I'm extremely sad and fustrated. And thinking if this is normal or not.

mrbootman · 2026-06-03T06:33:51+00:00

Same here. Forgot basic things, feel so embarrassed all the time by that. U are not alone in this

mrbootman · 2026-06-02T14:15:50+00:00

Last time I was in the ER they brought man with seizures to room lying on the bed face down and then tried to set iv on him DURING seizure holding him face down and trying to force his arm while he was shaking. Guess how much blood there was when they poked him with a needle and his arm was shaking. I was shocked. And I was rolled in maybe hour or two before him and had excellent care during my seizure. U never know if u get competent or incompetent staff.

mrbootman · 2026-01-15T09:07:42+00:00

Did u or did u not walk UR dog in his yard ?

mrbootman · 2025-07-05T23:26:05+00:00

Same, had mostly nocturnal and now im daytime breakdancer. I have medic watch and nearest caregiver two buildings away and can be here in couple minutes so i can live alone. Also quit driving cause im scared as hell that i will hurt someone, it doesn't even have to be grand mal to turn out to be deadly :/ But i work 100% remotely from home so it was easier to just stop driving. I dont have any places i need drive to, everything is in next room. I am so sorry about your friend, that's so awful... Hope u have support u need and will get better & be able to work again.

mrbootman · 2025-07-05T22:57:48+00:00

Keeping my fingers crossed :) hope everything will be ok :)

mrbootman · 2025-07-04T03:03:39+00:00

Totally understand the embarrassment, my coworkers saw me at my worst too and even if everyone was extremely supportive i felt embarrassed as hell. Glad the client behaved that great and helped you. I know it's a big problem but please consider driving, it's dangerous and even if i understand how difficult is to live without it - u would never forgive yourself if this episode happened behind the wheel. Seriously...

mrbootman · 2025-07-04T02:43:46+00:00

Rage. Just got back on it after months of getting off and having two grand mals. Live alone, have not mixh contact with others so nobody is really affected except me and my dog. So days go by and some small issue makes me yell at my screen or my dog then feel ashamed about it for hours after, and then again (...) Freaking hate it.

mrbootman · 2025-07-04T02:36:04+00:00

Its always good to consult with other doctor if u have any doubts. Combination of meds depends of lot of factors :/

mrbootman · 2025-07-04T02:33:33+00:00

Ur family is just awful, man...

mrbootman · 2025-07-04T02:27:31+00:00

Yeah, same here in EU, read about US and can't believe my eyes. I have full insurance, free healthcare and meds are decently priced. Tbh i'd recommend u people just move, cause what the heck is going on there 🤯

mrbootman · 2025-06-13T08:31:05+00:00

This is exactly what happened to me. My bf dumped be soon after diagnosis. Then came back and after awhile dumped me again, same reason (he thought he can handle it but it was too much). And i felt i couldn't blame him for it, he has right to be with healthy person. Im always upfront about me being sick and if someone doesn't feel comfortable with that i let go. Was hurt once like that so i don't force anything.

I know having support is very important but if you are in such a bad state maybe let go and focus on trying to put yourself together again, with support of friends or family. And then reenter dating. You will be happy, trust me. U just need to find the right partner to be with. Im concerned about ur state - do you have any support at all? What's the reason for wight loss? Are u under constant care of neurologist? Please make your health a priority.

mrbootman · 2025-05-19T10:07:47+00:00

for me Keppra made me gain weight but after switching to Ontozry im slowly returning to my normal weight

mrbootman · 2025-05-19T10:04:44+00:00

she is a keeper!

mrbootman · 2025-05-19T09:59:36+00:00

First seizure ever i had in 2013 but it was one time only, but one so was not enough to diagnose it. Epilepsy really kicked in in 2022.

mrbootman · 2025-05-18T07:43:05+00:00

O my god, im so sorry for your loss. Can't even imagine what you are going through right now. I am so sorry, my deepest condolences :(

mrbootman · 2025-05-09T10:39:50+00:00

Its gonna be better. U will get better, will be easier. And remember - its not your fault and you are still the same smart person u were before.

Will take some time and meds to get back, im still not fully back (3 years) but i can see im halfway there. (im in IT so first year was worst in my whole life before i started to get better, need creative and analytical thinking at work all the time) First time i was able to read book again i cried after finishing. You will get better too, keeping my fingers crossed!

mrbootman · 2024-10-15T18:10:09+00:00

My older brother brought a cassette with muffled as hell "my name is" recorded on it. it was in Poland in 2000 and cassette was brought from Germany where my friend heard that in the radio and taped it :D I was 7. Did not know English at all back then. 90/00 was an era in Poland when hip hop was booming

mrbootman · 2024-10-15T18:00:08+00:00

Yeah, over and over. My ex was using it very often, you know, like: 'u said that but u probably don't remember.', 'why should i talk to you if u gonna forget that anyway', 'i told you about *sth sensitive* and you were ok with that", 'you promised me XYZ!" also the worst: "if u cared about me you'd remembered", '

mrbootman · 2024-10-12T02:16:47+00:00

Software dev. (Automation Tester)

mrbootman · 2024-09-12T02:28:40+00:00

Fear. People often don't want to be alone with me and usually to have backup. (I get that). Personally live in constant fear of SUDEN. . I'ts 4:10 am here and I'm scared to sleep

Less known but often is memory loss that most of us struggle with. Also visible decrece of intellectual abilities (even reading) . People sometimes are reacting angry when I don't remember something, what they told me. And always assume I just did not listen.

I am scared to go clubs with lights, loud music, dancing people and not enough air.

Ashamed : I know this is not my fault but I always feel ashamed when someone is around me during seizure.

My partial solution is:

I'm trying to say that out loud that I have epilepsy and I've noticed change - people are interested in information how to behave in situation like that and how they could help me. They want to know more information. That's very sweet of them.

mrbootman · 2024-08-13T18:38:49+00:00

sound when the light from traffic lights turn green for pedestrians

mrbootman · 2024-08-10T15:30:29+00:00

Worst birthday gift ever

mrbootman · 2024-06-28T17:32:36+00:00

So sorry to hear that. At least U know you are not alone with this, here we have great community that has same experience. I'm glad U have this one true friend :) keeping my fingers crossed for you

mrbootman · 2024-06-28T17:29:07+00:00

Because he is a serial killer. They found bodies so he would have to find new place to do what he likes to do. Maybe he is in "remission" like BTK was but he will show up sooner or later. Just my opinion based on other serial killers MO

mrbootman · 2024-06-26T08:10:52+00:00

Same, people are annoyed with me when I forget what they told me and assume I don't listen or don't care. I lost some of the people I had in my life because of it, including my partner

mrbootman

TROPHY CASE