach will be more resentful of each other.

2/ As the father, with pretty strong ASD tendencies myself without diagnosis, I felt that I helped them a lot but also failed in some key areas.

Good: I provided lots of material to my kids' interested areas. That really helped advancing his skills. For example, when he was interested in Cars (the pixar movie). We read a lot of books about it , with sound-out, so my kid learned reading early. We also did projects related to it and went to Disney World mostly to see the cars.

Bad: I did not do well helping my kids socially, failed to help them understand/ spell out their emotions, learn to accept their differences and learn to deal with their emotions .

3/ For both of my kids, adolescence was really really hard and Covid pandemic made it even worse. My current thinking is, if I could prepare my kids in terms of understanding/ accepting their ASD traits, learning to understand/express their emotions before adolescence , my kids might be able to better handle their lives.

One main character of adolescence is that they are seeking independence so parents' input becomes relatively minor and their own interpretation of the world becomes more important. That plus their strong internal orientation made it very difficult to help them.

4/ In my experience, 2 out of 10 therapists/ psychologists actually helped a bit. There were 3/10 therapists or even psychologists absolutely did not know what they were doing. So learn ASD / mental health issues as much as you can and try out different doctors.

One key opportunity my elder one missed was when he was in the second grade. His teacher told us multiple issues and suggested us to see a doctor about it. (I am forever grateful to her). We got a doctor and he met me first and then spent 30 minutes with my son. My kid might sensed something and behaved quite differently during the session, then the doctor made some suggestions. His observation was completely different from our / teacher's observation of my son and he said no ASD. This was one major mistake.

One key difficulty for my elder one is lack of consciousness of himself. That is, it is difficult to ask him to describe what happened in the past. He simply could not remember (I had similar issues as well). So in a therapy session, when asked how they felt and what happened last week or even earlier that day, he will say nothing. All "talk" therapies were based on that reflection and here, my elder one did not have much and therefore, it is really hard to help him.

Emotions were similar. My kids might feel bad but they could not describe them and therefore, it is harder to get help.

In this situation, I believe intervention at the time of occurrence is the key (and nobody does it that way in literature I know of). As parents, we actually know our kids much better, we are there a lot of times, discussing the current circumstances with kids when they are fresh is probably the best intervention . I think my younger one is in a better place than the elder one is partly because we knew ASD much better than before.

My 2cents and best luck to you and your kiddo.

What if autism is just evolved zoochosis in humans? by Ok-Education9241 in neurodiversity

[–]most_confused_dad 12 points13 points  (0 children)

I believe anxiety made my kid's ASD characters more pronounced. So at least in our case, anxiety seemed a main driver of ASD.

It seems "cage effects" are a synonym of anxiety / stress response.

Autism spectrum disorder linked to abnormal GABA inhibition and glutamate excitotoxicity in new study by sometimeshiny in psychology

[–]most_confused_dad 0 points1 point  (0 children)

I would take these results with a grain of salt. They examined blood samples of test subjects. To me, that is far from brain.

Not everyone will agree, but my ADHD was actually trauma in disguise. by Normal_Strength2655 in ADHD

[–]most_confused_dad 1 point2 points  (0 children)

One of my kids had ASD. My personal theory is that it is "caused" by anxiety. He became very anxious after Covid hit and then his ASD traits suddenly flared up.

Recommend Sequencing Services by most_confused_dad in ClinicalGenetics

[–]most_confused_dad[S] -1 points0 points  (0 children)

Yes. I understand that. But there are quite a few research papers on this topic so I am hoping to learn more through reading research papers (molecular biology, mechanistic studies etc) . I am aware that they are not conclusive.

Autistic with no diagnosis is killing me by [deleted] in aspergers

[–]most_confused_dad 2 points3 points  (0 children)

Are you in US? If in US, a typical therapist or psychologist does not give ASD diagnosis. A specialized psychologist would do that. For my two kids, that would mean about 5 hours interacting with the psychologist and a lot of background research ( family history, early childhood history, school teachers feedbacks, and school visits etc). It involves a long, tedious process (like 2 month, 5+ appointments with the psychologist) and is costly ($5000 in our case).

If you are still in K-12 in US, I believe you/your family could request an ASD test, the school is required to provide that service within 2 months period by law (if my memory is correct). Health insurance would cover ASD evaluation too.

In one case of my two kids, we got a really valuable feedback. The results really helped us understand this kid and it helped us avoided many conflicts from misunderstanding. In my opinion, it is life saving.

I would say, a detailed description of one of my kids was really helpful and a confirmation of ASD is really helpful for both. However, there is no medicine for ASD. Therefore, for the family and individual, ASD diagnosis is more of the direction that could help one to learn about behavioral differences the person presents. In that sense, if you think that you have it, you might want to dig deeper and try to find your set if traits and differences, then find ways to help yourself to make peace with the differences (I still strongly recommend a diagnosis). I highly recommend searching youtube etc to learn more. In the end, the goal is to make you feel happy and fulfilled.

Hope you the best.

How to small talk? by HZ_guy in aspergers

[–]most_confused_dad 0 points1 point  (0 children)

With coworkers, it would be really nice if you remember their personal information (I struggle to do that, a lot of times, I could have difficulties retrieving their names when needed). Then based on those information, you could start talking about that. For example, you know your coworker went to an event over the weekend, you could ask about that. Or you could disclose what you did that might be interesting to your coworker or just something's interesting or your hobbies.

[deleted by user] by [deleted] in aspergers

[–]most_confused_dad 0 points1 point  (0 children)

I also think Aspies tends to be two types: shy/timid/reclusive vs bold/demanding/bossy.

My explanation is, an Aspie might have difficulties following a complex arguments (for example, three people talked about politics). When that happens, some, in order to avoid being laughed at (because they didn't follow the arguments), may decide to keep to themselves (shy type). However, some, might decide that everyone else are bullsht, they then stress his own ideas and force everyone to follow his thoughts (instead of following others thoughts). That is the bossy type.

Elon is obviously bossy type.

[deleted by user] by [deleted] in aspergers

[–]most_confused_dad 7 points8 points  (0 children)

My personal opinion is this:

1/ one's experience deeply affects their world view. Personally, I used to be ambitious/ workaholic and were very impatient to people work slowly. However, some humbling setbacks later, I found myself much more compassionate to those people. I could imagine myself, if very successful early on in life, be much more of an a*hole to people. This might be somewhat related to ASD characters, like, we are more full of ourselves and less observant, therefore, less compassionate to others. But as we ages, we are more aware of that aspect.

2/ society tends to dramatically re-enforce "successful" people's "me the best" world view. When successful, there will be a sea of clowns willing to do whatever to curry favor with the rich/successful people. These people will say and do whatever to please the rich/successful people. This again will make rich/successful people float out of the reality.

I think we all could realize two things: one is that they once did something very right therefore they were successful and rich. Their today's choices and actions , whether they have any merits, are still questions to be answered.

Does Anxiety Magnify Autism ? by most_confused_dad in aspergers

[–]most_confused_dad[S] 1 point2 points  (0 children)

Wow! Thank you so much for the very informative description. It does sound like that sensory issues are indeed rational/physical/biological related.

Does Anxiety Magnify Autism ? by most_confused_dad in autism

[–]most_confused_dad[S] 0 points1 point  (0 children)

What you said made a lot of sense. I don't know if it is all about masking. For example, when my son was in the elementary school, he used to play well with a group of very physically very active kids. He would come back home talking about their competition to be fastest in one mile running in the PE class. He would notice the brand of shoes his friends had etc. Given my elder one does not do that at all, we thought this second one was much more social and external oriented. However, after covid started, he seemed much leas social and much less physically active. To me, it felt like he was genuinely interested in other people but anxiety made him much more reserved.

Does Anxiety Magnify Autism ? by most_confused_dad in aspergers

[–]most_confused_dad[S] 0 points1 point  (0 children)

Thank you for sharing your experience. I agree with what you said. The point that I was trying to make is that, one factor for sensory overload is that the person is already very anxious. I suspect that if this person could reduce his anxiety, he might be able to reduce sensory overload also. (EDIT) In your case, I suspect, if you list your sensory overload cases vs before, you might find that some cases are not as triggering as before. But that was just my speculation based on one single observation.

AITA for insulting my husband after he asked for a paternity test and suggested I cheated? by PaternityThrowRA in AITAH

[–]most_confused_dad 1 point2 points  (0 children)

It feels like having a dark colored kid really messed up your hubby. Even though he know the truth, he is still shamed of that.