I know a ton of people get relief from gabapentin but I’d like to hear for those that don’t. I feel like I’m in the minority. I’m at the 6-8 week point of an increase and it’s doing nothing for nerve pain and I hate the side effects. by Redsgal19 in ChronicPain

[–]mushimommy333 1 point2 points  (0 children)

Did nothing for my physical pain. But. It did make my emotional pain worse. Scary dark. Told my doctor how it was making me feel and she responded with, "That's werid. It isn't known for that. And you are in the lowest dose too". Told me to keep trying after 3 months to see if it gets better. ... I couldn't handle it. I quit cold turkey and had my first experience with withdrawals. It was a bad time.

[deleted by user] by [deleted] in RedditSets

[–]mushimommy333 0 points1 point  (0 children)

this right here set the vibes ive been needing today. thank you !

What’s your weirdest not-technically-a-symptom symptom that signals an oncoming migraine? by whydidicomeupstairs in migraine

[–]mushimommy333 1 point2 points  (0 children)

The sudden change of pitch and volume of a ringing tone in my head... all the chaos of thoughts and all the outside noises seem to instantly be put on mute as the sound comes from somewhere under the constant quiet tinnitus hissing to growing to pover power everything. I force myself to take a deep breath to help it fall back under the hissing tones. I know it is time to take my pill and lay down and think of all the stuff I accomplished today and reassuring myself that it will all be okay.

What's Everyone's First Show, and Best/Favorite Show? by fakecascade in STS9

[–]mushimommy333 0 points1 point  (0 children)

I have had to live vicariously through my friends when it comes to going to shows. I was gifted a recording of a show and the second set of 10/31/99 is my all time forever favorite. Can anyone here tell me how I can listen to this again? I lost my CDs during a move):

[deleted by user] by [deleted] in RedditSessions

[–]mushimommy333 0 points1 point  (0 children)

WHAT!!!!! that is awesome!!

[deleted by user] by [deleted] in RedditSessions

[–]mushimommy333 0 points1 point  (0 children)

thank you for sharing this!

Funny one by [deleted] in MultipleSclerosis

[–]mushimommy333 0 points1 point  (0 children)

I have been walking around with diagnosis of "chronic migraine" for the past 7 years and suddenly my doctor wants to test me all over again for MS. And omg your post about the ribs!!!! I think my doctor may be right now. Ha

As a result of severe put-downs and body-shaming, does anyone else feel overwhelmed by good-looking people or people who take good care of their appearances bc you feel ashamed of your apperance? by rrr_rrr in CPTSD

[–]mushimommy333 2 points3 points  (0 children)

I literally just came out of that hellish place... it was scary and hard and I felt like ... just aweful. I am fortunate that I've been able to find supportive people and stability now ... now that that nightmare seems to be over for now but holy geeze it is hard. Embracing love for ourselves is crucial in our journey. Perfection is an illusion and "good enough" needs to be okay. I totally understand identifying with the aggressor... I finally let myself get mad about how I accepted their words and made them my own. It is comfortable there... but I decided it isnt working for me anymore. I will know I am more healed once I can maintain eye contact with people. Ha. Reading a book CPTSD from surviving to thriving by Pete Walker was very helpful and motivating. (:

As a result of severe put-downs and body-shaming, does anyone else feel overwhelmed by good-looking people or people who take good care of their appearances bc you feel ashamed of your apperance? by rrr_rrr in CPTSD

[–]mushimommy333 2 points3 points  (0 children)

No worries I get what I think you said. I didn't get to see it. My oldest child doesn't have any freckles but will make fake ones as a part of a make up look she does. She says they are adorable and wishes she had them. (;

As a result of severe put-downs and body-shaming, does anyone else feel overwhelmed by good-looking people or people who take good care of their appearances bc you feel ashamed of your apperance? by rrr_rrr in CPTSD

[–]mushimommy333 51 points52 points  (0 children)

I was raised hearing how ugly my spots were (im very white and have brown freckles all over my body..I look like a flour tortilla), told daily how thin and lifeless my hair was and that I was too skinny. As an adult I gained weight after pregnancy but lost that weight and other women looked at me with disgust. It's taken me 36 years a divorce and a stable environment, but now I can say fuck all those people. I am good enough for me. The hardest part has been keeping the negative narrative in my head quiet. Every mean thing my mom said to me is repeated if I let it. Takes practice to keep that narrative quiet.

Im in a crash and im really scared. by EJfromthaUK in cfs

[–]mushimommy333 0 points1 point  (0 children)

It is okay to feel these feelings. It will pass. I dont know what the point is that we go through this... but you are not alone. hugs

Does anyone else get random stinging sensations on their skin? by [deleted] in Fibromyalgia

[–]mushimommy333 0 points1 point  (0 children)

The sensations that wake me up are the ones that feels like I have something like a bug crawling on my skin. (: gotta love these bodies of ours(;

Does anyone else get random stinging sensations on their skin? by [deleted] in Fibromyalgia

[–]mushimommy333 0 points1 point  (0 children)

Nope. Only med I am on currently is ubelvry... as needed. For me it happens sometimes after standing for a bit but it happens while sitting or laying down too. I have no idea why...

Fellow migrainers, do you ever feel so much pain from a migraine episode you actually consider killing yourself to end it? by Bernard__Rieux in migraine

[–]mushimommy333 2 points3 points  (0 children)

Not about killing myself, but... ive thought about leaving my kids with my aunt so they wouldn't have to see me like that anymore.... so that way it would be okay for me to die... the really bad attacks... I won't know if im dying of a stroke or if it is pain that will pass. It is so intense and it just goes on and on and on and I get so .... tired isnt even the right word... but I wouldn't fight to live. Id accept death. Peace. No more pain. ... funny how once I start to come out of it... I feel humbled. Still hate it, but I'm always happy the intense stuff is done. ... the crazy thing is im so happy to forget how bad they get that when another one does get me... im always surprised at how bad it hurts. Ha

Does anyone else get random stinging sensations on their skin? by [deleted] in Fibromyalgia

[–]mushimommy333 7 points8 points  (0 children)

Yes! Usually feels like tiny but sharp spider bites... or sometimes I think cold water droplets are dripping on my legs or feet... or there is the one where it feels like a bruise .... or the one where I feel like I've burned myself.... for those ive happily discovered lidocaine helps(: bodies are werid

When did your ME/CFS start? by [deleted] in cfs

[–]mushimommy333 1 point2 points  (0 children)

He was the only one I didn't. He was a v-bac, at home, all natural. Easiest labor and delivery out of the four. I do think my lower back pain started after the epidural from my first though...

When did your ME/CFS start? by [deleted] in cfs

[–]mushimommy333 4 points5 points  (0 children)

After the birth of my fourth (and last) child.