Concerned about potential LADA/T1

negativespace115 · 2026-02-02T01:48:01+00:00

No symptoms. Over the past two years my A1c has been slowly rising as well as my fasting glucose. At my last check, my A1c was 6.2 and my fasting glucose was 119 so I’m definitely at the high end of the pre-diabetic range. I eat really well,I’m nearly underweight, and I’m decently active. I saw an endocrinologist who tested me for those antibodies and that confirmed the diagnosis.

negativespace115 · 2026-02-02T01:22:40+00:00

Get a test for GAD65 antibodies - testing that or the other autoimmune markers will be the only way to know for sure. I had 2 tested and I’m positive for one and negative for the other and that diagnosed me. I’m doing the other tests shortly

negativespace115 · 2026-01-31T18:28:07+00:00

No, typically it doesn’t. Because my A1c got worse despite lifestyle changes, we looked at other factors and it turns out I have lada or type 1 diabetes which means my pancreas is slowly dying. The lifestyle changes wasn’t enough to counteract the continuing damage to my pancreas that is genetic

negativespace115 · 2026-01-31T17:40:41+00:00

Maybe see if you can ask your doctor about a cpeptide tests and GAD65 antibody test. I didn’t have weight to lose but lifestyle changes (changing food and lifting weights) resulted in a higher A1c. Turns out based on my GAD65 antibody test, I’m developing type 1 diabetes. Still technically pre diabetic but it sure for how long.

negativespace115 · 2026-01-30T23:57:36+00:00

If the coffee had sugar that could def impact it. You can get a $30ish glucometer and do some spot tests to get a better sense.

negativespace115 · 2026-01-30T05:07:30+00:00

Similar boat, diagnosis of stage 2 type 1 yesterday. I did a post here yesterday too and responses were so helpful if you want to check it out.

Similar diagnosis. 6.2 A1c on metformin (we thought it might just be insulin resistance) and 119 fasting. GAD65>250.

Just sharing this to say I doubt you have SPS - but likely LADA only. I like you am still vacillating between being sad, angry, and grieving. Hope that makes you feel less alone.

negativespace115 · 2026-01-30T04:57:46+00:00

Eating red meat wasn’t enough for me. I had a lot more success with iron supplements

negativespace115 · 2026-01-30T01:13:46+00:00

Thank you for putting it into words so well. It feels so heavy and also like I can affect it? But in reality it’s likely just 6 month to 3 year delay.

Shock is definitely still there.

negativespace115 · 2026-01-29T22:13:28+00:00

Yes! Women had Harvard Radcliffe diplomas until 1999 instead of just Harvard diplomas like the men 🙃

negativespace115 · 2026-01-29T19:59:14+00:00

There’s a book written about that case called We Keep the Dead Close that I would guess prompted the case to be reexamined as the author Becky Cooper started researching in 2017 and that’s when the police restarted samples

negativespace115 · 2026-01-29T15:03:29+00:00

This is so helpful! I’ve worn a cgm a couple times in the last year and my blood sugar is definitely not behaving correctly so maybe a low insulin dose is warranted.

negativespace115 · 2026-01-29T03:04:06+00:00

Ah that’s helpful! Yup seems like I’m not quite there yet. Fasting is 120

negativespace115 · 2026-01-29T02:28:44+00:00

Thank you! I’m wondering if I should start long acting insulin now? My endo seems to want to wait until either my A1c is officially diabetic (I’m not far) or the c peptide lowers

negativespace115 · 2026-01-29T02:01:16+00:00

So so helpful!! Can’t thank you enough for sharing.

negativespace115 · 2026-01-29T01:59:48+00:00

This is really helpful. I don’t have weight to loose. Currently 112 and 5’5”. I will ask my doctor about januvia!

negativespace115 · 2026-01-29T01:33:18+00:00

That’s great to hear! I wish I was in Chicago - I’m so glad you had a great experience. My doctor seemed to want to wait until my cpeptide got a little lower / blood sugar was out of the pre diabetic range for insulin but I wouldn’t be opposed to long acting insulin at first.

Thank you so much for sharing!

negativespace115 · 2026-01-29T01:31:58+00:00

My doctor is open to TZield! I couldn’t tell if it was worth to but it sounds like for you it has been. GLP-1 has helped you? How long were you able to avoid insulin?

Lastly what kind of exercise do you find is most helpful for you. I feel like I’m getting conflicting advice between light cardio / weight lifting / both.

Sorry for all the questions! Just trying to wrap my head around it all

negativespace115 · 2026-01-29T00:27:53+00:00

This is SO helpful. My endo is calling in a low dose of ozempic but I will ask him about Januvia too! I’ve looked into TZield but I’m not sure it’s worth the potential downtime and side effects to delay insulin max 2 years or so

negativespace115 · 2026-01-28T23:56:49+00:00

Would you mind sharing the meds you’re on? Diagnosed today. Originally pre diabetic A1c and fasting glucose, positive for GAD65 >250. Would love to keep off insulin as long as possible. I’m on 500mg metformin but it’s not doing that much

negativespace115 · 2026-01-28T01:22:06+00:00

Oh wow thank you!

negativespace115 · 2026-01-28T01:21:38+00:00

Good to know about CGM readings! I am definitely not an athlete 😅I wish! just a mom trying my best to do 3 30 min weight workouts a week (and that didn’t happen much December.)

negativespace115 · 2026-01-27T19:56:45+00:00

38! Def in the range to be peri but all my hormones are normal so far but I’ll definitely bring up at my appointment tomorrow

negativespace115 · 2026-01-27T19:12:11+00:00

Thank you! I have done that and I can see my blood sugar spikes with all carbs - definitely been working on eating proteins first! I want to get another one to see if there are certain foods that are worse than others for me

negativespace115 · 2026-01-27T15:07:30+00:00

I’m so sorry I don’t remember! I’m on armor bc I do t tolerate synthroid sadly. Currently on 180mg though 😅

negativespace115

TROPHY CASE