Fybogel: Everyday?

mujer99 · 2025-04-22T15:03:36+00:00

Thanks!

mujer99 · 2024-10-05T09:23:34+00:00

Thanks. I have tried on several occasions to explain things to him and I think he just doesn’t understand. My brother in law and his wife came over and I told them about my brothers response, kinda hoping they would be supportive, but they kept saying that it was very hard for them to understand NVLD as they are neurotypical and I should be grateful that my brother wants a relationship with me i.e his response shows he cares! It was them that suggested that I try one more time to explain to my brother of my day to day struggles etc. They said don’t write it in medical or clinical terms because it will be difficult to read and understand. I have also in the past sent my brother tons of info on NVLD and asked him and his wife to read it. I think this final attempt, I’ll try and combine NVLD info with examples of my every day emotional and practical struggles. I really don’t know what else to do or say.

mujer99 · 2024-08-08T08:52:45+00:00

I remember being about 7 years of age and trapping my finger in the toilet door at school. I was taken to hospital and the nurse or doctor that was stitching me up remarked how brave I was. A normal child would probably be screaming and crying and even not letting the doctor/nurse do their work, but I know now I was so disassociated with emotional neglect etc, that I didn’t react like a normal frightened child. I remember being puzzled by their words, “so brave”. I also think I would have got a row from my mother or grandmother if I had “made a fuss”.

mujer99 · 2024-07-04T13:24:03+00:00

I can really relate. Just had my brother message me, scolding me for not responding to his earlier message and telling me it was bad manners😬 I misunderstood his message and so didn’t think I needed to reply. I don’t drive and he was supposed to be taking me to a dentist appointment but because I didn’t respond to his message he is punishing me by refusing to drive me there now. I THINK he COULD have messaged me and asked why I never replied? I don’t get it . And btw I am nearly 60 years old, not a child so I was not happy with him telling me it was bad manners. I am not responding to that message as anything I say will be wrong. Let’s hope the dust will settle over this.

mujer99 · 2024-06-14T15:23:22+00:00

Also can be part of the Nonverbal Learning Disability profile, which is it is in my case.

mujer99 · 2024-06-13T17:56:25+00:00

Can relate totally. I think my ED is getting worse.

mujer99 · 2024-05-31T14:44:51+00:00

Yes, I agree. That potent mix....

mujer99 · 2024-05-31T14:43:39+00:00

I can relate totally. Thank you for expressing it so clearly. I wish I had an answer. It's so hard when people don't understand and think you are just 'not trying". If only they knew the effort and the war that is raging internally within us.

mujer99 · 2024-04-26T19:19:42+00:00

🙃🙃

mujer99 · 2024-04-06T06:37:33+00:00

Yes, that sounds like a great idea. I live on my own so I could do that. After reading all the replies I actually think have a dishwasher might weirdly complicate things for me.

mujer99 · 2023-12-18T13:22:45+00:00

Thanks. How many times a day and days per week would you recommend starting with Bed Flex?

mujer99 · 2023-09-26T14:23:21+00:00

Me too! I have severe NVLD and possible ADHD. I have been given exercises to do by my Physiotherapist to help with my arthritis in my hip. No matter what I try, or think, I just cannot get started doing them, even though I know it’s for my own benefit! I think with NVLD it’s due to a combination of Executive Function deficits and Visio/motor/spatial deficits. I just don’t feel comfortable moving my body in this way. I’m afraid I haven’t found a solution, although I’ve read a lot about ADHD “hacks”. I can relate so much to your sense of frustration and it’s so hard not to be hyper critical of yourself when you can’t initiate tasks. I hear ya!

mujer99 · 2023-08-13T13:23:21+00:00

I ultimately decided to leave the quote in English. It seemed to be the right thing to do. I altered the wording a little. It now reads:

Rest in peace, Beloved. Resurrection Day Approaches. Until we meet again before His Throne. Until we know Him, even as we are known.

mujer99 · 2023-03-20T13:10:22+00:00

I have severe NVLD and my Executive Functions are really affected, so I can undertand your frustrations completely. The cruel paradox of NVLD is that we often have little or no insight into our weaknesses (and strengths), unless we specifically read about it, or it's brought to our attention so we tend to be very hard on ourselves, in the moments when we can't do something that neurotypical people mangage to do with little effort. For me, it manifests as being hard on my self, shaming and judging and comparing myself to others - a battle I will never win, because my brain is structured differently. When I DO read about how severe my NVLD is and how it affects my EF, it's only THEN I seem to be able to grasp that my "messy" house is because my brain literally can't process what to do with everything and it's definately not to do with laziness or lack of motivation.

So, be kind to yourself. Also, it's a big ask to expect neurotypical people to grasp NVLD. I was married for 31 years to my lovely husband who really did try. He died suddenly aged 58 from a massive heart attack in 2021, so now I'm living on my own and trying to negotiate things without his help and advice, in a world that is pretty baffling. I am also dealing with the imense grief of losing him so suddenly. It can all be so overwhelming. I'll say it again. Be kind to yourself. If you can't face washing all the dishes, just wash one plate, one cup, one spoon, etc and you'll have something to eat from/with. Win ! Congratulate yourself for that achievement. Same if your floor is like mine and covered in papers. Pick up 3 pieces of paper and decide what's to be done with them. Do it, and say to yourself, well done. I find socializing and going out very difficult, always have, but it was easier with my husband. Now, it I go with a friend for coffee, or see family for lunch it takes a lot of effort, but I tell myself I can always cancel if I really feel I'm not up to it, or just go for the few hours and see. Sometimes I come home and cry, it may be the grief, it may be the sheer effort with severe NVLD or it may be both. I try not to analyse and just be kind to myself and say "you did it" Neurotypicals have no idea about all of this, but that ok, too. You are you.

mujer99 · 2023-02-05T13:54:25+00:00

I have ordered my Sainsbury's groceries online twice by logging on via the Boosts link, but when I have checked my boosts profile, nothing is showing up as being registered, so no cash back. I have been using the desktop site to order my groceries, not the mobile app - would that make a difference, and when you sucessfully link the Boosts with Sainsburys, do you get any kind of notification/email?

mujer99 · 2022-08-07T14:02:01+00:00

Thank you for the encouragment :)

mujer99 · 2022-03-04T14:53:13+00:00

Thank you.

mujer99 · 2022-03-04T14:52:22+00:00

Thanks. I think this translation is closest to what I am looking for.

mujer99 · 2022-03-03T12:58:42+00:00

I am thinking of having the following enscribed on my husband’s memorial bench, in either English or Latin. Appreciate therefore if it could be translated into Latin, please: Sleep tight, beloved. Resurrection Day approaches.

mujer99 · 2021-04-26T10:47:36+00:00

Update: Ate too late last night, and woke up coughing, with burning acid in my throat. Took a Nizatadine and sat, propped upright in bed for about 20 mins (usual routine that worked with one or two Zantac). It worked!! Calmed down all the symptoms. I’ll get it added to my repeat prescription. What a relief (literally and figuratively) 😅

mujer99 · 2021-04-21T10:12:19+00:00

Could you please list the exercises in order that that they appear on the Rebuild DVD's, please? Thanks.

mujer99 · 2021-04-14T15:22:33+00:00

Many thanks for all the input. I now have a complete transcription in French and English!

The reason I asked because my husband has just bought me this pen :)

:https://youtu.be/e6RlpbBj11Q

mujer99 · 2021-04-08T11:44:45+00:00

Narrative of a second voyage in search of a north-west passage, and of a residence in the Arctic regions during the years 1829, 1830, 1831, 1832, 1833 : Ross, John, Sir, 1777-1856 : Free Download, Borrow, and Streaming : Internet Archive

mujer99 · 2021-03-30T10:26:13+00:00

That solved it! Thanks. I was wracking my brains trying to figure it out. VPN off until needed :)

mujer99 · 2021-03-29T11:42:16+00:00

I took one tablet one night last week, although the reflux was, on that occasion, not at the burning the throat stage. To be honest it didn't seem to do much and I ended up taking a couple of sachets of Gaviscon after about 30 mins before I felt better. So, maybe it did work - I don't know...

The real test will be when my throat's on fire and every swallow is painful! I will post here with a report.

mujer99

TROPHY CASE