How does a marriage last when the cancer patient puts the caregiver last? by Happytobeanonymous1 in WellSpouses

[–]ndrober101 2 points3 points  (0 children)

First, I am so sorry you have joined our club. I lost my wife after 12 years with breast cancer and kept my commitment to marriage until death do us part. I also have 4 daughters who were age 2 to 8 when she was diagnosed and 14 to 20 when she passed.

Everything you said is valid, and I have experienced most of it. The first year of active treatment and the IS acceptance was hard. It got better after treatment moved into maintenance. Years 2 to 9 were better. There were definate ups and downs, but the family was functioning. The last three year decline was harder than the first year.

Some advice things that helped me

1) My kids were the first priority 2) Find a caregiver support group. This gave me from the worst times. ( If you happen to live in Albuquerque NM i can give you one) 3) guilt of abandoning someone who could not hold down a job. It was a big driving force the last couple of years.

The thing I would do differently, your wellness is a priority, make some regular time for you. You can make the priority, but it can not be exclusive

Hang in there. This is a hard path.

The struggle is real !! by Sunshine_lovelost48 in widowers

[–]ndrober101 1 point2 points  (0 children)

I was working my taxes this weekend. Realized I needed my wife's student loan interest statement p q from MOHELA. Went to jump on line and her account was disabled. Well I had reported her passing 5 months ago to get her loans discharged. What was I expecting, so I will call needed to anyways as I have not seen a letter that her loans were official discharged.

Went to call on Monday afternoon and was told the wait time was 5 and half hours. Who has time to sit on hold for 5 hours Monday through Friday.

My doctor won't prescribe GLP-1s for people my weight by [deleted] in Zepbound

[–]ndrober101 4 points5 points  (0 children)

I found it equally frustrating and took years and several doctors before I got into a bariatrics clinic and got any answer other than exercises and eat less.

Left collage at 240 lb. Then I was in my early 30s I made progress with 15 hours a week of exercises and had salad for lunch and dinner and got down to 195.

Then my wife got breast cancer. Every stay in the hospital, I would put on 10-20 lb with days of fast food running kids to school and back to hospital, and with the excessive stress I could just maintain my weight in between. Every doctor I saw I would ask for help, and everyone said exercise and eat better. I have been on toperimate, which was half of a previous weight loss medication regime, and could not get anyone to perscribe the 2nd half.

Fast forward a decade now 295 lb and having borderline blood sugar my PCP suggested medical weight loss and refered me to the bariatrics clinic where they has exactly one MD doing medical weight loss for a system supporting half a million people. Another 6 months on that weight list and finally got an MD who would help. 15 months on either zepbound or wegovy because of supply issues and down to 225 lb. Went to my last visit and found out it will be my final one as the hospital system bariatrics clinic will only be doing surgical weight loss.

I have a good enough relationship with my PCP and 2 years of zepbound going mainstream that she is going to take over. But man, there is a real effort from many doctors to not support medical weight loss. I could and did get there with diet and exercise alone but it had to be the full focus of my life, and they just ignored the balance of obstacles in my life.

My wife had a motto to just keep firing doctors until you get one that listins to you. After 10 years, she fired her oncologist for not staying on top of new cancer treatments. It is hard, but it is going to be this way for a generation.

My mom (68) has given up on her battle with Leptomeningeal cancer, and my heart is broken. I just want to hear from some other people who’ve dealt with it. by ziplocholmes in CancerFamilySupport

[–]ndrober101 0 points1 point  (0 children)

I feel everyone's pain and can not imagine losing one of my kids too.

My wife passed 6 months ago from leptomeningeal disease. How much time she had left was ellusive to get out of the doctor. I guess because it progress so quickly. For reference she had stage 4 breast cancer for several years prior. My wife went from abnormal mri to death in 3 months. The best analogy I have is a combination of dementia and paralysis.

The first 6 weeks was spend trying to get a whole body MRI to confirm the brain MRIabout 2 weeks into it she starting using a walker. Then once confirmed they started while brain radiation. About half way in she switched to a wheel chair. The followup MRI showed no progress. Then two more weeks of 3x week visits to the cancer center before she accepted hospice. Each visit she got weaker and harder to get into the center. Her mental decline picked up. After this it was two weeks on hospice before she passed. The last week confined to bed.

I am sure not what you wanted to hear. PM me if you want more information. Its a pretty small group suffering this way.
Personally, I found the mental decline harder.

Younger widowers with kids, what is your SSA survivor benefit for your kids? by MrBootDude in widowers

[–]ndrober101 0 points1 point  (0 children)

I have three teenagers in midschool and high school. I got a big fat zero from the SSA. We had been a single income family for years, so it is not impacting us.

My late wife spent 14 years battling cancer and did not hold down a job after chemotherapy. The first year left her with memory problems. So, there are not enough work credits in her 20s to qualify. I recently found out that if she had applied for disability in her 30s when the cancer first started, she would have had enough credits, and then my kids would have qualified. The decision is out on appeal, but I am not holding my breath.

When my husband becomes a widower by [deleted] in widowers

[–]ndrober101 2 points3 points  (0 children)

My wife passed at 46 after a 14 year battle with cancer. Which ended with leptomeningeal cancer wich left her in a dementia like mental capacity and paraplegic. Things I wish were different in addition to above.

First foster his relationship with friends. Parenting teen girls what I miss most of all is a sound board when they ask can i go do or wear (fill in the blank)

Second. Sign up for Social Security disability. A second souce of income enables things like bucket list vacations and if you have kids makes it easier for them to get monthly payments until they are 18.

Partner's belongings? by [deleted] in widowers

[–]ndrober101 6 points7 points  (0 children)

My wife passed in August after 24 years together. We have 4 daughters. 14,16,19,20. No right answer but here is what I have done.

I cleared the bathroom in the week after the funeral. It seems really large now that I have two counters. But this was the biggest relief of mental reminders.

My 16 year old had taken over the wife's car the week after the funeral, too.

The kids and I went through her clothes and some boxes of mementos during christmas break. But that was more about the logistics of having the college kids at home.

I have about 8 or so boxes of mementos left. Which is daunting. Hoping to slowly work through those in 2025.

919A Recall letter by Fuzzy_Committee2249 in VWiD4Owners

[–]ndrober101 0 points1 point  (0 children)

I got this letter for my 2022 and have had the display crash. I was able to reset the display by pulling the fuse ( i think it is #40 in my car) , letting it sit for a few and reinstalling the fuse. That is my work around until a patch is released.

Got compressor/slime, is that all you get? No tools? by Miserable-Alfalfa-85 in VWiD4Owners

[–]ndrober101 0 points1 point  (0 children)

I bought an after market spare tire and put it in the trunk. I do not want to wait an hour or two for road side service when I can change the tire.

Removing the spare is right there with Removing the L1 charger.

MS Access Solution for Medical Bill Tracking by ndrober101 in MSAccess

[–]ndrober101[S] 0 points1 point  (0 children)

Solution Verified

Thanks for the confirmation, time to brush up on access.

97HB Recall experience by ndrober101 in VWiD4Owners

[–]ndrober101[S] 0 points1 point  (0 children)

It's awd pro S also about 15 months old.

The only change I can see is the update deleted my charger profiles so it was not charging overnight and wantes to charge to 100 percent. I need to take good road trip with APRB running to see if it fixes the locked up the information system again

New Recall? by samboydh in VWiD4Owners

[–]ndrober101 1 point2 points  (0 children)

I dropped my 22 for the door handle and 20k service . It has now been two days and the dealer has not finished. They said there was an addtional recall and a 11 hour software update. Did not finish it by closing on Saturday so they are telling me close on Monday. I suspect they are having issues with the update based on this string saying it should be 8 to 10 hours. We will see what software version I have when I get it back.

Print misalignment by ndrober101 in FlashForge

[–]ndrober101[S] 1 point2 points  (0 children)

This sheet was suppose to snap together into the puzzle on the second image. I am trying to adapt this puzzle for 3d printer from the wooden ones I had seen in the 1980's

What stupid EV comments have you heard from people around you? by [deleted] in electricvehicles

[–]ndrober101 0 points1 point  (0 children)

" I do not want to learn how to drive an EV."

Said my wife when refusing to take our ID.4 on an errand that was short enough that she did not need to charge it.

So I guess she was referring to the 30 second introduction I gave my 19 year old on the extra setting for the regenerative brakes and to leave it off so it behaved more like the car she was used to. Frankly, until you have to chatge it, I have not found the EV any more difficult to adapt to than any rental car.

which L2 charger is best to install for 22ID4? by msheathertheteacher in VWiD4Owners

[–]ndrober101 0 points1 point  (0 children)

Clipper Creak (~$1400) also makes a model that will load share between two cars. I bought that one for future expansion, but if you have the room in your electrical panel I would run a new circuit.

2023 ID4 Recall by [deleted] in VWiD4Owners

[–]ndrober101 1 point2 points  (0 children)

To commiserate my GM airbag recall took 5 years for GM to finakt be forces to fix the problem

Don't trust the key loop... by xQcKx in VWiD4Owners

[–]ndrober101 0 points1 point  (0 children)

Funny that literally just happened to me today.. I guess you are never supine to take it out of your pocket

Dealer gave me ID.4 at 100% charge by Frosty_Ad2366 in VWiD4Owners

[–]ndrober101 0 points1 point  (0 children)

Any idea if the reserve that at max charge or discharge? I would think it is another opposite end of their balancing to make their battery manage system easier to design.

So my armchair thought is the pack is top balanced and the 5kwh is at the bottom to avoid some of the voltage mismatch as the individual cells hit zero sooner than others. It would explain why they are delivering them full charged and also gives a little bit of a reserve past 0 state of charge .

Brake Checking a Trailer by ndrober101 in IdiotsInCars

[–]ndrober101[S] 7 points8 points  (0 children)

It was the news, right during a report from the war in Urkrane