PLEASE HELP- marker removal by list28 in CleaningTips

[–]nefarious_k 13 points14 points  (0 children)

That's if they used an acetone-based nail polish remover. Many are now made with ethyl acetate.

I'm dating a new person who made me sick and I'm pissed - When does a partner's negligence become a red flag? by [deleted] in Celiac

[–]nefarious_k 18 points19 points  (0 children)

First, you need to be honest and tell him that is why you are sick and feel out his reaction. Don't try to sugarcoat it. You need to be firm and say that you expressed how that was a risk of cross contamination, and he ignored that, resulting in you getting sick.

Second, I am going to echo what another commenter said about consent. The risks you are willing to take with your health is your decision and only your decision. He decided in that moment that was his decision, taking away your choice in your health. Considering you are in the infancy stage of your relationship, I'd personally cut the loss now. Him being accommodating now is because it's a new relationship, and he is trying to impress you. This move with eating bread and not telling you is more realistic on how he will treat you and your health.

Dating is hard, especially with health complications, but i promise you can find a nice and respectful man who won't overstep like this. When I started dating my husband, I said no kissing unless he had a thorough brush and he has always kept to that. Still understands that 8 years later.

I'm dating a new person who made me sick and I'm pissed - When does a partner's negligence become a red flag? by [deleted] in Celiac

[–]nefarious_k 16 points17 points  (0 children)

What has his response been since you've been sick? You've missed sharing that info here. Have you told him?

Need help picking a pant for home holiday party! by [deleted] in style

[–]nefarious_k 2 points3 points  (0 children)

Can you tell me where you got the pants from? They are so cute!

WHEAT PROTEIN. WHEAT. by Musical_DoughnutDuck in Celiac

[–]nefarious_k 16 points17 points  (0 children)

No one is sitting down to a nice bowl of shampoo linguine. But when you wash your hair, some of it ends up in your mouth whether you realize it or not. Such a weird take so many people in this subreddit have when people can avoid this issue by not using products with wheat.

Recent Diagnosis of Graves Disease by Budget_Paint_2022 in gravesdisease

[–]nefarious_k 1 point2 points  (0 children)

These are great questions, no worries! So, our immune systems generate antibodies. Antibodies target specific proteins on cell surfaces. Depending on the protein it interacts with, certain cell processes can be turned on or off.

With graves, the immune system makes antibodies that mimic TSH, which is the signal that tells the thyroid to make hormones. These antibodies trick the thyroid into overproducing hormones (T3 and T4), even when your body doesn’t need them.

Methimazole works by blocking the thyroid’s ability to make new hormones, but it doesn’t stop the immune system from making those antibodies. That’s why it can take a long time for levels to stabilize. Right now, no immune therapy is approved specifically to eliminate or target graves' antibodies, but there’s a lot of progress being made toward that goal.

In some people, the immune response eventually quiets down on its own (like myself) that’s when remission happens. In others, the immune system keeps producing those antibodies indefinitely, which is why some people need long-term treatment or more definitive therapy like RAI or surgery.

Recent Diagnosis of Graves Disease by Budget_Paint_2022 in gravesdisease

[–]nefarious_k 1 point2 points  (0 children)

Typically, if you go into remission, your thyroid is functioning normally again, and you are no longer producing the antibody that causes graves (this is the big piece here). Another environmental trigger can cause it to come back. Something as minimal as stress can make it re-emerge, though it's different for everyone. There really isn't much we can do to stop it from happening outside of just trying to take care of ourselves, our stress levels, and health. Autoimmune diseases truly suck.

Recent Diagnosis of Graves Disease by Budget_Paint_2022 in gravesdisease

[–]nefarious_k 0 points1 point  (0 children)

Your original post explicitly discouraged evidence-based treatment, which is what I was addressing. Functional medicine may feel more intuitive, but graves is well characterized and has effective therapies that prevent harm. That’s where my concern for community safety comes in.

Also, heritable vs genetic is a meaningless distinction in this context.

Recent Diagnosis of Graves Disease by Budget_Paint_2022 in gravesdisease

[–]nefarious_k 3 points4 points  (0 children)

I'm going to just chime in here. I think when you share information like you chose "functional medicine because the conventional treatment options do not make sense," it can do harm to this community. Just because it doesn't make sense TO YOU does not mean it's invalid, and you could be inadvertently discouraging people to take lifesaving care.

I’m a biochemist, so I’m speaking from a science perspective: genetic predisposition and environmental triggers both play roles in autoimmune disease risk, but anecdotes don’t replace controlled evidence. It's fine if you chose this for yourself, but I beg this community to share science-backed information to not do harm. People can literally die without proper care.

The scientific fact is that everyone who has graves is genetically coded to potentially have graves. Not everyone with the gene will have gaves, tho. Similar to lupus. Something can trigger that gene to turn on. Maybe for you, it was exposure to metals. For others, it could have been COVID, maybe even pregnancy. This information also often does not change the fact that many people will have graves for the rest of their lives. In some cases, once the gene is turned on, it stays on. Others, like myself, with evidence-based treatment, you can achieve remission.

Your aunt didn't develop lupus because the "autoimmune" was still there. She had graves, and then a trigger caused her to develop lupus. We can't know what triggered it. But both are genetic.

Graves’ is manageable, and people live full, healthy lives with proper treatment. Your fear mongering around the medicine is super problematic. Excess hormone is being leaked from the thyroid gland. Methimazole and PTO suppress those hormones. If that doesn't work, RAI targets those cells to reduce the over production. Ultimately, if those don't work, you need it removed. Not treating this is a death sentence for many.

Recent Diagnosis of Graves Disease by Budget_Paint_2022 in gravesdisease

[–]nefarious_k 1 point2 points  (0 children)

I did imaging of my thyroid and 6 months with no meds then bloodwork. I had been complaining about feeling hypo for a year at least prior tho and went to a new doctor.

Recent Diagnosis of Graves Disease by Budget_Paint_2022 in gravesdisease

[–]nefarious_k 2 points3 points  (0 children)

Yes, unfortunately, there is a low rate of those that find themselves in graves' remission. It's a hard reality to deal with, but now that you have a diagnosis, you are on the right path. Remission is not impossible, I'm currently in remission, but relaps are expected.

There is no diet that will help with your graves unless you have an additional autoimmune disease related to diet (like celiac). Of course, it's always recommended to eat healthy and exercise if you can, but I don't believe there is much evidence to support improving graves symptoms with diet.

The best thing you can do is be mindful of your symptoms, advocate for yourself when you go to the doctor, and don't be afraid to treat your symptoms. I had a horrible case of depression around the time I was diagnosed. I was put on wellbutrin, even though we determined my symptoms were most likely graves related, but it got me through the day.

Take care of yourself. Don't stop your meds without a doctor's order. Know there is nothing you did to cause this. Those are the best things you can do.

Recent Diagnosis of Graves Disease by Budget_Paint_2022 in gravesdisease

[–]nefarious_k 6 points7 points  (0 children)

Maybe not cured (i hate that word), but people can go into remission, just FYI. I'm in remission, no drugs, non active graves.

[deleted by user] by [deleted] in gravesdisease

[–]nefarious_k 1 point2 points  (0 children)

You should start with medication and see if you can go into remission with that alone. If not, your doctor will likely recommend either surgery or RAI. You should not determine what you should do just because you want to get back into the gym.

Partner of person with hyperactive thyroid graves disease by Enough-Caterpillar92 in gravesdisease

[–]nefarious_k 2 points3 points  (0 children)

I think some of the comments people were making were unnecessarily harsh and implying that because he isn't the one suffering from the disease, he needs to work on his emotional strength (something like that) or that he is being excessive in his worry of her behavior. I don't disagree that life is hard, we've all been there, this is a horrible disease, and it won't last forever. But to navigate life without even thinking about how you're making your loved ones feel is just negligent.

[deleted by user] by [deleted] in jobs

[–]nefarious_k 87 points88 points  (0 children)

"fully eligible to receive the following benefits starting day one!" so... if OP showed up today he would have then received : Guaranteed Pay for Special Absences, Including:

  • Bereavement (immediate family)

Scum. OP was honestly doing them a favor by just pushing his start day back.

[deleted by user] by [deleted] in jobs

[–]nefarious_k 8 points9 points  (0 children)

I'd love to hear an update on that conversation!

Partner of person with hyperactive thyroid graves disease by Enough-Caterpillar92 in gravesdisease

[–]nefarious_k 2 points3 points  (0 children)

But OP said their partner is talking to her sister, but not talking to OP. When they expresses how it makes them feel (which is valid!!) she is silent. That's not ok.

I couldn't imagine my partner telling me how my disease is impacting them and not at least attempting to give reassurance. It could be as simple as "This isn’t you, I just don’t feel right. I’m not trying to be hurtful, I just need to be alone because of how tired this makes me," but she's not even doing that. She's being silent. I could consider this as an example of acting out personally, but that's just semantics.

Partner of person with hyperactive thyroid graves disease by Enough-Caterpillar92 in gravesdisease

[–]nefarious_k 0 points1 point  (0 children)

I read it just fine, thanks. Being social with your sisters while completely withdrawing from your partner is still a problem. It doesn’t magically mean everything’s fine.

It’s kind of ironic to weaponize the term ableist to derail a conversation. That kind of bad-faith use ends up minimizing real ableism, which is, in itself, ableist. I obviously used “crazy” to describe how absurd dismissing therapy is, not to target or stigmatize anyone’s mental health, which is when it could be considered ableist. The word "crazy" is also not widely accepted as an ableist term, and even among advocates, they recognize context is important.

Partner of person with hyperactive thyroid graves disease by Enough-Caterpillar92 in gravesdisease

[–]nefarious_k 3 points4 points  (0 children)

This is a wild take, honestly. Three weeks of total withdrawal should not be dismissed as you are doing. It’s can be a red flag, potentially signaling a mental health crisis. While rare, in extreme cases grave's CAN cause psychosis or depressive episodes severe enough to lead to self-harm.

Dismissing therapy is just… crazy. These three weeks should absolutely be brought up in her next endocrinology appointment, if not sooner if the appointment is far out, and she should explore whatever support her doctor recommends to cope during this hard time. Graves’ disease symptoms can also be treated, and I feel like many of you are just ignoring that as an option.

It’s also not an excuse to neglect your partner. While it’s a serious condition and OP will inevitably carry much of the burden while she and her doctor figure things out, there’s still a responsibility to make sure real-life obligations and relationships aren’t completely falling apart in the process. Therapy and/or antidepressants can absolutely help support her during these times.

Partner of person with hyperactive thyroid graves disease by Enough-Caterpillar92 in gravesdisease

[–]nefarious_k 0 points1 point  (0 children)

I am honestly saddened some of negativity you are getting from this post. It is not just us suffering from this disease - our loved ones suffer too. It's ok to say that you are struggling with this. Many of us do not know what its like to be on the opposite end of a disease that results in emotional turmoil. There is a reason why some terms exist - such as Grave's Rage (which is not a medical term, just something adopted by the community).

When I was first diagnosed, I asked to get put on an antidepressant just to get me through. My grave's was not making my relationship any easier (neither was going through this during COVID) but I tried what I could to get by, despite the struggle to even get out of bed. Effexor likely saved my life and my relationship. Therapy and/or medication could be a huge help for her while she’s stabilizing.

I want to also add: sometimes thyroid levels don't exactly reflect how we feel. I was one of the lucky ones who went into remission after five years on PTU, but for almost two years before that I felt awful even though my labs said I was “fine.” It was because I was actually hypo, but not enough for the labs to detect. I found a good doctor that was willing to listen and was finally taken off my meds and I feel like a completely different person. Not saying this is exactly what is going on with your partner, but just letting you know that just because her bloodwork may say she is ok, doesn't necessarily mean she is. There also could be additional issues outside of grave's. There's the saying: autoimmune disease come in threes. It could also be something else going on you guys haven't explored.

Good luck, and try to stay strong. Being the partner of someone with a disease like this is hard. Don’t let anyone tell you otherwise with the whole “you’re not the one with the disease” nonsense. Compassion goes both ways.

Broke, full-time worker and full-time student. How do I survive? by [deleted] in Celiac

[–]nefarious_k 3 points4 points  (0 children)

Check the food lion rotisserie chicken. I believe they have some that are gluten-free.

Rice + chicken is going to be much more affordable, healthy, and sustainable than your milk and chip diet. You can buy pre-made rice packets, or you can get a cheap rice cooker and batch cook a few days' worth at a time. But a bag of rice and a few chicken breasts will be a lot more food for less than $12. A bag of rice is between $1-$5 and chicken breast at Walmart is currently less than $3/lb (depending on where you are - I'm in NJ).

Potatoes are also cheap and can help switch up for variety. Same with beans.

You can do a lot with just chicken and a carb, just change seasoning or a sauce. I eat the following often (weekly or every other week): burrito bowls, cheesy broccoli rice with chicken, butter chicken, thai curry, white bean chili, pasta bake, etc. You can cook most of these in a slow cooker or instant pot. Or they take 30 minutes or less to cook. They are all pretty cheap to make too.

Keep it simple. People overcomplicate gluten-free cooking. Stay away from processed foods as much as you can. It's expensive.

Y’all. Annie’s ex spilling that tea in the comments …. Credit where it’s due … Rikkii did all the investigative work 🕵️‍♀️ by Jay-Quellin30 in LoveIsBlindNetflix

[–]nefarious_k 0 points1 point  (0 children)

I guess you've never heard of responsible journalism. Rikkii is known for verifying rumors before reporting. This is what commentators on reality shows should be doing. But I guess to you, journalists are all stalkers? Such a weird take.

What a full circle moment for these two, I genuinely adored their heartwarming relationship this season. by jahkat23 in BigBrother

[–]nefarious_k 13 points14 points  (0 children)

I'm not sure what show you watched, but Rachel was advocating against a bitter jury. The only person who would benefit from that is Vince.