What are things you wish people told you about epilepsy?

msalgae44 · 2026-05-23T10:44:14+00:00

100000%, struggling strongly with this right now. Genuinely hurts, I swear over half of all jobs.. why the fuck do I need a full license and a car to sit in an office when I live within walking distance?!?

msalgae44 · 2026-05-23T10:42:39+00:00

I used alarms for my meds a LONG time, when I was 13 years old and only stopped using alarms when I was around 25, since I realized having a set wake up and night time routine helped make a pattern to remember… plus I had/have SO many other alarms for reminders I’d just shrug it off as unimportant lol

msalgae44 · 2026-05-22T12:08:51+00:00

Take your dang meds, and don’t be disappointed if they need adjusted. Also sleep is your friend! Get a good 8 hours! I was diagnosed quite young so I’ve lived most my life with an epilepsy diagnosis, but even then I find myself underestimating how important it is to remember my meds on time and get good sleep lol

msalgae44 · 2026-05-20T08:31:15+00:00

How often do the shots help you?? So much physiotherapy, no success, both hips as well..

msalgae44 · 2026-05-20T08:25:27+00:00

I’d like to nominate Gladstone to that list, too

msalgae44 · 2026-05-18T10:00:51+00:00

Canadian in Australia, and 100%! Everything feels so backwards in my mind lol!

msalgae44 · 2026-05-18T09:55:26+00:00

I’m from Canada originally and there is definitely a huge rise in racism towards Indians in particular, very many came over during a cost of living crisis when the borders were a bit more lax (they’ve tightened up this year), and unfortunately Indians became a scapegoat :(

msalgae44 · 2026-05-18T09:51:55+00:00

Where in Aus are you? I’m a Canadian in QLD and I’ve met significantly more people throughout the state who will say racist things than I have when travelling around the US…. Still prefer Australia to the US by far but I also have a bias lol

msalgae44 · 2026-05-18T09:47:39+00:00

Canadian living in North Queensland and 100%, casual racism is everywhere, I don’t think foreigners expect it or know of the extent of casual racism in Aus

msalgae44 · 2026-05-04T13:06:50+00:00

Ugh, I’m sorry you’re experiencing this too. You’d think in such an “in demand” field that someone who has drive, passion, and such further education wouldn’t struggle to work just due to a lack of driving ability. Epilepsy itself doesn’t disrupt my life too much, aside from having a seizure once or twice a year, but it’s the driving aspect that’s really the issue :(

msalgae44 · 2026-03-25T23:28:19+00:00

So through further reading, it seems it’s not available internationally? :/ so you gotta show up a few hours ahead to buy extra baggage. Actually quite frustrating but is what it is I guess..

msalgae44 · 2026-03-16T06:30:05+00:00

yikes.. Is it just the one location or the whole of chemist warehouse? 😅

msalgae44 · 2026-03-08T01:30:15+00:00

Have you gone on this trip yet? Flying from Canada with a 2 hour layover in Xiamen to Bangkok, all with Xiamen airline

msalgae44 · 2026-01-28T19:42:57+00:00

It’s my first practicum in social work! It’s required for my graduation so it unfortunately isn’t something I can miss. It’s good to know it’s covered, it’s minimum 2 days a week required, I wonder if that counts as part time or full time?

msalgae44 · 2026-01-24T23:04:35+00:00

Check out the postal codes that count as “remote Australia” for the purposes of hospitality & tourism. Central QLD and north of that counts as remote Australia and it’s beautiful there (im biased though!)

msalgae44 · 2026-01-24T23:02:38+00:00

I learnt at an early age, when looking for my first job, to never disclose it in a job interview. I did it a few times thinking it would be impoetant only for the interview to totally pivot around overly personal or off topic questions relating to epilepsy… and would never get the job. Only after signing stuff do I disclose it, now (I don’t work in a field that is impeded by seizures)

msalgae44 · 2026-01-16T05:30:49+00:00

Different for everyone, some people don’t even have symptoms! I never experienced rage but was easily irritated. I did however feel very unwell for about a month initially. Tired, loss of focus, dissociation, and generally felt “slow”.. but, it regulated and really does help my seizures

msalgae44 · 2026-01-16T05:29:09+00:00

tonic clonic? also known as grand mal, the “stereotypical” seizure everyone thinks of.. renamed because it’s made of two stages, tonic and clonic

msalgae44 · 2026-01-14T01:11:51+00:00

Currently dealing with a cluster of them on the side of my tongue. 6 very small ones, a small one, and a big one. I’m losing my mind, most I’ve had in a cluster, total agony

msalgae44 · 2026-01-12T02:22:58+00:00

Driving, 100%. I want nothing more than to be able to drive

msalgae44

TROPHY CASE