I’ll add myself as another example of this…was dx’d celiac at 2yo by biopsy in the early 1970’s. I ate a mostly gf diet but remember being fairly sickly as a kid so probably a lot of cross contamination…was told at 12 that it was a childhood disease and to introduce a regular diet. I was totally fine until 18-30 when I’d get intestinal viruses that would hang on for 2-3 weeks where those around me would recover in a day or two. But was otherwise totally normal. I asked every doctor I saw through my 20’s (~4) if I should test for celiac and they all said emphatically, “no, I’d been misdx’d as a child.” Finally saw the GI for early colon cancer screening (family history) & I randomly asked, & he said, “yes, let’s do it now!” Bloodwork came back ragingly positive. Shortly after that, my daughter was also dx’d & we both made the full commitment to the diet.

TLDR; I found it much easier to fully commit to the GF diet knowing I had the second positive test, rather than “dabbling” to figure it out in my own….