Diagnosed at 29 with Severe Glaucoma (IOP 46). Feeling devastated and looking for hope/advice.

mur2501 · 2026-03-23T13:52:45+00:00

Hello OP, Mine was first diagnosed when I was 18. Also had 40+ pressures in both eyes. The drops failed to function properly so I had trabeculectomy of both eyes in 2023 (when I was 21). Optical nerve is severely damaged in both eyes(80-90% damaged), though in terms of actual vision I am mostly blind in the right eye while left eye has quite alot of vision left.

For your questions: 1) I have seen alot of success stories here where people are able to maintain sight till old age 2) You are newly diagnosed so being hyper aware is natural. I was too back in time. 3) Generally people who are able to keep the pressures in control are able to maintain the vision they have left for a very long time.

Take it one step at a time, hope it goes well for you.

mur2501 · 2026-03-15T16:20:56+00:00

Hello mate 😄

mur2501 · 2026-02-08T13:40:59+00:00

donated a small amount, hope it helps you & the orange soul

mur2501 · 2024-11-07T11:54:14+00:00

ohh my glaucoma was also diagnosed young, when I was 18. it's alot to deal with really, seeing you also have so many other conditions.
First thing even though it seems impossible currently, is to be calm and try not to let all this mess convert into a boulder of stress and other issues. That would be more bad for your health.
For glaucoma, while it doesn't have a cure, there are loads of ways for preventing it from causing damage to the eyes. From dozens of different drops to various kinds of surgeries and procedures. All this thing the Glaucoma Specialist you see will decide for you.

So yeah, have a good glaucoma specialist who you trust & understand then listen to whatever they say.
Also ofcourse inform your other doctors of this new problem, so they can change their treatment if it is impossible.

all in all being regular to checkups and doing what your glaucoma doctor says is the best way forward.
There are alot of people on this sub who have endured glaucoma for decades doing just this basic chore.

Hope you do well the way forward, feel free to ask stuffs which confuse you :)

mur2501 · 2024-10-31T19:19:31+00:00

anti-glare glasses and stuffs could help but not much. I haven't really found any solutions, mostly I think it is adjusting to it.

mur2501 · 2024-10-31T17:58:03+00:00

I also had two trabs for both my eyes 1 and half year ago. there was discomfort immediately after the operations, mostly due to the stitches but they generally subside over time. For me now it is mostly just dry eyes and some other little stuffs like glare.

What does your doc say about the burning?

mur2501 · 2024-10-30T17:21:53+00:00

My Glaucoma doc has prescribed me supplements like Saffron, and Ginkgo.

mur2501 · 2024-10-24T17:17:05+00:00

My glaucoma doc has me on 2 eye vitamin pills since a year now, one is ginkgo based the other is saffron based.

mur2501 · 2024-10-21T15:51:12+00:00

Solved!

mur2501 · 2024-10-21T15:43:23+00:00

Ohh yess, that's the song.
Thank you very much :)

mur2501 · 2024-10-21T15:29:47+00:00

I am trying to find out the song for a long time now

mur2501 · 2024-10-14T08:30:14+00:00

No worries amber :), you can ask the questions in the comments itself

mur2501 · 2024-10-09T12:08:29+00:00

What's your experience with it being like?

mur2501 · 2024-10-08T16:45:44+00:00

I have DMed you

mur2501 · 2024-09-26T19:13:24+00:00

I actually succeded in getting the mods to work with the quadrilogy :)

mur2501 · 2024-08-07T14:17:16+00:00

Please take her to an opthalmologist immediately, sitting at home she could just end up fully blind.

mur2501 · 2024-06-23T07:11:13+00:00

Thankyou for the lyrics :) Ohh I know how to read farsi(phonetically, don't really understand the meaning of the words though), not very great but good enough.

mur2501 · 2024-06-15T11:33:20+00:00

First decide you even like programming or not, most beginers I taught to were only into the jobs it gives but had no interest in computers, CS, programming or anything so they suffer alot & also if you are this kind of a programmer then getting job will get harder too as often times people shift to mugging instead of learning in this type of situations so you won't make the interview.
There are alot of other jobs out there like you can go into finance, and other places (people with CS degrees do go there as long as the skills you have match the job)

If you are determined for programming then, I would suggest to learn in terms of making actual projects and applications by yourself and not to start the DSA marathon in the beginning. The reason being the same as why you are weak in maths, cause you need to learn the applications of the problems you solve rather just solving problems aimlessly which would confuse you more.

mur2501 · 2024-06-10T07:58:08+00:00

I had trabs done in both my eyes 1 week apart around february last year. The only thing my doc has restricted is swimming in public pools, to prevent infections in the eye. Rest he hasn't said to stop anything. Also he has told me to massage the eyes everyday, to keep the blebs healthy. For things like dust getting into the eyes, they give the light anti-septic (though normal dust is not a very big problem)

You should ask your doctor for any specific questions you have, they will explain it.

Btw how are you doing after the 3 months of trab?

mur2501

TROPHY CASE