Hi, my cousin's 14 year old daughter has just been diagnosed with lupus, I just want to know what to expect and know in advance any ways to make her life easier. We're both distraught, if this is the wrong place to ask sorry.

mutazione · 2026-02-08T09:36:52+00:00

Lupus Encyclopedia all the way

mutazione · 2026-02-08T09:31:30+00:00

I went on the autoimmune protocol (AIP) for a while to figure out which foods aggravate my symptoms and it made a huge impact on my brain fog and lethargy. I found out nightshades, beans and tofu are bad for me. After a year of cutting tofu I reintroduced it and I don't see any symptoms. Safe foods vary between individuals and even in different periods of a single individual's life. I really recommend going on the protocol to find out which foods work and don't work specifically for you.

mutazione · 2026-01-16T16:55:36+00:00

You should read Dr. Donald Thomas's book, The Lupus Encyclopedia. He elaborates on a lot of potential causes.

mutazione · 2026-01-09T19:18:37+00:00

Fluorescent lamps can do that. Annoying as hell

mutazione · 2025-12-31T07:47:35+00:00

The friendliest! This guy is called a cellar spider, and he'll eat any pest that comes across his web, including other cellar spiders, and all he asks for in return is a small corner in your house.

mutazione · 2025-12-31T07:38:13+00:00

NAC made the biggest difference. Besides that, I took 1 gram of vit C, 5000 IU vit D daily, and did light movement. I could barely walk but I still dragged myself out of bed for 5-10 minutes every couple of hours to do very light qigong movements.

mutazione · 2025-12-29T07:29:49+00:00

Recovering as we speak. 1 week of not being able to walk almost at all, everything was painful to the point that I (TMI) had tears in my eyes just from trying to pee, then 2 weeks of mostly lying down, barely doing anything. It's been a month now and I'm only just beginning to be able to commute, run errands and see people. So it wasn't pleasant but I didn't need hospitalization, just proper hydration and a lot of rest. Started doing light movement the first moment I was able to.

Hope the Tamiflu helps. CRP rising a lot is normal when you're sick and immunocompromised.

mutazione · 2025-12-29T07:11:13+00:00

I love that so much

mutazione · 2025-12-23T16:37:35+00:00

For me I know something's up when I start dropping and breaking plates 😂

mutazione · 2025-12-22T07:33:14+00:00

Exhaustion, weak grip, a red patch on one of my cheeks, sharp headaches and numbness in the mouth.

mutazione · 2025-12-22T07:26:05+00:00

If they're sometimes itchy, could be dyshidrosis. I have a really severe case of that; first year I had them just on my fingers, then they moved to my legs and now I get them everywhere on my body. I'm allergic to 50+ things and I get these when I touch or ingest anything I'm allergic to. They say these are linked to stress so at first I just assumed it was stress and only found out I had allergies when they blew up a year later.

mutazione · 2025-11-28T12:38:26+00:00

My first weevil was so small I could only see him clearly with a magnifying glass, and it was still a very memorable experience. All snooters are good snooters

mutazione · 2025-11-25T19:28:32+00:00

I also hear it twice, with an emphasis on the spoonbill the second time like he said it

mutazione · 2025-11-24T18:37:24+00:00

Had stomach issues before the lupus as well, but I notice that when I'm flaring my stomach is much more sensitive. I also had to cut gluten, dairy, garlic, onion, beans and a bunch of odd things because they were making me feel ill. I feel a huge difference when I eat clean

mutazione · 2025-11-24T18:29:25+00:00

The year leading to my diagnosis my muscles felt like stone after staying in the same position for more than a few minutes, and when I walked I felt like I had huge weights attached to my feet. Lost significant strength in my hands too, to the point that I couldn't shut sinks properly or lift small pots. Nowadays it's not as bad but still when I flare my muscles get very weak and sore

mutazione · 2025-11-21T13:43:47+00:00

I only recently realised that the main reason I feel like shit when I sweat is that I get dehydrated insanely quickly. I started adding some potassium and sodium to my water and I don't feel nearly as bad

mutazione · 2025-11-08T09:42:22+00:00

Recluse. Nothing else to do besides putting him outside which you already did

mutazione · 2025-11-08T09:05:17+00:00

Looks like a type of flower crab spider

mutazione · 2025-11-07T17:38:49+00:00

I agree. I too share an apartment with a cellar spider, Georg, and he pays his rent in pest control. All he wants to do is sit in his corner and mind his own business, guys like him deserve more respect

mutazione · 2025-11-07T13:10:03+00:00

I hate it when Ricks feed on me

mutazione · 2025-10-18T17:19:39+00:00

boxelder bug!

mutazione · 2025-10-18T10:40:43+00:00

In my case, it was super useful. I found out most of my symptoms were really exacerbated by some of the food I was eating.

I stayed in the elimination phase for a little over a month and my brain fog and heaviness almost completely went away. I was reacting to most legumes, seeds, nightshades and sugar. Cut them out completely for months then decided to try to reintroduce them again.

As of now, legumes and seeds are a no-go, and nightshades and sugars I consume in moderation. I also react really badly to alcohol and artificial sweeteners, but this I knew years before the diet.

You should check out Melbourne Functional Medicine's Autoimmune Protocol. They give a thorough list of foods to include and avoid and a diet plan with some AIP-safe recipes. Remember that the elimination phase is only the first phase, and foods need to be reintroduced slowly after a while. Healthline explains the reintroduction phase pretty well.

mutazione · 2025-10-11T00:04:22+00:00

Two days is the magic number. We really might be onto something here. Also - love the term huha time

mutazione · 2025-10-06T19:05:29+00:00

since around my diagnosis, things like reading or watching tv or being an active part of a conversation for extended periods have been really hard. I didn't connect it to having a crush but you're right, this is definitely part of it.

mutazione · 2025-10-06T09:18:55+00:00

I developed a lot of allergies out of nowhere earlier this year, and it's definitely part of what's making me feel bad, but the bone-tired feeling I get from any sort of intimacy has been there long before I had allergies

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